Alison Robinson

Associate Research Fellow at @acbrd. Living with #type1diabetes since 2011. Tweeting mainly about diabetes waste, stigma, and access. Views are my own.

[Diabetes Australia @DiabetesAus]

Kylie has been living with type 1 diabetes for over four decades. At 25 years of age, she was told she needed an insulin pump to survive.

Read Kylie’s full story here: https://t.co/TNnTuWWGja

#NationalDiabetesWeek
#NDW24
#UniteForTech

[Alison Robinson @alison_t1d]

@RenzaS Way less hypos 🙌

[Alison Robinson @alison_t1d]

Dexcom alerts drove me up the wall yesterday. I just checked my pump history and I had 23 different alerts. 23! And most of them also alerted on my phone app too, so probably more like >40. 😰 #diabetes #CGM #tired

[Diabetes Australia @DiabetesAus]

Right now in Australia, access to diabetes technology isn’t fair and equitable. We’re continuing the national conversation to generate real solutions to this real problem. We’d love you to have your say about pumps and share your story via Spark Change: https://t.co/j2LZxSxhNl

[ACBRD #EndDiabetesStigma @ACBRD]

📢Research opportunity! It's not too late to take part in #HypoPAST - our fully online program aimed at reducing worries about #hypoglycaemia in adults with #T1D. Learn more about the study here: https://t.co/qhjW1Ww9kd

[Alison Robinson @alison_t1d]

@canadianphil @dexcom How frustrating. Sounds like a bad run of sensors for you.

[Alison Robinson @alison_t1d]

Getting a bit tired of the @Dexcom Clarity app logging me out and not letting me log back in. Anyone else with this problem? #diabetes

[ACBRD #EndDiabetesStigma @ACBRD]

We support equitable access to treatment & technologies for all people with diabetes. Please join us in signing & sharing this T1D community driven petition calling  for affordable access to  Automated Insulin Delivery (AID) in Aus ➡️https://t.co/eR2BhNEjZE

[The Practical Diabetic (Leon Tribe) @PracticalDeeb]

Insulin pumps are now accepted as the gold standard for the management of type 1 diabetes. However, many Australian T1Ds cannot afford it. Let's change this and make pumps subsidised like other T1D essentials https://t.co/F8BXabnWjl

[Alison Robinson @alison_t1d]

This is not something I appreciate seeing at 10pm.

[Alison Robinson @alison_t1d]

The dexcom warmup period is the longest two hours of each week 🥲

[Alison Robinson @alison_t1d]

@RenzaS Just a whole lot of snacky foods at a fancy function. Like 4 types of crackers, 5 types of cheese, dips, quince paste, and lots of salami. Not having to count how much I eat of it all would be bliss.

[Alison Robinson @alison_t1d]

Great article!👇 So important to make community engagement genuine and meaningful, and not just a tick-the-box exercise. And some good tips in here for PWD getting involved in research and health care.

[ACBRD #EndDiabetesStigma @ACBRD]

How can #diabetes research & care embrace genuine community involvement? ACBRD's @HolmesTruscott alongside @HangryPancreas @RenzaS @PracticalDeeb @mrsgingerfox + others with lived & professional exp in diabetes have published a comment in @TheLancetEndo ⬇️ https://t.co/txV0KdJTMD

[Alison Robinson @alison_t1d]

If you live with type 1 diabetes and experience worry about hypos, this is a great research project to get involved in! ⬇️

[ACBRD #EndDiabetesStigma @ACBRD]

#ResearchOpportunity: Do you live #type1diabetes and worry about hypos? We’re looking for people to take part in #HypoPAST – a new online program aiming to reduce worries about hypos, and teach skills to prevent severe hypos. Find out more at our website: https://t.co/zTUUPPomeU

[Alison Robinson @alison_t1d]

@KatSDC So relatable! And then when you actually eat the dinner, you’re not hungry anymore 😭

[The Lancet Diabetes & Endocrinology @TheLancetEndo]

Bringing an end to #diabetes #stigma and discrimination: an international consensus statement on evidence and recommendations https://t.co/BjqbZVWtgV
#FREE to read with registration (also FREE)

[Alison Robinson @alison_t1d]

Well, that's just my two cents. For now, I'm going back to my t:slim but I may keep trialling the Omnipod if I feel like I need another tube holiday. I hope this has been helpful somehow, and I'd love to hear any others' thoughts on the Omnipod too! (13/13)

[Alison Robinson @alison_t1d]

Hi #type1diabetes #DOC, after trying out the Omnipod DASH for a month, I wanted to jot down some of my thoughts for anyone thinking about getting one. FYI I usually use a t:slim with Dexcom G6 on Control IQ. I have no affiliation with Tandem, Dexcom or Omnipod. (1/13)

[Alison Robinson @alison_t1d]

The last thing to say about the PDM is that even though life without tubes is great, with the Omnipod you still have to carry around the PDM or remember where you've put it, and stay within a close distance. It's like having to keep track of two phones all the time. (12/13)