Today is the day! Please join us in raising awareness for our loved ones & raising money for research! 💙💪
Tag us in photos of what you are doing today!
Donate at https://t.co/GxBRCuaDew.
#pitthopkins#research#awareness#hope#family
Has anyone ever asked you "What exactly IS Pitt Hopkins syndrome?"?? We can relate! 🙋🏻♀️Share our infographic if you find it useful in explaining this syndrome👍 #raredisease#pitthopkins#awareness
It can also be shared via the link on our website: https://t.co/DurBo9D3Ni
Pitt Hopkins awareness happening over 200 billboards across Texas, Louisiana, Georgia, Alabama, & Chicago!! WOW!! Thank you Rabalais family, for making this happen! 💙
If you see this little cutie on the road, take a picture and tag us!! #pitthopkins#awareness#ontheroadagain
Get ready for #PittHopkins Awareness Day on September 18th with a 2021 awareness day shirt! Each sale impacts our community greatly as 100% of all proceeds support the advancement of Pitt Hopkins research. Shop now: https://t.co/3AxCk07P3o. #support#awareness#hope#rare
You've been asking... and it's here! The Family Conference Agenda is posted! 🔥🔥🔥
👉Registration: Closes June 21, https://t.co/WHjFZGgYPP
👉A detailed agenda can be found here: https://t.co/WHjFZGgYPP
👉Times are Eastern Standard Time (EST).
#pitthopkins#conference#family
We are very excited to have Lauren Enders presenting at our 2021 Virtual Conference! She has so much great knowledge to share about using AAC at home, you won't want to miss this one! Have you registered for conference yet? 👉 https://t.co/9bM7UThU7S #pitthopkins @Lasenders
⭐GIVEAWAY ALERT!⭐
You could be 1 of 2 winners of the new Laluz Diffuser, Peppermint, AND Wild Orange!
For a chance to win, like this post AND Retweet! Giveaway closes April 23 at 12:00 PM MST. Must be following to win.
@GenRescue Same. My son doesn’t have autism but has a genetic syndrome and is nonverbal. A communication device and letter board at 10 years old has changed his life. ❤️
RETWEET THIS! We want 1 million fans to wish the @Chiefs good luck in Sunday’s AFC Championship game. Plus, send some love to @PatrickMahomes. For every person who retweets this, we’ll donate $1 to the quarterback’s charity @15andMahomies (up to $100k). #RunItBack#HyVeePlayoffs
Why do you support the PHRF? Be sure to print and share your reason on #GivingTuesday, December 1! Tag us too! ❤️ #pitthopkins#hope Print here: https://t.co/E6QWZUhJsD
@katiewr31413491 Curious if your son has had this treatment Katie? My son is part of a clinical trial for this that is starting soon, I’m so hoping it will help take the edge off of the gut pain he’s in constantly.
International #PittHopkins#Awareness Day is HERE! A day to come together as a Pitt Hopkins Community and spread awareness across the globe. Please see our stats from the 2019 PHRF Annual Report below, and how your donation is making a difference!
#research#support#hope