Ashlie Huss

Penn State Forever. Dreamer. Believer. Doer. Gluten-free world traveler. Rare disease warrior. Life is better with a little neon and some sparkle.

[Ashlie Huss @a_huss]

Just a wonderful sentiment that I had to share

[Ashlie Huss @a_huss]

Hello All
This is Ashlie’s dad and I have bad news. She passed away on 7/5 at Duke University Hospital after suffering a severe anaphylactic reaction while there for other medical issues.
Her wonderful spirit is now free of her tortured body and she’s hopefully free to enjoy.

[Ashlie Huss @a_huss]

.@Walgreens Why aren’t allergies taken more seriously and why can’t people listen to patients?! I told them NOT to fill a certain manufacturer of a med because it contains an allergen and it is NOT safe. They filled it anyways 🤦‍♀️ Not the first time this has happened…

[Ashlie Huss @a_huss]

.Walgreens why is according to my new pharmacy manager trying to get medications without one of my life threatening allergens a “courtesy”

[Ashlie Huss @a_huss]

@KylePallo This site might help https://t.co/L2zwcUKSUR and would definitely recommend calling them. When I’ve had issues like this, speaking to someone at the med company/patient support has been the most helpful.

[Ashlie Huss @a_huss]

@KylePallo Have lots of chronic illnesses and having been dealing with this stuff for awhile. Have you contacted Humira’s patient support program? Sometimes it’s as simple as the card needs to be renewed. They also have other resources, support, and ways to make your med more affordable…

[Ashlie Huss @a_huss]

@KylePallo Went to Aulani 7 yrs ago. They’ve never given men the traditional flower leis. It was those brown kukui nut necklaces. Women got leis, kids got something else. Still disappointing they aren’t doing anything right now

[Ashlie Huss @a_huss]

.@WDWToday Why are your contracted buses not wheelchair accessible?! After waiting 20+ mins for a bus from the Beach Club to the MK, a bus arrived and I was denied access because they couldn't accomodate me and my wheelchair. We're losing party time because of this...

[Ashlie Huss @a_huss]

Once again .@Walgreens wins most infuriating pharmacy system of the year...

[Ashlie Huss @a_huss]

.@WDWToday Also wanted to thank our server Elizabeth and the rest of the Trattoria team. She was kind, patient and had concern for me and my 30+ allergies. Thanks to the kitchen and front of house teams, Trattoria remains a must-dine location for us every trip. #castcompliment

[Ashlie Huss @a_huss]

.@WDWToday Thank you to Chef Rob, Pastry Chef Irene, and the other Trattoria chefs for an excellent meal last night. They added laughter, awe, and sheer joy to an afternoon full of disappointments and frustration. #castcompliment #lifethreateningfoodallergies #therealmagicmakers

[Ashlie Huss @a_huss]

.@WDWToday Don't understand why our "allergy cleaned" room at Pop Century has exposed me to countless of my severe allergens and nobody seems to care or about my safety. There is no sense of urgency as we've been waiting over 50 mins for a manager...

[Ashlie Huss @a_huss]

Last week a manager at my local @ups location told me this would never happen again and less than a week later they're doing the same thing...

[Ashlie Huss @a_huss]

For the 2nd week in a row @UPS doesn’t care about delivery commitments or temperature sensitive and critical medication. They're ruining this replacement order too 🤦‍♀️

[Ashlie Huss @a_huss]

.@WDWToday Special thank you to the Boardwalk recreation team for their using latex free alternatives so the girl with the life threatening and airborne latex allergy could be included in their activities like tie-dye this week. #castcompliment #inclusion #disneymagic

[Ashlie Huss @a_huss]

@danielizab82 They're literally the worst and I'm their "most frequent customer." One pharmacist has such an attitude and is truly awful. I threatened to take my business elsewhere and he laughed...

[Ashlie Huss @a_huss]

Gotta love awful customer service and lots of wasted time by @Walgreens to end our year together. And just when I thought things were starting to get better...

[Ashlie Huss @a_huss]

.@WDWToday HUGE thank you to Pastry Chef Rheanna at the Grand for embracing my 30+ food allergies and making these jaw dropping creations #trueDisneymagic #CastCompliment

[Ashlie Huss @a_huss]

.@WDWToday We only wish we were lucky enough to enjoy their creations every day of our trip #castcompliment #sheerbliss #pureDisneymagic #foodallergymagicians

[Ashlie Huss @a_huss]

.@WDWToday Huge thank you to Pastry Chef Danie and the rest of the Yacht Club pastry team for this AMAZING dessert free of my over 30 allergens! So ridiculously excited to have another member of my pastry dream team and someone else willing to embrace my allergen set...