Mark Jackson

Director of Policy & Influencing @PSPAssociation | formerly @mariecurieuk | Views my own |

[The PSP Association @PSPAssociation]

Only 1 in 5 people get #NHS Continuing Healthcare (CHC) funding, with postcode lotteries making access unfair. We’re supporting Dementia UK's call to #FIXCHC for fairer assessments and funding. Sign @DementiaUK petition: https://t.co/qQWi4QmsPU #healthcare

[The PSP Association @PSPAssociation]

Last week’s Budget was a missed opportunity to address huge gaps in funding, care and support for people living with PSP & CBD, who are impacted by every decision not to invest in social care.

[The PSP Association @PSPAssociation]

Welcome to see funding for 250 new Neighbourhood Health Centres in the Budget last week. But as @NeuroAlliance highlights, too many people with conditions like PSP & CBD are still waiting too long for care and support. #ActNowForThe1in6 #TheBudget

[The PSP Association @PSPAssociation]

Stephen and Susan were declined CHC Funding earlier this year. Stephen believes they weren’t eligible because they’re managing by themselves, despite the stress and financial burden.

Read their story https://t.co/E9jcUuHPMH and how you can help #FixCHC by writing to your MP

[Mark Jackson @_MarkJackson_]

We know that too often, people living with PSP & CBD don’t get the care they need.

I’d encourage everybody in the #PSP & #CBD community to take a few minutes out of your day to take this year’s My Neuro Survey and share their experiences, to help us campaign for better support👇

[The Neurological Alliance @NeuroAlliance]

Everyone needs access to the right care at the right time, no matter who you are
or where you live. Share your experiences and celebrate excellent care or highlight
areas for improvement. Fill out My Neuro Survey here. https://t.co/nCldXY2DX0 Thank you

[The PSP Association @PSPAssociation]

At our recent Leeds Friends & Family Day, Laura explained how Occupational Therapists can help and how day-to-day activities are assessed to maximise independence for people living with PSP & CBD.

#OccupationalTherapy #FriendsAndFamilyDay #OccupationalTherapist #PSPASupport

[The PSP Association @PSPAssociation]

PSPA CEO Rebecca Packwood introduces the launch of the #MyNeuroSurvey from @NeuroAlliance .

Fill the survey in as someone living with PSP/CBD or as a carer.

Take the survey here: https://t.co/F5P6UbVh8N

#PSPA #NeurologicalConditions #MedicalSurvey #ShareExperiences #PSP #CBD

[The PSP Association @PSPAssociation]

AWARENESS GRANTS DEADLINE APPROACHING!

The deadline for the PSPA Awareness Grants is fast approaching on 31st July & there is £8,000 to award for 2024.

Apply here: https://t.co/QcYKjwM8MK

#PSPASupport #AwarenessGrant #RaiseAwareness #PSPAware #AwarenessCampaign #TeamPSPA

[RARE Revolution Magazine® @RareRevolutionM]

Challenges and priorities for the #PSP and #CBD community: Insights from Mark Jackson from @PSPAssociation.

Read at https://t.co/uDmMdWbF78

#PressRelease

[The PSP Association @PSPAssociation]

Last year we launched our Awareness Raising Grants. This year we have £8,000 to award and the deadline for applications is 31 July.

For more information and how to apply: https://t.co/QcYKjwM8MK

#PSPASupport #AwarenessGrant #RaiseAwareness #PSPAware #AwarenessCampaign #TeamPSPA

[The PSP Association @PSPAssociation]

A quick reminder of our #WeCare campaign. We are calling for a better deal for unpaid carers.

Share your experiences with your local MPs, on social media and beyond!

Resources: https://t.co/i8TR2jTPwI

#progressivesupranuclearpalsy #corticobasaldegeneration #supportforcarers

[The PSP Association @PSPAssociation]

Today marks the first day of Carer’s Week 2024.

There are six million plus unpaid family and friend carers in the UK.

PSPA will highlight our useful services and resources available to carers.

#CarersWeek #Carers #PSPASupport #PSP #CBD

[The PSP Association @PSPAssociation]

On Monday, Mark Jackson, our Director of Policy and Influencing, spoke to BBC Three Counties Radio about our #WeCare campaign which launched on 3 June.

Listen top Mark talk about PSPA, PSP & CBD and how people can get involved at 2:38 into the show.

https://t.co/6H9Rf1toPd

[The PSP Association @PSPAssociation]

Thank you @RareRevolutionM for sharing our #WeCare campaign and spreading the word.

[The PSP Association @PSPAssociation]

Great to see @MKCitizen promoting our #WeCare campaign.

Have a read to learn how you can help show #Wecare in your area by writing to you local election candidates and asking them to support the campaign if they are elected in July.

https://t.co/dPxTKaTN21

[The PSP Association @PSPAssociation]

New Podcast. In this special Volunteers Awareness Week episode we’re speaking to Sally Reynolds.

Sally runs the Hampshire Support Group and is also a Link Volunteer.

Listen: https://t.co/TVbBtCPc8f

#PSPAPodcast #Podcast #VolunteerAwarenessWeek #Volunteers #PSP #CBD

[Mark Jackson @_MarkJackson_]

Great to launch our #WeCare campaign today @PSPAssociation

Since joining PSPA I've been struck by the incredible work PSP & CBD carers do - and by the difficulties they face.

We're asking supporters to write to their #GeneralElection candidates to back a new deal for carers 👇

[The PSP Association @PSPAssociation]

Our #WeCare campaign calls for a better deal for the family and friends who care for people living with PSP & CBD

You can show #WeCare by writing to your local Election candidates and asking them to support #WeCare campaign if they’re elected this July.

https://t.co/vDR2TD5Dsu

[The PSP Association @PSPAssociation]

Our #WeCare campaign calls for a better deal for the family and friends who care for people living with PSP & CBD

You can show #WeCare by writing to your local Election candidates and asking them to support #WeCare campaign if they’re elected this July.

https://t.co/vDR2TD5Dsu

[The PSP Association @PSPAssociation]

There is still time to register for our free Family and Friends Day in Leeds.

During the day you can connect with other families affected by PSP & CBD, hear updates from Dr Tim Rittman and take part in a Royal Ballet seated exercise class.

https://t.co/Un9ZersXFR

[The PSP Association @PSPAssociation]

We're looking for a creative and ambitious individual to join us as the Corporate and Community Fundraising Manager.

If you enjoy building relationships, looking for new opportunities and working as part of a supportive team, we want to hear from you!

https://t.co/dmspk5gVcz