Rare Disease Day US

2/28/19. #ShowYourStripes & join the movement in the US & around the world for #RareDiseaseDay. (Hosted in the US by @RareDiseases.)

[Rare Disease Day US @RareDayUS]

Get ready to #ShowYourStripes for #RareDiseaseDay & check out our new cover photo! More information coming tomorrow. Stay tuned!🦓

[EURORDIS-Rare Diseases Europe @eurordis]

To mark #RareDiseaseDay 2019 EURORDIS, Agrenska &@rarediseasesint are organising the Second High-Level Event of the @ngorarediseases at the @UN HQ in New York on 21 Feb. The event is a chance to discuss next steps towards a UN Resolution on rare diseases. https://t.co/ep5iZCBknf

[National Organization for Rare Disorders (NORD) @RareDiseases]

How will you Show Your Stripes this #RareDiseaseDay? We'd love to know! Share your ideas using the hashtag, #ShowYourStripes!

[Race for RP @RaceForRP]

The #RaceforRP #Ferrari360 Modena certainly knows how to #ShowYourStripes supporting #RareDiseaseDay on the streets of #NewOrleans, raising awareness for #RelapsingPolychondritis, a rare #AutoimmuneDisease. @eurordis @AARDATweets @RPASF_Official @RareDiseases @rarediseaseday

[Life Rocks @_Life_Rocks]

https://t.co/FIvOybz9gP please check out my full video and leave a comment to help me #RaiseAwareness for #MdDS and help #StopTheRock
#ShowYourStripes #ZebraDiagnosis

[Joanna Tierno @JoannaTierno]

Every stripe has a story. I have 3 of the more than 7,000 rare diseases. #showYourStripes #RareDiseaseDay

[Rare Disease Day US @RareDayUS]

@Chegav The zebra is the official symbol of rare diseases in the U.S. Everyone has their own unique stripes! #ShowYourStripes this year for #RareDiseaseDay!

[Rare Disease Day US @RareDayUS]

We’re going big for our 10th anniversary of Rare Disease Day in the U.S. Who’s with us? It’s time to #ShowYourStripes! Learn more about how you can get involved and help to increase attention on #rarediseases to the world at large this #RareDiseaseDay. https://t.co/rrjQeVFyT3

[Angelica Baker @RareQueenAngel]

I hear rumor @RareDiseases is gonna be launching a Show Your Stripes Challenge!
Oh, it's ON if they give me the chance... @TernieLaBiscuit You DOWN??
#RAREDISEASEDAY #SHOWYOURSTRIPES #PKUSTRONG #RAREQUEEN

[National Organization for Rare Disorders (NORD) @RareDiseases]

🚨Winter 2019 Fashion Trend🚨 STRIPES! Get ready to #ShowYourStripes for #RareDiseaseDay...

[Rare Disease Day @rarediseaseday]

Out now! Download the official poster for #RareDiseaseDay 2019 now available via https://t.co/ZzrcyoRCDd. Share it today to show your support for the rare disease community. #ShowYourRare

[National Organization for Rare Disorders (NORD) @RareDiseases]

The zebra is the official symbol of #rarediseases in the U.S. Everyone has their own unique stripes, those characteristics that make each individual distinct. It's time to #ShowYourStripes!

[Rare Disease Day US @RareDayUS]

Today, Pennsylvania advocates came together at the state capitol for a #RareAction Network #RareDiseaseDay Advocacy Event! Patients, caregivers, legislators, and industry representatives were in attendance for a great event to make the voice of #raredisease heard!

[Rare Disease Day US @RareDayUS]

Today, Pennsylvania advocates came together at the state capitol for a #RareAction Network #RareDiseaseDay Advocacy Event! Patients, caregivers, legislators, and industry representatives were in attendance for a great event to make the voice of #raredisease heard!

[Rare Action Network @RareAction]

Successful #RareDiseaseDay in New Hampshire! #RareAction #TogetherWeAreStrong

[Rare Action Network @RareAction]

"I would really, really love to see this bill passed because it would potentially help people who have rare diseases and are fighting them daily." Please call your KY legislators and ask them to override Gov Bevin's veto of SB7! Call 1-800-372-7181 https://t.co/llNoWPxx8F

[Rare Disease Day US @RareDayUS]

Attend this upcoming #RareDiseaseDay event! https://t.co/MgX39RbREL

[Rare Action Network @RareAction]

Join us for a 2-day event in TX April 19 & 20! Day 1: TX #RDD 2018. Day 2: Advocacy Workshop. Visit the TX Rare Action site to learn more: https://t.co/Xbn2tSG61R

[Rare Disease Day US @RareDayUS]

Together, we can truly accomplish a tremendous amount of awareness for #rarediseases by taking part in #RareDiseaseday each year. Learn more about the 2018 campaign success in the #NORD blog here: https://t.co/ZkkaztORfc #TogetherWeAreStrong

[Rare Action Network @RareAction]

Due to inclement weather, the New Hampshire #RareDiseaseDay event scheduled for today at the capitol has been cancelled. A new date will be announced soon! @RareDiseases

[Incyte @Incyte]

Rare diseases are not so rare after all. Our colleagues #CareAboutRARE to support the 350MM affected by a #raredisease worldwide #RareDiseaseDay