Action CIND

Advancing recognition, empathy, treatment and support services for Chronic Immunological and Neurological Diseases (CIND) including ME, FM, ES/MCS, CFS

[Action CIND @ActionCIND]

@PatientWorthy Have you tried the Rare Diseases Foundation of Canada?

[Action CIND @ActionCIND]

Aug 8th is #SevereMEDay. 25% of those with #MyalgicE have a severe form of the disease. Help raise awareness.

[may12th @May12th]

Do you write a blog? The #Blog4May12th is back! Include this hashtag in your blog and let [email protected] know so we can post about it. #may12th, #MyalgicE, #pwme, #Fibromialgia , #mcs

[Action CIND @ActionCIND]

@ArasiBenjamin Thanks for tweet. Tom Hennessey Jr founded May121th. We just help promote it.

[Action CIND @ActionCIND]

Tell2People - a new initiative to raise awareness in May. See details at https://t.co/ynSv09siDP. Any questions email [email protected]. Please share widely. We want the whole world to know about us. #may12th, #Tell2People, #pwme, #FM, #mcs, #GWI, #CIND, #MyalgicE, #fibro

[Action CIND @ActionCIND]

@Davemconte Perhaps they have accepted their illness. It makes a difference.

[Action CIND @ActionCIND]

Help me support May12th International Awareness Day by shopping via iGive. Or, help your favorite cause! https://t.co/v2c1joQrTt #iGiveDoYou

[Action CIND @ActionCIND]

@Sabrina_Poirier Thanks too bad. Hope its repairable. Reminds me of cottage neighbour that built a great cottage but didn't brace it. The snow pushed the roof right in and bulged all walls out. Complete make over.

[Valerie Eliot Smith @ValeriEliotSmit]

Disappointing to see Professor Paul Garner, featured in today's @thetimes (£) article by @whippletom, still advocating for recovery from serious post-viral illness by thinking oneself better. My blog post from 1 year ago explains more https://t.co/zs3oHcyhqw via @ValeriEliotSmit

[Action CIND @ActionCIND]

@brianlilley Very sad news indeed. She was a wonderful lady and animal lover. I kin of of expected her to go on forever. Her kind spirit seemed to keep her going. We can all learn something from her.

[Action CIND @ActionCIND]

$5 New Member Shopping Bonus! Join now, when you make your first purchase by 2/15 IGive will give us an extra $5 bonus for May12th International Awareness Day. https://t.co/r0l5vpFk4E #iGiveDoYou

[Action CIND @ActionCIND]

If it doesn’t fit your face properly you might as well not wear it. So leave it for the front live staff that have had a proper mask fit test.

[Action CIND @ActionCIND]

Losing my mind. I thought I saw a tweet from someone I know asking how to get an N95 mask as he store had sold out. I went to check only to return to being unable to find the question. In case it did exist, https://t.co/uwF3mqRwuE has them. HOWEVER - you should know something.

[Action CIND @ActionCIND]

You should know there are several types of N95 masks and they don’t all work. When I was in nursing school, I had to have a mask fit test to determine the correct fit for my face.

[Action CIND @ActionCIND]

@ThatsPauline_

[Todd Davenport @sunsopeningband]

Exercise duration by itself is not an appropriate functional outcome measure for #pwme and patients with #LongCovid. If we wouldn’t stress test a diabetic with a candy bar, we shouldn’t stress #pwme and patients with #LongCovid using bike and treadmill “exercise-for-time” tasks.

[Action CIND @ActionCIND]

@sunsopeningband Thanks for posting this Todd. You’re the experts on this.

[Action CIND @ActionCIND]

@AlisonSbrana However,continuing to work is the worst thing you can do and will and no doubt contribute to a permanentsu disability. As hard as it is to do, giving up work, may actually give you a shot at managing recovery such that working again becomes an option down the road. Good Luck.

[Action CIND @ActionCIND]

@AlisonSbrana However, continuing to work is the worst thing you can do and will and no doubt contribute to a permanentsu disability. As hard as it is to do, giving up work, may actually give you a shot at managing recovery such that working again becomes an option down the road. Good Luck.

[Action CIND @ActionCIND]

@AlisonSbrana Having done that myself, I totally get where you are coming from and needing to do what ever you can to see what you can do not wanting to give up work.