إِنَّا لِلَّٰهِ وَإِنَّا إِلَيْهِ رَاجِعُونَ
Today we lost more than a friend. The thalassaemia community has lost one of its strongest voices and most dedicated advocates. Muiz (Mui) @abdulmuizhassan was truly one of the pillars of our patient advocacy efforts and someone who stood on the front lines for our community with courage and sincerity.
Mui devoted much of his life to supporting and uplifting people living with thalassaemia in the Maldives. He served the Maldivian Thalassaemia Society in different roles over the years, including as Chairperson and EXCO member. But beyond positions and titles, Mui’s work came from something deeper — a genuine passion and a sense of responsibility toward our community.
Whenever someone in the thalassaemia community needed help, Mui was there. Whether it was guiding patients through the many challenges we face, raising concerns about treatment and facilities, supporting families, or pushing for better services and stronger support systems, he never hesitated to stand up and speak for those who needed a voice.
Many people may never fully know how much he did behind the scenes. Countless problems were solved quietly through his efforts, countless people were supported through his kindness and determination. Mui never sought recognition for any of it. He simply believed that helping this community was his duty.
For me, this loss is deeply personal. Mui and I walked this path together as advocates for the thalassaemia community, standing side by side through many struggles and efforts for our cause. We were also colleagues for some time, and through those years he became much more than a friend to me. He was family, a brother, a partner in this mission, and someone whose heart was always committed to the people we were fighting for.
His voice, courage, and compassion left a mark on this community that will never fade. The thalassaemia community has lost a tireless advocate, and I have lost a brother whose sincerity and dedication I will always remember.
May Allah forgive his shortcomings, accept every effort he made to help others as sadaqah jariyah, fill his grave with light and mercy, and grant him the highest place in Jannatul Firdaus.
May Allah grant patience and strength to his family, friends, and the entire thalassaemia community who mourn this loss.
You may be gone from this world, Mui, but your efforts, your voice, and your impact will continue to live on in the lives you touched and the community you fought so hard to support.
You failed.
So did Adam.
So did Yunus.
So did every soul that ever lived.
But here’s the truth—
They returned.
They wept.
They rebuilt.
So get up.
Wipe the dust off.
Make wudu.
And come back to your Rabb.
His door is still open.
It’s you who closed it.
Now, open it again.
On International Thalassaemia Day 2025, we proudly embrace the theme, “Together for Thalassaemia: Uniting Communities, Prioritizing Patients”
#WeAre1#PatientsFirst
For 31 years, she stood tall
With silent prayers
Laughter in pain
And strength of those who refused to give in
Comfort in chaos
Second home to us
Witness to our resilience
Shield to every day warriors
You were never a place
You were a lifeline
Thal center
1994-2025
I am not making unreasonable posts or comments. One of my sons is also a thalassemia major. As part of his daily treatment, like many other patients about 900 registered in Maldives , he needs to take iron chelation medicationat least two doses a day. Unfortunately, the tablets currently available are of such low dosage that he has to take 12 to 20 tablets at a time.
I believe the procurement team should be well aware of the actual requirements and appropriate dosage levels needed for these patients. The current situation reflects a serious lack of competency among those responsible I feel. What’s more concerning is that our Health Minister is also in this group, yet it seems there’s no time to properly review or address these ongoing issues before they become public concerns.