“As it relates to the current stage of the pandemic, optimism is getting in the way of many people recognizing the harm to themselves, their loved ones, and their communities.
And it is getting in the way of doing anything to stop those harms.”
👇
As a mental health nurse, it is so unhelpful when politicians equate recovery with getting back to work.
Whilst it’s true that as people recover they will likely return to work, and that work can be a huge part of recovery, one’s wellness and value is not derived from it.
Many suffer poor mental health and remain in work. Many people need time out to properly recover.
If their primary goal is to get people back to work they are not mental health hubs, they are DWP hubs.
1. A reminder that if you do believe that the Covid-19 pandemic occurred as a result of accidental release from a laboratory, then you're also tacitly acknowledging that said pandemic is an unprecedented event caused by an unprecedented pathogen.
The whole point is that these two topics are inextricably linked. If social & palliative care are inadequate, then patients with a terminal diagnosis could “choose” AD because we, society, have not given them the care they need for life to still feel like it’s worth living. As a palliative care doctor I witness this so depressingly frequently - patients whose suffering is avoidable, preventable, if only they received decent care.
IF I GET DEMENTIA…..
I’d like my family to hang this wish list up on the wall where I live. I want them to remember these things.
1a. Every time you enter the room announce yourself. “Hi Dad - it’s Amanda.”
NEVER ask- Do you know who I am??? That causes anxiety.
• If I get dementia, I want my friends and family to embrace my reality.
• If I think my spouse is still alive, or if I think we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it.
• If I get dementia, don’t argue with me about what is true for me versus what is true for you.
• If I get dementia, and I am not sure who you are, do not take it personally. My timeline is confusing to me.
• If I get dementia, and can no longer use utensils, do not start feeding me. Instead, switch me to a finger-food diet, and see if I can still feed myself.
• If I get dementia, and I am sad or anxious, hold my hand and listen. Do not tell me that my feelings are unfounded.
• If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am.
• If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to exercise, read, and visit with friends.
• If I get dementia, ask me to tell you a story from my past.
• If I get dementia, and I become agitated, take the time to figure out what is bothering me.
• If I get dementia, treat me the way that you would want to be treated.
• If I get dementia, make sure that there are plenty of snacks for me in the house. Even now if I don’t eat I get angry, and if I have dementia, I may have trouble explaining what I need.
• If I get dementia, don’t talk about me as if I’m not in the room.
• If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, 7 days a week. It’s not your fault, and you’ve done your best. Find someone who can help you, or choose a great new place for me to live. With a bus and activities!!
• If I get dementia, and I live in a dementia care community, please visit me often.
• If I get dementia, don’t act frustrated if I mix up names, events, or places.
Take a deep breath. It’s not my fault.
• If I get dementia, make sure I always have my favorite music playing within earshot.
• If I get dementia, and I like to pick up items and carry them around, help me return those items to their original place.
• If I get dementia, don’t exclude me from parties and family gatherings.
• If I get dementia, know that I still like receiving hugs or handshakes.
• If I get dementia, remember that I am still the person you know and love.”
ᴄᴏᴘʏ ᴀɴᴅ ᴘᴀsᴛᴇ in Honor of someone you know or knew who has dementia. In Honor of all those I know and love and lost who are fighting Dementia/Alzheimer’s.
There's a huge myth that a ton of people are faking sickness for some social/financial benefit, but the reality is that most disabled/chronically ill people are actually pretending to be less disabled than they really are because that's what society wants.
It’s funny that a 90 minute set is considered an abrupt short ended show. I know it wasn’t supposed to end then, but I also know a TON of headline acts that are doing 70-75 minute headline sets these days. Some even shorter!
❗One assessment for Personal Independence Payment (PIP) costs around £282.
Yet people living with a terminal illness are at risk of being re-assessed every three years. That’s public money being used on an outcome that rarely changes AND it adds unnecessary stress and admin for people who are already seriously ill.
It doesn’t make sense.
Can we finally, several years and health sectetaries in, stop pretending that Covid isn't causing problems and leaving chronic ill-health in its tracks and get some preventative action: air filtration, ventilation, a vaccination programme?
@Jerrybraden92 Jerry, it really was. I was buzzing for days after it. They were absolutely incredible back then. I’m looking forward to seeing them play next month in Edinburgh. ❤️