AL X Andra

☮️🧘🏼‍♀️☯️

🌈she/her

#SevereME suspected #CCI

[Amy @alexandrite113]

The voices of the very severe need to be amplified. So many people still think that “mild” is what ME is and have no clue that it can get worse than your worst nightmares. Like being buried alive. #pwME #SevereME #MECFS

[AL X Andra @_Al_X_andra]

@dutchlauren @AmbrosineShitr2 Maybe I need up the dose then?

[AL X Andra @_Al_X_andra]

@AmbrosineShitr2 It don't seems to work for me unfortunatley :(

[AL X Andra @_Al_X_andra]

@thane_black How do I use them, all day and night untili it wears off?

[AL X Andra @_Al_X_andra]

@eggyonline Thank you so much for reaching out. Ive been trying all of it already, w/o success :((

[AL X Andra @_Al_X_andra]

@thane_black It's unfortunatley not available here. The shipping from the US is around $30 Did it help you with adrenaline rush?

[AL X Andra @_Al_X_andra]

#mecfs #pwme #meawarenesshour #MEawareness #MEaction #severeME

[AL X Andra @_Al_X_andra]

@thane_black ..which is causing even more suffering💔 Thanks Thane, for giving me some healing words for wake up🙏🏻❤️

[AL X Andra @_Al_X_andra]

Been lying here for hours
waiting
to be well enough to pee
I would also need to eat
and phone my kids
to see how theyr doing
But that'll have to wait

How on earth
did I get here?

#mecfs
#MEawareness
#pwme
#severeME
#longcovid
#help

[AL X Andra @_Al_X_andra]

@thane_black Physical suffering

[AL X Andra @_Al_X_andra]

@hassankhaderali Thank you dear friend❤

[AL X Andra @_Al_X_andra]

@DafoeWhitney Thanks for sharing <3 I need to shave my head, can't shower anymore but my youngest son wont allow me. He say I will both act and look very sick if I do so. 💔❤ Take care

[AL X Andra @_Al_X_andra]

@MrkStdngr I am ok with contrast, I have both eds and mcas. Good luck!

[Carole Bruce @CaroleBruce17]

This is so true of #ME too. All the neat explanations of how to control and manage this horrible illness are so often useless and make us feel worse and more impotent than ever.
#MEAwarenesshour

[AL X Andra @_Al_X_andra]

@DressFor_ME That was helpful, thank you so much 🙏🏻

[AL X Andra @_Al_X_andra]

@MECFSisCFSnotME Perfect, thank you 🙏🏻😍

[AL X Andra @_Al_X_andra]

#pwME

[AL X Andra @_Al_X_andra]

@Clarejames131 Thank you dear unknown friend

[AL X Andra @_Al_X_andra]

The weaker I get,
the less I can communicate.
The less I can communicate,
the more lonely I become.

Just one of all the #mecfs cruelties

#severeME
#verysevereME
#chronicillness
#pwME #mecfs #MEawareness
#longcovid

[AL X Andra @_Al_X_andra]

@mynamesleurah This💔❤