The feeling that we have endless time to complete our work has an insidious and debilitating effect on our minds. Our attention and thoughts become diffused. Our lack of intensity makes it hard for the brain to jolt into a higher gear. The connections do not occur. For this purpose you must always try to work with deadlines, whether real or manufactured.
30 million people are living with a rare disease in the United States, according to the National Organization of Rare Disorders.
That’s why we’re launching CNBC Cures, a new initiative to help raise awareness of rare diseases and improve patient outcomes for people living with them. Led by CNBC's Becky Quick, the initiative was inspired by her family’s own rare disease journey.
Read more: https://t.co/wUH6qv1vv6
Don’t miss the premier of CNBC Cures: Defying Rare Disease, MARCH 19th at 7:00PM!
Honored to have our family & our work establishing the Sunshine Genetics Newborn Screening program in FL featured alongside so many incredible voices fighting for change!
This documentary produced by @BeckyQuick spotlights the families dealing with rare diseases and the scientists, advocates, and innovators fighting to change their futures.
@FSUIPRD
In order to master a field, you must love the subject and feel a profound connection to it. Your interest must transcend the field and border on the religious.
A new Florida pilot program co-led by our own Dr. Pankaj Agrawal is expanding newborn screening through genomic sequencing, allowing clinicians to identify more than 750 treatable genetic conditions before symptoms appear.
Created through the Sunshine Genetics Act, the initiative aims to screen up to 100,000 infants across the state, helping physicians intervene earlier and giving families critical answers when it matters most. 🧬
Learn how this new program could transform early detection and treatment for rare diseases: https://t.co/kfROhAUsFy
Your Parents Are Getting Older.
30 Things To Do With Them Before Time Moves On.
1. Record their voice telling a story. One day that voice becomes a sound you can never hear again.