Patient advocate for MS & interested in women's health & other neurological diseases. Continued learning about heart cond, diet & nutrition. Osteoarthritis too!
Over half of ppl with MS are 50+, yet trials, treatment guidelines & diagnostic tools have not kept pace, say top neuros in "Call to Action" in @NatRevNeurol.
Result: diagnosis blind spots, under-treatment & missed opportunities.
Lead author:@anneke_vdw
https://t.co/7zqLNqISpe
We’d like to wish everyone in the MS community a very Happy New Year! 🎉
Check out what our #MSSuperstars accomplished in 2024!
We’re hoping for a good 2025 for all of our supporters, family and friends. 🧡
@DrAseemMalhotra Hi Dr Malhotra, is there any possiblity I could read the whole article online free? If you click on link it comes up with pay or subscribe (same thing). We need to be honest and those who are medically trained to help navigate these dreadful situations,
Myelin repair
Thrilled to see @Cambridge_Uni doing a trial to see if metformin & clemastine can repair myelin, the protective coating around nerve fibres, damaged in ppl with MS. Funded by @mssocietyuk.
Such an unmet need.
https://t.co/Mv93oOLPA9
Thank you so much for the huge wave of support and encouragement that has enveloped us. Thank you for the messages, letters and emails. We are so thankful and continue to feel very lucky. Onwards!
“I hope fewer people are affected by MS in the future. That’s why I’m doing my work – to stop MS and create a better world.” 🧡
We caught up with #MSHistoryMaker and PhD student Nelson. He shares his hopes for the future of MS research 🔬 https://t.co/kdBTgAh0bi
♀️ Ageing with #MS for #women ➡️ Other than #symptoms related to ageing, #menopause plays an important role that may induce other symptoms
✔️ need of proper, in-depth conversations with their doctors
✔️hormone therapy should be considered to manage menopause
@ECTRIMS#ectrims2024
Let’s start with the big theme aging with ms. It starts already with 30, the biological age is higher as the chronological age. Important not just for research and doctors, most important for PwMS! #ECTRIMS2024#ms
OLYMPIC MEDAL!
Congrats to Team GB @Laviai Nielsen who - along with her team - has won Bronze in the 4 X 400m mixed relay final
Born East End. @QMUL grad - chemistry. Diagnosed with MS 2021.
Netherlands took gold.
@GavinGiovannoni, @drruthdobson, @KlausSchmierer
There's still poor awareness of early #MS symptoms in doctors & public. So Dr Jaime Imitola @DrJim4MS has created VISIBL-MS, a sign showing early MS signs. Aimed too at Hispanic pop to tackle health literacy.
Early awareness = early diagnosis/treatment.
https://t.co/GYalJIFIT5
Today’s King’s Speech set out the new laws the government plans to introduce. This includes plans for sick pay and protection from dismissal from day one and introducing a disability pay gap reporting.
Read more about the new plans here: https://t.co/JLqiDxh65K 🧵 (1/4)
It’s been 10yrs since I had breast cancer & a double mastectomy.Since then I’ve learnt to love my scars. But that has taken time. 2day on @BBCMorningLive I’m doing a piece about body acceptance after cancer treatment. I hope it gives inspiration to anyone on the cancer journey💛
It's @WorldMSDay and this year's theme is #MyMSDiagnosis 🧡
Being newly or recently diagnosed with MS can feel overwhelming. The first thing to remember is there's a whole community of people here to help.
Keep checking in with us throughout the day for info and support!
Why are researchers looking at this?
A molecule inside cells (called SEH1) switches on genes to kick-start the production of myelin.
Researchers think that when the survivin protein binds to SEH1, it could stop cells making myelin.
https://t.co/tOureeDFMG
#StopMS