Alex Bahram

[Alex Bahram @alexanderbahram]

@white_bite @queenn_demon @crwequine @pathizehealth @mseckykoebel Appreciate the feedback! We're definitely looking into expanded accessibility in the next few months, so stay tuned. Feel free to DM me if you ever have any feedback or questions!

[Alba Azola, MD @AzolaAlba]

Addressing Long COVID: Advancing Researc... | Senate Committee on Health, Education, Labor and Pensions https://t.co/PVpOQjOZsJ

[Todd Davenport @sunsopeningband]

To anyone reading this who’s trying hard to endure and persist with an energy-robbing disease: I don’t know who needs to read this and I can’t know your struggle, but I want you to know I know you’re doing your best, you’re doing great all things considered, and I’m proud of you.

[Alex Bahram @alexanderbahram]

@lexbyanyname 👀

[Eric Topol @EricTopol]

More than 3 years in, with tens of millions of people still suffering, this is the comprehensive list of validated treatments for #LongCovid, as established through rigorous, randomized clinical trials

[Alex Bahram @alexanderbahram]

We started our expert interview series off with none other than @WesElyMD !

In all my years, I've never come across a physician as empathetic and genuinely good hearted as @WesEly. It was a pleasure listening to and learning from him.

Check out the full episode below!

[Pathize Health @pathizehealth]

We are very excited to be releasing the full podcast featuring @WesElyMD!

Dr. Wes Ely is a Critical Care pulmonologist, Professor of Medicine at Vanderbilt University, and Co-Director of @CIBScenter.

Check out the full podcast below:
https://t.co/09x4IOTLg4

[Alex Bahram @alexanderbahram]

@Z3R0Gravitas @HoagieHoag @amy_is_tired @pathizehealth We were intentional in offering a wide range of wearable options! Everybody has different preferences and needs, and we did not want to impede on that. Would a write-up of the pros and cons of each wearable be helpful?

As for access: stay tuned the next few weeks 👀

[Alex Bahram @alexanderbahram]

@IpLongCovid That’s a good shout and maybe I should clarify my question- for those needing to go to physical therapy, who are the providers that understand how to reduce the chance of triggering PEM? For context this was the thread that got me thinking: https://t.co/6dzLvS17NJ

[Taylor of Samsara - Delusional Optimismmaxxing @taylorpartdeux]

@Mormolykeia Oof yeah they put me through PT too. I suffered through it because I needed the MRI, but I definitely wouldn’t recommend if you experience PEM :/

[Alex Bahram @alexanderbahram]

Who are the best physical therapists that know how to work with PEM? One of the most under appreciated components of care with a very high risk if you get it wrong. Drop your favorite names below! Both researchers and care providers!

[Alex Bahram @alexanderbahram]

@Mormolykeia @taylorpartdeux When I was going through PEM, going to a PT that didn’t know how to work with it was super dangerous. There aren’t a lot that specialize in it , but even finding ones that will listen to what you need is an absolute must.

[Alex Bahram @alexanderbahram]

“Costly if you try” - truer words have never been said. Working through PEM is counter to everything we’ve been taught in our lives- “Push harder” ,“Work through it”, “dig deep” doesn’t work here. If you haven’t already, take time to read Ed’s full article. Absolutely brilliant.

[Ed Yong is not here @edyong209]

When long-haulers talk about their fatigue, they often hear “Oh I’m tired too”. But theirs is utterly different to the everyday version healthy people get. More severe. Very hard to push through (& costly if you try). Not cured by sleep. Multifaceted. 3/ https://t.co/oFWb6Flyh0

[Alex Bahram @alexanderbahram]

To all the Chicagoland folks out there:

If we rented out a theater one day to screen movies while being covid-conscious (masking required, maybe even negative antigen test confirmation), would people be interested? If there's enough interest, let's set it up!

[Alex Bahram @alexanderbahram]

@hortonrachel_ @WesElyMD 👀 Stay tuned next week...

[Alex Bahram @alexanderbahram]

If you could hear directly from one Long COVID expert that answers the questions you’re interested in, who would it be? We’re building our list of who we want to interview next on the Pathize Health Podcast. Comment below!

[Alex Bahram @alexanderbahram]

Upping the stakes here. We’re dropping new merch in the next few weeks. We’ll send everyone who comments an item of their choice! If your recommendation leads to us having them on the show, we’ll send you an Apple Watch, on us! Keep the names coming!

[Alex Bahram @alexanderbahram]

My pick would be @MVGutierrezMD. We’ve heard nothing but great things. Anyone that can make an intro?

[Pathize Health @pathizehealth]

We’re thrilled to announce that the newest version of Pathize brings activity tracking!

You can record daily tasks, rank tasks on priority, and correlate activities with data from your wearable device.

🧵 on activity tracking for chronic conditions with Pathize 👇

[Alex Bahram @alexanderbahram]

I'm heading to the @Dysautonomia conference in Washington, D.C., next week. Who should we be talking to? Would love to connect with anyone else going!