@KerryHaasTrinh Awesome, thanks so much ! Ironically I got my first approval letter in the mail & I think my office did the same thing yours is doing for you so I think we’re in good shape! 😁 lol
@KerryHaasTrinh It’s just a long day.. and they’ll keep checking your vitals every 15-30 min. But you’ll get used to it and you can enjoy that day to rest! 🙂 please keep me posted if anything new happens w your co-ins or with your infusions! Best of luck w everything. Sorry we have this 😕
@KerryHaasTrinh Every time I send an EOB to Genentech they say ‘ it’s not a bill’ . And I can never get them to pay 😂 I’m going to spend a bunch of time on the phone w them this week. Hope all goes well, I’m positive you’ll be fine!
@KerryHaasTrinh @danaMpatton Make sure you drinks lots of water!! That part is very true! Talking with friends and family educated in the medical field this is absolutely your best progressive medicine. The cost is criminal though, it’s sad 😔 the first form I filled out was my income 🙄
@KerryHaasTrinh @danaMpatton I’ve gotten 5 treatments so far. The first half dose I started to get a scratchy throat on the first dose bump - they gave me another Benadryl and was fine after. I haven’t had that happen since and have had no other major symptoms prior or post treatment. 🙂
@KerryHaasTrinh @danaMpatton But haven’t been able to get them to cover anything? Curious as to how you were able to have them set you up in the way you stated? If you could reply or send me a DM to discuss I’d love to hear- it’s been a nightmare since my diagnosis with these costs 😩
@KerryHaasTrinh @danaMpatton Hello, I’m currently getting Ocrevus as well and have been preaching the same awful cries on the costs of it all. It sounds like I’m in the same situation with you with my ded - I’ve gotten in touch with Genentech and the patient navigator and do have the co-ins card
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