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aHUS Alliance
@aHUSAlliance
Joined June 2015
10
Following
160
Followers
105
Posts
aHUS Alliance
@aHUSAlliance
about 10 years ago
Visit the new aHUS Global Site, serving as a patient organization portal for aHUS Information, News & Insights
aHUS Alliance
@aHUSAlliance
about 10 years ago
Rare Connect Webinar on
#aHUSPoll2016
results. Register NOW! https://t.co/9o222uaTW6
aHUS Alliance
@aHUSAlliance
about 10 years ago
This event is unmissable. Please block your calendars! https://t.co/ro6x3yk6ji
aHUS Alliance
@aHUSAlliance
over 10 years ago
Eculizumab makes a guest appearance in India! | Atypical HUS India https://t.co/VYcbto6D5T
Who to follow
aHUS Alliance Action
@aHUSAllianceAct
aHUS Global Action to Connect * Inform * Collaborate
Regeneron
@Regeneron
Official channel for Regeneron. We turn science into medicine for people with serious diseases. View our terms of engagement here: https://t.co/EuFDUdQQ5E
Atypical HUS India
@ahusindia
Providing support and information to Atypical Hemolytic Uremic Syndrome patients and family from India
aHUS Alliance
@aHUSAlliance
over 10 years ago
Ring out the bell the aHUS Global Voice Survey ends to today | aHUS UK https://t.co/AGrQx3Cqeo
aHUS Alliance
@aHUSAlliance
over 10 years ago
Last day today for the 2016 aHUS Global Survey. Make your voice heard! Click here: https://t.co/PO6CETlvn2
aHUS Alliance
@aHUSAlliance
over 10 years ago
RT
@RareConnect
: 2016 global
#aHUS
Poll, translated into 6 languages: https://t.co/PO6CETlvn2 Updates on Twitter:
@aHUSallianceAct
aHUS Alliance
@aHUSAlliance
over 10 years ago
enquête
#SHUa
mondial pour apprendre les besoins des patients. https://t.co/3ONTasUwmi jours, ferme 15 Avril
@shuabelgique
@ShuaFrance
aHUS Alliance
@aHUSAlliance
over 10 years ago
Глобальное обследование, чтобы узнать потребности пациентов. https://t.co/3ONTasUwmi дней, в настоящее время до 15 апреля
@aHUSRussia
#почка
aHUS Alliance
@aHUSAlliance
over 10 years ago
RT
@aHUSAllianceAct
:
#SEU
Sondaggio globale per imparare le esigenze dei pazienti https://t.co/3ONTasUwmi, chiude 15aprile # malattierenali
aHUS Alliance
@aHUSAlliance
over 10 years ago
RT
@aHUSAllianceAct
: 患者https://t.co/3ONTasUwmiのニーズを学ぶためのグローバル調査では、4月15日に閉じ
#非典型溶血性尿毒症症候群
#奇病
aHUS Alliance
@aHUSAlliance
over 10 years ago
#Shua
plus que quelques jours pour participer à la grande enquête réalisée par l'
@aHUSAlliance
. Clôture le 15/04 https://t.co/HxqQg4ECKs
aHUS Alliance
@aHUSAlliance
over 10 years ago
RT
@aHUSAllianceAct
Paciente encuesta mundial para informar#SHUa#research yla política sanitaria.Encuesta en español https://t.co/3ONTasUwmi
aHUS Alliance
@aHUSAlliance
over 10 years ago
aHUS Global Survey – Participate Today, ends 15 April https://t.co/9zrTpHuqGO
aHUS Alliance
@aHUSAlliance
over 10 years ago
RT @aHUSUKvoice:
@aHUSAllianceAct
how much donated by all aHUS volunteers in time between £200,000 - £500,000 https://t.co/TIetV7GSho
Rare Diseases South Africa
@rarediseasessa
over 10 years ago
Reality Cheque: The Charity Paradox- discussing the need to change the way we view charities https://t.co/8Lr2o5R6r8
aHUS Alliance
@aHUSAlliance
over 10 years ago
First use of Eculizumab in India. For a boy who was a US citizen and was in India. Some very pertinent points raised https://t.co/fCTPRA8t1J
aHUS Alliance
@aHUSAlliance
over 10 years ago
Calling all caregivers to provide info & insights about the world’s pediatric patients! https://t.co/PO6CET3TYs
aHUS Alliance
@aHUSAlliance
over 10 years ago
Breaking news – the aHUS Alliance poll just launched on Monday, with 64% of respondents so far are adults. https://t.co/PO6CET3TYs
aHUS Alliance
@aHUSAlliance
over 10 years ago
RT
@aHUSAllianceAct
: Why a
#2016aHUSpoll
?To gain data & insight on
#aHUS
issues https://t.co/3ONTasCUXI
aHUS Alliance
@aHUSAlliance
over 10 years ago
A couple of days back we celebrated Rare Disease Day. Come watch this video with many of our aHUS friends. https://t.co/Op7RAI4nml
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