Angela Rylands

Passionate about bringing patient voice to the drug lifecycle in a scientific and robust way

[Angela Rylands @ajrylands]

@RicardoPetraco @UKBorder @BrazilEmbassyUK @joymorrissey Not fair….@BorisJohnson

[Dr Ricardo Petraco 🫀 @RicardoPetraco]

My double vaccinated 82yo mum hasn’t seen her grand children for 2 years as she lives in Brazil and can’t come to UK even with hotel quarantine. I’m sure many other professionals are facing the same problem. But because football is more important… https://t.co/nGNoEHHjCC

[Angela Rylands @ajrylands]

@DrAseemMalhotra @rallamee an absolutely incredible #nhsfrontline hero superwoman and fantastic interventional cardiologist with an unbelievable accolade of international publications. Anyone describing her and her colleagues “rotten to their core” is entirely disingenuous and dangerous

[Angela Rylands @ajrylands]

Fantastic to be attending @US_FDA #PPFD 2-day workshop and hear the latest discussions on quantitative and qualitative research methods

[Angela Rylands @ajrylands]

Great comment @emilycfreeman re:2 possible key uses of patient info from social media - adverse event / early source of info #PFDD @US_FDA

[Guido @runehhtrabuch]

Lots of evidence that tells us that what patients want and what the clinician thinks they want are very different. Cultural shift needed so more open and honest conversations take place #NICEConf18

[Naomi McVey 🐝 @NaomiMcVey]

Brilliant presentation by @SuzRankin on doing GIRFT - including improving patient care & efficiencies through MSK triage, ESP clinics & biopsychosocial approach #NICEConf18

[rebel metrics @wakeartisan]

Great talking to @airylands @pHAssociates1 #NICEconf18 https://t.co/lsNQpPA7n2

[PCO @PCOpHAssociates]

Come discuss your patient centred outcome evidence needs @NICEcomms #NICEConf18 @pHAssociates1 @OAConsulting #PRO

[Angela Rylands @ajrylands]

Great to be here at #NICEConf18 and to hear about the latest developments in bridging the gap between health and well being - Come and talk to us about your Patient Centred Outcome and Real World Evidence needs @pHAssociates1 @OAConsulting @OPENHealth @NICEcomms

[Angela Rylands @ajrylands]

“As a healthcare system we need to focus on doing healthcare WITH people NOT to them” @sir David Haslam #NICEConf18 @pHAssociates1 #PCO

[Mel Calvert @drmelcalvert]

Skip #pros in #cancer drug development at your peril! @EthanBasch1 #oceoutcomes @FDAOncology

[Mel Calvert @drmelcalvert]

Preference-based #promis score .. interesting new development Roxanne Jensen #OCEOutcomes @FDAOncology

[Ishwaria Mohan Subbiah, MD MS FASCO @IshwariaMD]

Aaron Kaat from @NorthwesternU discusses the FACIT PRO tools #OCEOutcomes

[Ishwaria Mohan Subbiah, MD MS FASCO @IshwariaMD]

What’s an item library vs bank?
Item library: separate Qs, can be analyzed separately.
Item bank: list of Qs that measure the same functional domain area, items are co-calibrated. Computer adaptive testing needed to create a small form generated from an item bank. #OCEOutcomes

[Ishwaria Mohan Subbiah, MD MS FASCO @IshwariaMD]

From Alicyn Campbell of @genentech: 2 VERY important slides for clinician investigators (and all stakeholders) on the hurdles that pharma must address as they consider and incorporate any PRO tools into sponsored trials #OCEOutcomes

[Angela Rylands @ajrylands]

Great to be attending #OCEOutcomes FDA Clinical Outcome Assessment workshop #Clinicaloutcomes #patientreportedoutcomes

[Angela Rylands @ajrylands]

Fantastic and innovative re-thinking of “gold standard” PROs by using Thrive modular measurement system. Great work @PaulLikeMe @CPROR_UoB

[Angela Rylands @ajrylands]

Great to hear @KnlAvery about digitally capturing self reported PRO data from patients which results in self-management advice @CPROR_UoB

[Angela Rylands @ajrylands]

Regulatory authorities remind us to “give the patient centre stage” to understand study design @CPROR_UoB #proms2018