26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs#pwme
I am dedicating this account purely to all things ME/CFS related to learn more, to educate more + also to vent more. If you cross my profile please do send any management tips and tricks!! Also ALWAYS happy to chat 🌚
So, yesterday I had my photoshoot for the article in the guardian. I genuinely thought it was a singular headshot…
Be prepared to see me dressed like a sack of potatoes from the shoulders down. And in flip flops 🤦🏼♀️🤣
percentage to work with which he could process better than when I talked through my push/crash cycle. If you can tap into their language it makes it a teeny bit easier! X
This is such an important time for the world to adapt to its current situation. This won’t just blow over.
If you’ve hired someone for their capabilities and they have the capacity (and the want) to keep working, it only takes ONE conversation to offer accommodations #LongCovid
An estimated 4 million workers in the U.S. are struggling to work because of debilitating symptoms from long COVID. The government is urging employers to provide accommodations to keep them on the job. https://t.co/SvP7B8NArp
Some employers are great but it’s impossible to convey to anyone what we go through with #MECFS and #LongCovid. My boss is a data man, so I calculated the rough capacity that I operate at these days by looking at my pre sickness steps data + activity vs current. It gave me a…
Can I ask people with #MECFS if it’s normal to be at risk of seizure when you’re very low energy?
Sometimes all it takes is for me to stand up and I’ve gone from being light headed into having a short, full body fit