to love and be loved is something community care within Disability has taught me ❤️🩹
this felt so vulnerable to share but doing it with my C helped to ease my anxiety. love within disability. not despite. Within.
With Valentine’s Day around the corner, love is on many people’s minds. For people with disabilities or chronic illnesses, navigating the dating world can come with many challenges. https://t.co/E7CmOtvuAf
Next Wednesday on 1A, I am producing a show about sex and disability and I’d love to incorporate questions and stories from folks navigating sex with disability, chronic illness, injury or pain.
Here’s how to get in touch:
Leave a voicemail at(855) 236-1212
Email to [email protected]
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URGENT: Disabled Pakistani advocate Nevra is in critical condition — surviving on IV fluids, unable to eat solid food, and still trying to coordinate her own medical care.
She’s spent years fighting for others with neglected illnesses. Now, she needs us.
🇬🇧 🇹🇷 Küçük Kız (The Little Girl) was originally written in Turkish for the #MillionsMissing campaign in 2019 or 2020, I think. My memory fails me 😂 How apt. How characteristic of #PENE (post-exertional neuroimmune exhaustion) - the hallmark symptom of #MyalgicEncephalomyelitis
Video description: first & last slide shows a piece of paper with the words 'küçük kiz' on it. Underneath, in text, says the translation: The Little Girl. The main clip shows white hands holding an orange stack of post-it notes with drawings on them. 1/2
❤️🩹 VERY behind in rent donations! I need £940.35 aka $1,276.72 USD due Sept. 1: https://t.co/nNGir23t82
🚨 Plus £407.39 aka $541.57 USD for food, IV fluids, caregiver: https://t.co/T5WTYptkQT
And £785.46 aka $1,044.66 USD for an apartment #HousingFund#MutualAid#SevereME#EDS
Thanks to your help I moved into other temporary housing after July’s flooding/mould crisis!
August needs:
1) rent due Sept. 1!
2) apartment deposit funds
Donate for housing here: https://t.co/my1kp3txui
3) funds for medical needs, donate here: https://t.co/T5WTYptkQT
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❤️🩹 VERY behind in rent donations! I need £940.35 aka $1,276.72 USD due Sept. 1: https://t.co/nNGir23t82
🚨 Plus £407.39 aka $541.57 USD for food, IV fluids, caregiver: https://t.co/T5WTYptkQT
And £785.46 aka $1,044.66 USD for an apartment #HousingFund#MutualAid#SevereME#EDS
Part 1. Iman posting for Nevra.
CONTINUED.
⚠️ If Nevra is taken back home:
❌ She loses phone access
❌ Trapped again in DV
❌ No IV fluids or care
We urgently need:
Donations for 2–3 months of care/safety
#MutualAid#pwME#SevereMECFS#SevereME#DomesticViolence
Part 2 out of 3. Iman posting for Nevra.
CONTINUED.
⚠️
❤️Rent and deposit donation link:
https://t.co/SqW2RQfdNs
GoFundMe link for food, IV fluids, caregiver costs:
https://t.co/VpLL9hAYmS
#MutualAid#pwME#SevereMECFS#SevereME#DomesticViolence
Part 3 out of 3. Iman posting for Nevra.
CONTINUED.
⚠️
❤️Rent and deposit donation link:
https://t.co/R6L1CCjeCL…
GoFundMe link for food, IV fluids, caregiver costs:
https://t.co/VpLL9hAYmS
#MutualAid#pwME#SevereMECFS#SevereME#DomesticViolence
⚠️ If Nevra is taken back home:
❌ She loses phone access
❌ Trapped again in DV
❌ No IV fluids or care
We urgently need:
1️⃣ Donations for 2–3 months of care/safety
2️⃣ A local volunteer to help her reach the ER
#MutualAid#pwME#SevereMECFS#SevereME#DomesticViolence
❤️ Rent & deposit donations: https://t.co/xQPoRqpvZ4
❤️ Food, IV, caregiver costs: https://t.co/XGd2R6ScUD
❤️ Links also in @SaveLizNevraOfficial’s bio
🙏 Please share widely. We don’t want to lose our friend.
#SevereME#pwME#MutualAid#DisabilityJustice
Iman here 💜 URGENT: Our friend #pwME Nevra is paralyzed with very severe ME/CFS in Pakistan & at risk of being forced back into DV. Needs 2–3 months of care & a local to get her to the ER. This is life or d*ath.
Donate/share: https://t.co/xQPoRqpvZ4 & https://t.co/XGd2R6ScUD
Nevra’s paralysis began after being forced to demold & move through 3 hotels during post-exertional malaise.
Instead of rest, she was forced to over-fundraise beyond capacity.
Now she is paralyzed, with fever >1 week, veins rejecting IV needles, and no local help. #pwME#DV