Alibalibea

Carer to my son, always a nurse in my heart. Unison member, volunteer, loves Genealogy and crafting.

[Alibalibea @alibalibea]

@LucyHunterB @Lachlan_Edi @WingsScotland @AtticumFloreat I took my adult son into the ladies with me as I couldn't leave him outside. This has happened very rarely when I couldn't get into a disabled toilet. It was obvious to any women there that my son had a significant learning disability as he was clinging on to his mum

[Alibalibea @alibalibea]

@AvantiWestCoast I was visiting my brother tomorrow travelling from Edinburgh to Crewe on the 8.58am Avanti West Coast. What are the chances of the train going?

[Alibalibea @alibalibea]

@DesireeAmerica4 I think he is fab

[Alibalibea @alibalibea]

@RevRichardColes My father in law says up in bed and said in sign language is it time for me to go. My husband said in sign language yes dad it is. My father in law had acute pneumonia. He lay back and died very peacefully

[Alibalibea @alibalibea]

@helenmallam Carers will be looking after people who are younger and physically fitter than themselves. I went back to caring after a long gap at 62 and was averaging 27000 steps a day in a care home My hips couldn't take it and I had to find a lighter job.

[Alibalibea @alibalibea]

@drkeithsiau That's so true my friend had cerebral palsy and had cancer. Most staff were very kind to my friend but didn't see the real person who was an amazing support to me I made up a photo album so they could see the real lady who was some gal.

[Alibalibea @alibalibea]

@CraigMurrayOrg Every MP should work a 12 hour shift in a care home and then see if they think someone should work until age 72

[Alibalibea @alibalibea]

@SunderlandLolly It's not the experience of my friends with cancer in Scotland

[Alibalibea @alibalibea]

@Siobhan_ODwyer @Euan4Falkirk It is a huge risk, my husband was one such statistic 27 years ago and the situation for parents is worse today as there is a huge shortage of paediatric specialists especially in psychiatry

[Alibalibea @alibalibea]

@Siobhan_ODwyer I understand well my husband couldn't cope with the difficulties we faced as parents of a child with significant support needs. he took his own life. It was 27 years ago, such a tragic waste of life. My son and I survived and are doing well but it was so tough

[Alibalibea @alibalibea]

@GardnerThe99 @david_heiduk @AmandaAchtman Music that they have loved in the past. Hugs, reassurance, kindness, hand massage, good nursing care. It helps.

[Alibalibea @alibalibea]

@gerrymcgarvey @StirlingCouncil Margaret was always so kind and giving of her time, she was lovely to me when I was a new councillor. My condolences to her family, friends and colleagues.

[Alibalibea @alibalibea]

@Samira_Artisty You look beautiful

[Alibalibea @alibalibea]

@dr_musgrave I believe in realistic medicine with medics being allowed to prescribe better pain relief. When nursing in the 80s It was a privilege to be with someone in their last days and give morphine as prescribed in dosages that relieved pain even if it did eventually suppress breathing

[Alibalibea @alibalibea]

@MartinSLewis When I cared for my dad and son I was told by the GP you can't work and do both, but I had a mortgage to pay and had to work. It would have been even more horrendous if the house had been repossessed and my poor dad became homeless

[Alibalibea @alibalibea]

I totally agree with you. Even when acutely ill it's hard to get admitted to a mental health ward. I also worry about people on the spectrum who are very clever but suffer acutely from social anxiety. A job coach is the last thing they need

[Better Way @betterwayUK]

We can do better than 'assisted dying'.

[Alibalibea @alibalibea]

@ItsEmilyKaty I don't know anyone with mild mental health issues in hospital, even someone who is acutely ill can be turned away at the hospital door. People with social phobias and/ or on the autistic spectrum can suffer terribly but appear able. I don't think a job coach will help.

[Alibalibea @alibalibea]

@Fionalo53519376 @montie Agreed I know 50 year olds who were asked to sign DNRs during 1st lockdown

[Alibalibea @alibalibea]

@JamesLucasIT And Edinburgh