Olivia
Online
SHUa France
@ShuaFrance
Informations et soutients autour de cette Maladie Rare du Syndrome Hémolytique et Urémique Atypique
France
Joined June 2015
89 Following
115 Followers
169 Posts
Aurevoir Jacques et Merci
Dr. Joel Crier presents at #TMAboston Topic #genetics and thrombotic microangiopathy. C3 gene & #familial #genome
#ChacunFaitSaPart Merci de penser à la journée nationale du #dondorganes & #greffe ce 22 Juin 2017 ! #merci RT #onpartage #tousconcernes
Who to follow
Complement Kidney TMA UK
@cTMAGlobal
Independent news and views about complement mediated kidney thrombotic microangiopathy by world leading patient advocate.
aHUS Alliance Action
@aHUSAllianceAct
aHUS Global Action to Connect * Inform * Collaborate
Cris Blazquez. MD, PhD
@Crisblazquez2
Pediatrician. Addicted to Nephology Pediatrics. All tweets are opinions. Fair and hard-working.
Demain, c'est le marathon de Paris. Venez encourager Quentin (31703) et Enza (36019). Tous deux courent avec les couleurs de l'AIRG.
#worldkidneyday l' AIRG-France présente au @CHRU_Lille
Nous avons tous le droit de changer d'avis sur le don d'organes et de tissus. alors pour les indécis, c'est par... https://t.co/1ZQZaquGhr
Mais au fait, une #maladierare c'est quoi? #journeemondialedesmaladiesrares #RareDiseaseDay Pour plus d'info > https://t.co/tyW8i0qTTc
#RareDiseaseDay : nos chercheurs engagés dans la recherche contre les #MaladiesRares 👩🏻⚕️👨🏼⚕️🔬🤳🏼 https://t.co/IVPJonPNiN
Exciting to see #RareDiseaseDay trending online! Keep it going by continuing to share messages on social using the official, global hashtag!
#RareDiseaseDay- Recognizing the importance of #PatientsIncluded in all areas of #raredisease #research #whywedoresearch #WRDD2017 #advocacy
Atypical HUS #patientvoice. #aHUS global community asks researchers questions: 74 entries from 15 countries https://t.co/TW8W1CtZww #RDD2017
It's #RareDiseaseDay – Welcome to this hour's #whywedoresearch Tweetchat! Are you involved with #raredisease #research? If so, how?
#RareDisease policy and access to treatment & #orphandrugs are challenges to note on #RareDiseaseDay. https://t.co/dfAIg7A44y @ShuaFrance
Journée des Maladies Rares Vidéo officielle 2017. 32
jours pour aller. https://t.co/pNQ8IrBFMk #recherche #rénal #maladierare #SHUa #aHUS
#aHUS is a very #RareDisease. Learn more: https://t.co/4LFHmyd2J4 Atypical HUS Resources: https://t.co/NJ9sbORDFo aHUS Alliance #SHUa
Article complet sur le @SHUa du Pr Loirat dans la revue NEPHROGENE de l'Airg-France (page 62 et suivantes). https://t.co/FDASXdrcSU
Quentin court le #marathondeparis pour l'Airg France et le SHU #maladierare et financer la recherche https://t.co/1qO1cWLHjw
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