🎙️Listen to @_AMGutierrez discuss our work in @hail_CSER on adolescent and young adults’ preferences for shared decision making about genetic testing in cancer care!
Adolescents and young adults (AYAs) with cancer weigh in on genetic testing: Study author Amanda Gutierrez joined GenePod to discuss the importance of including AYAs in decision making about their healthcare and participation in genomic sequencing https://t.co/FxNXx6YWrH
NEW STUDY: Explores the decisional preferences related to #genomic research of adolescents & young adults w/ #cancer & their engagement with genomic results; by our team & collabs
https://t.co/z9rd6B2htp
#genomicsequencing#assent#consent#oncology
📢 New publication in @GIMJournal 📢
Explores parents’ motivations to receive & reasons to decline adult-onset only #genetic disease risk information for their #children, the #decisionmaking process, suggestions for supporting #parents
https://t.co/tmF22VBqDw
#BabySeq#ElSI
Very happy to share this research that explores how caregivers of pediatric patients with suspected genetic conditions approach decision-making about genomic sequencing, with a specific focus on family-level considerations. Read the full article here: https://t.co/NW9qFSUzwU
NEW STUDY: Our Health Policy Scholar @DrIKusters, w/ our Sr. RA @_AMGutierrez & collabs review spanish-language COVID-19 website info vs info in English provided by health departments of the top 10 cities. Take a read: https://t.co/Ncvl395ucY
Our team's latest study, out today in the Journal of Racial and Ethnic Health Disparities, examines #Spanish vs English-language differences in #COVID19 information by large local health departments.
¿Se identifica como hispano/latino y ha recibido pruebas genéticas para el riesgo de cáncer hereditario o tiene antecedentes familiares de cáncer y/o diagnóstico de cáncer? Si es así, nos encantaría entrevistarlo sobre su experiencia. #pruebasgenéticas#cáncerhereditario
Do you identify as Hispanic/Latino and have either received genetic testing for hereditary cancer or have a family history of cancer and/or cancer diagnosis? If so, we’d love to interview you about your experience! #genetictesting#hereditarycancer
Honored to speak at #AlzLatinos2022 with such wonderful co-panelists! Thanks to Dr @ytquiroz for bringing us together for this panel on terminology in medical research. Let’s continue the conversation to find better ways to capture complex Hispanic/Latino identities in research!
One of the primary federal programs intended to help immigrants integrate into the US faces serious challenges related to accessibility, practicality, & demand.
Check out our new @MigrationPolicy report that looks at IELCE & potential fixes. @ACherewka https://t.co/rVsiZHDfBR
In our latest research, we explored experiences of #COVID19-related stigma in the U.S. and described what characteristics were associated with experiencing #stigma during the #pandemic. Check out our paper now out in @APA_Journals' Stigma and Health!
https://t.co/GL447h7GAL
"Empirical research characterizing the breadth of #COVID19 related #stigma in the U.S. is lacking & yet critically needed to inform interventions" Our team delves in @APA_Databases Stigma and Health
@_AMGutierrez, @isabel_canfield @ChristiGuerrin1
https://t.co/p8ufOpdXIa
Latest Article
Assessment of COVID-19 Website Communication in Languages Other than English by Local Health Departments in the United States @DrIKusters@_AMGutierrez@BCMEthics@UHClearLake
https://t.co/hEhvcw60so
New findings indicate a gap by local health departments to address issues re: equitable multilingual, multimodal #emergency#communication & underscore need from our HP Scholar @DrIKusters@UHClearLake & our RA @_AMGutierrez with collabs
https://t.co/YAvEQvc2zl
Our paper, out today, examines whether local #health departments are providing #equitable#COVID19 information to their limited English proficient constituents in their preferred language (https://t.co/ssJfdLsP1w)
How to conceptualize and measure access to #genomic medicine? New @hail_CSER#ELSI WG paper led by @_AMGutierrez outlines a thoughtful approach.
Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium https://t.co/wlJdfO3kBf
Check out our new @MigrationPolicy report which uses an original framework to analyze how U.S. state and local governments have designed laws and policies to advance #languageaccess across their services.
https://t.co/E9qI0sJ39m