Jenny Meagher

Life stolen by Myalgic Encephalomyelitis. Waiting to be rescued by science. Science waiting to be funded by governments. #MECFS

[Malcolm Farr @farrm51]

Barnaby backflip shows he and One Nation either don’t understand their own policy or don’t have one. https://t.co/KWlUWhAGqi

[Tom Kindlon @TomKindlon]

From Australia 🇦🇺

Deficient TRPM3-linked mitochondrial Ca2+ influx in natural killer cells associated with myalgic encephalomyelitis/chronic fatigue syndrome

https://t.co/M6eBEAynJQ

Screenshot from Science for ME weekly update

#MEcfs #CFS

[Adam @ABrokenBattery]

“Chronic fatigue is not the only symptom. It is one symptom amongst so many others.”

Dr Ranj explains what ME/CFS is, why the term Chronic Fatigue Syndrome does not reflect the reality of the illness, and why many patients prefer the term ME.

[Billy Hanlon @bhanlon15]

WBUR: 'The scope of long COVID is bigger than we think, Mass. researchers say'

“I think Long Covid is a serious national and global problem that demands attention from governments and international bodies" - Dr. Ziyad Al-Aly

https://t.co/qzQrTDDsB8

[Tom Kindlon @TomKindlon]

Severe ME/CFS Leading to Assisted Suicide in a Patient in Her Late 30s: A Case Report

https://t.co/RnY5jEFGxh

A case report detailing the failure of medical care in a young Swiss woman, that resulted in the patient deteriorating to an extremely severe level of #MECFS

#PwME

[The Saturday Paper @SatPaper]

“Sky News should give up the pretense of being a news service and register as a political party,” writes John Hewson. https://t.co/XJ1hEwhInF

[Tom Kindlon @TomKindlon]

"A Normative Pragmatic Inquiry into the Volatility of Norms in Argumentation"

Case study of the current Cochrane review of exercise therapy in ME/CFS

https://t.co/U7lvmtkeek

Screenshot from Science for ME weekly update

#MEcfs #CFS

[Adam @ABrokenBattery]

Post exertional malaise (PEM) is the hallmark symptom of #MECFS

It’s not fatigue following activity. It is a dramatic deterioration and worsening of symptoms.

Short video explainer - triggers, symptoms, and management.

Repost for the last day of #MEAwarenessMonth

[Cheryl Kernot @cheryl_kernot]

Could this happen in Australia?? Parliamentary petition with enough signatures to trigger automatic debate! I’d like to tune in to hear Labour, particularly.

[Jenny Meagher @JennMeagher]

@cheryl_kernot I love the idea. It feels very democratic and grassrootish. Currently, huge petitions are presented to parliament.. then what 🤷🏻‍♀️

[Ben Pennings @BenPennings]

Pauline and Gina’s soldier 😕 He drew swastikas on trees across the road from their food truck and then attacked her physically while saying she “didn’t belong here” and that “she needed to go back to her own country”. Sound familiar?

https://t.co/S7fmTrhWxN

[Tom Kindlon @TomKindlon]

US research

Reduced cortical brain perfusion following COVID-19 infection: impact of COVID-19 severity and relation to memory performance

https://t.co/4XCn0mCEi9

Screenshot from Science for ME weekly update

#LongCovid #COVIDBrain

[Josh Bornstein @JoshBBornstein]

When media outlets like the AFR publish editorials like this, they undermine the democratic rationale of journalism. Instead of holding power to account, they become propagandists for the richest and most powerful.

[@chriswallace.bsky.social @c_s_wallace]

Page 1 splash?
No. Page 11.
🤔😒

[Dr Monique Ryan MP @Mon4Kooyong]

The House of Representatives is debating and dividing on important changes to the NDIS. Not a single member of the Coalition has bothered to attend.

[davidtuller @davidtuller1]

I wrote a letter to a journal asking for a correction to a categorical statement about functional neurological symptoms. An FND expert demanded I apologize to the journal and the authors. I responded. Here's our exchange. https://t.co/uwFYMctoQA

[Emerge Australia @EmergeAus]

Introducing Emerge Australia’s latest Research Digest – easy-to-read summaries of new ME/CFS and Long COVID research, delivered monthly to your inbox. 🧠✨

Subscribe or browse past editions (incl. audio): https://t.co/TgSwFPzfuJ

[Hannah Davis @ahandvanish]

Large study (av age 45) shows people with #LongCovid are 4.48x more likely to have a Major Adverse Cardiovascular Event (stroke, pulmonary embolism, heart failure) & 53% more likely to die.

True regardless of age, BMI, vaccination, variant. Risks last 3+ years from infection. 1/

[Dr Monique Ryan MP @Mon4Kooyong]

While the government freezes support payments and cuts the NDIS, it's still letting multinationals make massive profits off our oil and gas while paying minimal tax, and it's subsiding mining companies with $5bn a year in fuel tax credits, disincentivizing them from decarbonising their businesses. We're robbing the vulnerable to pay Gina.
https://t.co/TfzjHjaJV5

[Sten Helmfrid 🇺🇦 🇬🇱 @StenHelmfrid]

#MECFS is chronic, complex multi-system illness that often leads to severe disability. Some doctors don’t take it seriously and argue that it is socially transmitted. Did you know that many doctors who developed long covid have changed their minds about ME/CFS? #MEAwarenessHour