Alan Walden

Living with Long Covid. Dad, husband, retired vicar, scientist. Positive, realistic.

[KarenG @tenaciousmumma.🦋.social @tenacious_mumma]

Big thanks to @BBCBreakfast for covering the #ME scandal this morning. Feeling grateful that we have Dr William Weir & @BinitaKane advocating for us and that #ThereforME is growing in momentum 🙏

[Alan Walden @Alan_Walden]

@chrischirp @GiveBloodNHS Unable to give blood due to Long Covid. Interesting that while no test or treatment is available and much of the NHS is in denial about the condition, they are quite clear they don't want our blood!

[Alan Walden @Alan_Walden]

It’s awful here on X so I have gone to Threads. So long and thanks to my friends here, hope to see you elsewhere too. 🤗

[Royal British Legion @PoppyLegion]

Today we mark 80 years since the D-Day landings, remembering the service and sacrifice of all those involved in turning the tide in the Second World War. 1/3

[Gez Medinger @gezmedinger]

Which makes it all the more flummoxing that governments aren’t throwing more money at the problem, or treating it with any sense of urgency. Or indeed talking about it at all.

[Pallavi Devulapalli @doctorpallavi]

Today is #LongCovidAwarenessDay

@ONS estimates 1.9 MILLION people are currently suffering from #LongCovid including 62,000 children

@TheGreenParty calls on @GOVUK to fund research into #LongCovid
& more #LongCovid clinics

And introduce measures to reduce airborne infections

[Putrino Lab @PutrinoLab]

Today is #LongCovidAwarenessDay. A day for acknowledgement of the now hundreds of millions of people worldwide who have had their lives indelibly changed by #LongCOVID. This year's Long COVID Awareness Day comes with an edge, though. If we were a thinking, anti-ableist 1/

[Alan Walden @Alan_Walden]

Over 2 years of Long Covid has robbed me of the job I loved and all the activities I used to enjoy. Research and a real effort to tackle it is desperately needed.
#researchlongcovid
#confrontlongcovid

[Long Covid Support @long_covid]

🚨The Long Covid Support Charity’s #LongCovidAwarenessDay 2024 statement🚨

We call on all governments to:

🔴Invest in research for #LongCovid treatments
🔴Monitor prevalence
🔴Invest in clean indoor air
And more!

⬇️ Read our full statement & share widely!
#ConfrontLongCovid

[Alan Walden @Alan_Walden]

Helpful and realistic coverage of LC treatment and prospects.

[Duncan Parsons @jefph]

Folk interested in #Covid (as we should all be!) this is a decent @BBCRadio4 programme about the first UK #LongCovid clinic.

It acknowledges #CovidIsNotOver & talks about the current state of understanding about LC.

30min

Thank you @BBC - more please
https://t.co/PuULxFRmkq

[Long Covid Support @long_covid]

🚨 We are hearing more and more reports of clinical referrals being rejected if there is mention of #LongCovid, despite people having significant symptoms that need specialist investigation.
Who else has experienced this?
#TreatLongCovid
#LongCovidRuinsLives

[Long Covid Support @long_covid]

🚨💪 Our amazing Founding Trustee Natalie Rogers (@RogersNat70) speaks outside the #covidinquiryUK this morning:

“Evidence heard at the #CovidInquiry has confirmed that #LongCovid has been:

Sidelined

Disbelieved

and

Ignored”

#ItCouldHappenToYou
#ResearchLongCovid

[Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS]

Our colleague @RogersNat70 from @long_covid speaking on behalf of the Long Covid Groups outside the #CovidInquiry

"For our government #LongCovid was and continues to be an inconvenient truth. The side-lining of this condition and prioritisation of the economy over health..."
1/2

[Prof. Christina Pagel - @chrischirp.bsky.social @chrischirp]

My response to *that* BBC article framing Covid as just another winter bug, "like flu", is here:
https://t.co/t8hOnkHhJr

TLDR: it is NOT, because flu is "not just a bug", Covid is not a *winter* bug, and Long Covid remains a serious issue

[Alan Walden @Alan_Walden]

On the last day before retirement, my thoughts on leaving Madeley. https://t.co/MPXe3IZg2S

[Alan Walden @Alan_Walden]

@RevdCharlotte @WalsallHcareNHS Thanks for sharing all this, so sorry to hear how rough you have had it. Hope you recover well and quickly. Stay strong.

[Alan Walden @Alan_Walden]

@RevRichardColes Yes, lorry sized generator would do it.

[Alan Walden @Alan_Walden]

Watching #earth with Chris Packam on BBC. Fascinating and thought provoking. Understanding what has happened to our climate in the past is very relevant for us now.

[Eric Topol @EricTopol]

From a new preprint of a 2-year, prospective follow-up cohort of unvaccinated individuals with Covid in Spain
"Recovery is extremely rare [from #LongCovid] during the first 2 years [full = 7.6%], posing a major challenge to healthcare systems."
https://t.co/wVq4uenaMN