PMD Foundation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin

[PMD Foundation @_pmdfoundation]

It’s almost here! 🎉

This @GivingTuesday, we want to hear from you! 💬

Why do you support the PMD Foundation?

Please share your thoughts in the comments below!

https://t.co/btZf5Ksh1o

[PMD Foundation @_pmdfoundation]

Happy Thanksgiving to all of our PMD Warriors and their families!

We hope you can spend the day making memories with those you love.

We are grateful for you, and we’d love it if you shared your favorite Turkey Day moments in the comments below!

[PMD Foundation @_pmdfoundation]

Happy Thanksgiving to all of our PMD Warriors and their families!

We hope you can spend the day making memories with those you love.

We are grateful for you, and we’d love it if you shared your favorite Turkey Day moments in the comments below!

[PMD Foundation @_pmdfoundation]

One week until @GivingTuesday! How does your support help?

In 2024, we saw some exciting things happen.

In 2025 Your contributions will help us achieve more. Please give this Giving Tuesday.

https://t.co/btZf5Ksh1o

[PMD Foundation @_pmdfoundation]

Check your inbox! The latest edition of our newsletter has shipped! 📬

Stay in the know with updates on Giving Tuesday 2024 and our quarterly Treasurer’s Report.

Subscribe today—just head to the bottom of any page on our website to sign up. 💙

https://t.co/9zcQA7jwBp

[PMD Foundation @_pmdfoundation]

We get it: you want to help, and sometimes donating money doesn’t feel like enough.

Fortunately, we’ve got more ways for you to get involved. Every action makes a difference for PMD and PMLD families. Learn more and get involved at the link in bio.

https://t.co/2HjkXrV2Ox

[PMD Foundation @_pmdfoundation]

As Giving Tuesday approaches, we want to thank you for your incredible support on Giving Tuesday is years past and in all of our fundraising efforts. 💙

https://t.co/btZf5Ksh1o

[PMD Foundation @_pmdfoundation]

“Despite adversities, Olaf is a very joyful child, he is always smiling...we are waiting impatiently for someone to say there is a therapy that will help our son and other children with this disease.”

Read Olaf’s story and more like it on the blog.

https://t.co/DgGbHA2O2a

[PMD Foundation @_pmdfoundation]

Two weeks to go until @GivingTuesday! 🎉 Please help the PMD Foundation amplify our mission, raise vital funds, and grow our movement for PMD Warriors.

We’re incredibly thankful for your support!

https://t.co/btZf5Ksh1o

[PMD Foundation @_pmdfoundation]

Two weeks to go until @GivingTuesday! 🎉 Please help the PMD Foundation amplify our mission, raise vital funds, and grow our movement for PMD Warriors.

We’re incredibly thankful for your support!

https://t.co/btZf5Ksh1o

[PMD Foundation @_pmdfoundation]

Two weeks to go until @GivingTuesday! 🎉 Please help the PMD Foundation amplify our mission, raise vital funds, and grow our movement for PMD Warriors.

We’re incredibly thankful for your support!

https://t.co/btZf5Ksh1o

[PMD Foundation @_pmdfoundation]

Stay in the loop! 💙

Join our Affected Family Registry for the latest updates on community resources, research breakthroughs, upcoming studies, trials, and events.

Sign up today on our website or through the link in our bio.

https://t.co/EXhJryVlBc

[PMD Foundation @_pmdfoundation]

Your generous support helps fund the groundbreaking research that brings us closer to new treatments for our PMD Warriors.

With Giving Tuesday just a few weeks away, we want you to know that every dollar makes a difference!

https://t.co/aCtez3dHB1

[PMD Foundation @_pmdfoundation]

Participate in the Natural History Study! 💙

By collecting medical records and biological samples, the PMD Foundation, in partnership with CHOP, aims to uncover key insights into how PMD progresses.

Want to learn more or participate? Head to: https://t.co/7EkLWC5PAy

[PMD Foundation @_pmdfoundation]

One of the easiest ways to connect with your PMLD community is by sharing your story!

Sharing your family’s journey brings us closer, helping PMLD Warrior families connect, support, and inspire one another.

Submit your story today at: https://t.co/xvcoi1zcA9

[PMD Foundation @_pmdfoundation]

Lions, tigers, and bears, oh my! None are as adorable as our PMD Warriors dressed up for trick-or-treating. 🎃

Share a photo of your PMD Warrior in the comments so we can all spread some smiles!

[PMD Foundation @_pmdfoundation]

Real Voices, Real Stories! Discover what our patient caregivers shared about their journey with PMD: https://t.co/v2ZKhTItA5

[PMD Foundation @_pmdfoundation]

“As his mother, I’m still processing my feelings about the diagnosis! So many emotions that only other parents and caregivers of our boys could understand.

One day at a time is my motto!”

Read the full Merriweather Family Story: https://t.co/W2aMp6Zo4l

[PMD Foundation @_pmdfoundation]

Starting a birthday fundraiser is an easy and fun way for your friends, family, and networks to support the PMD community.

Learn more or start your fundraiser at: https://t.co/mV5drYRZ3Z

[PMD Foundation @_pmdfoundation]

Looking for answers to your questions? Want to stay updated on the latest news, inspiring family stories, and essential information about PMLD? Head over to our website and tune into the conversation.

https://t.co/n6whIyrjrP