Justin

36 year old with Adrenoleukodystrophy and Addison's Disease. Tweeting about my illness to show others they are not alone.

[Justin @ALD_Daily]

To my Addisons twitter people

Does anyone take anything like this to help with pain, anxiety or otherwise?

Wondering what affect it could have on me positive or negative as was recommended product by a friend.

https://t.co/eZLGPrFXwc

[Justin @ALD_Daily]

@TheNicSoapdish @PS_Support_UK @PlayStationUK They've now charged me again for the astrobot they can't provide instead of refunding me for it! Are they using ai to fulfil orders and process refunds? Absolutely clueless

[Justin @ALD_Daily]

@liukakuah @PixelsandPlots @IGN Mixtape is a great experience, personally had more fun with it than some of the life is strange games. It's great that different people have different opinions

[Justin @ALD_Daily]

@TheNicSoapdish @PS_Support_UK @PlayStationUK Absolute jokers

[Justin @ALD_Daily]

@30HRSZANE @lovesickmani It was on channel 4 first right? Then netflix brought it and did the second series? Either way it's one of the best shows ever and should be available somewhere!

[Hannibal Scorch - Wrestle 𝗖ollective @TheNicSoapdish]

@PS_Support_UK @PlayStationUK why was my order for Astrobot Lego cancelled even though I ordered it on the day it was available? So much for premium member benefits

[Justin @ALD_Daily]

@MikeLaBelle Yes mate but you never give one too me so I unfollowed. Send a ps5 code to me now and I'll follow you for life bro haha 😅

[Justin @ALD_Daily]

@JustACommonFan1 @PlayStation @TeamAsobi Thanks for your reply, I'm not expecting anyone to reach out and help and as I say others seem to be affected too. Very bizarre situation.

[Justin @ALD_Daily]

@JustACommonFan1 @PlayStation @TeamAsobi That they were sorry for the inconvenience. Sad times.

[Justin @ALD_Daily]

@JustACommonFan1 @PlayStation @TeamAsobi We played together so have some great memories. I should have just got the PS1 and astro from lego. Sounds like this kind of thing happens all the time with ps direct pre orders, and the two people I spoke to said they couldn't do anything or offer any goodwill either, just..

[Justin @ALD_Daily]

Disgusting from @PlayStation

Order confirmed for astrobot Lego set the second it went live

Then gets delayed then gets cancelled
Nothing they can do

No goodwill

My daughter now has no set.

[Justin @ALD_Daily]

Prohibit Michael Oliver from Refereeing any Arsenal Matches - Sign the Petition! https://t.co/Ni0thFuXxO via @UKChange

[Justin @ALD_Daily]

Sometimes living with a chronic illness feels like you're that lightbulb in your house that flickers some of time and you know one day, sooner or later it will go out before all the others. #chronicillness

Sorry if that's a little dark (pun intended?)

[BladeoftheSun @BladeoftheS]

Ofgem will increase energy bills by 20% to £3,000 in April even though prices will have been falling for 9 months straight and will have been less than before the Ukraine war (when bills were £1200) for 4 months.

It is theft.

[Justin @ALD_Daily]

@alexTLCsupport @tojo5440 Maybe I could arrange phone call to chat to someone in next week or so?

[Justin @ALD_Daily]

Addenbrookes rang tonight, MRI result showed an area of white matter damage from ALD. They couldn't ever be sure on previous scans if it was the ALD or normal aging process but now they seem sure it's ALD. Need to have another MRI with contrast dye and go from there.

[Justin @ALD_Daily]

@tojo5440 @alexTLCsupport Thanks appreciate it, I was thinking I should soon get in touch with @alexTLCsupport again for a chat. Perhaps after next mri. X

[Justin @ALD_Daily]

@Hillary2956 @TCFcharityUK So sorry for your loss. Wonderful that you always celebrate his birthday. I found reading your tweet emotional on many levels. ❤️

[Justin @ALD_Daily]

@CharlotteNut1 @BPNA_org @answ_shu Not sure how I feel myself or what comes next but have asked team at addenbrookes to give me a call to discuss a few things. Guess I always knew this would happen eventually

[Justin @ALD_Daily]

@CharlotteNut1 @BPNA_org @answ_shu Not the same I know but I was diagnosed with adult onset ald about 20 years ago. Had MRI few weeks ago and heard this week they can now see for sure ald impact on one area of the brain. Having a follow up MRI with contrast dye soon. Think my parents are very worried, the unknown.