We’re thrilled to celebrate the recent graduates of our 2025 Virtual CRLI! This incredible group participated in a two-day program dedicated to advancing ALS research and making a lasting impact.
Congratulations to the newest class of ALS Research Ambassadors! 🎓
Are you looking for up-to-date information about ALS? Check out our website to view all of our informational guides.
Learn more: https://t.co/uFxXRYWjEs
Tomorrow! Gain insights on self-advocacy and effective communication with your ALS care team. You'll learn strategies to make your voice heard and ensure your needs are met, fostering a team-based approach to care. @ComCareALS
https://t.co/Y5PJd1uyqq
Exciting News! Registration is now open for the Les Turner Symposium on ALS!
Join us as we gather leading experts, researchers, and advocates to discuss the latest advancements in ALS research. https://t.co/v9TxdcOpyH
#ALSResearch
Join us for the NEALS NICE Webinar on Biomarkers in ALS with experts James Berry, MD, MPH, and Bob Bowser, PhD. Moderated by Kelly Graham Gwathmey, MD.
🗓️ Register Now: https://t.co/QFIn30RRvi
📢We Need Your Help!📢
We're eager to hear your thoughts on the content you'd like to see. Fill in our short survey to help us tailor our content to better serve the #MND community🔬
It only takes about 10 minutes and your feedback is invaluable! ☑
https://t.co/YTf4wBuozu
Please join us for our monthly Platform Trial update, this Thursday 8/22 at 5 pm EST. This week, we will be joined by guest speakers Dr. Xiaowei (Bill) Su from Penn State Hershey and Dr. Michael Robinson to discuss ALS drug development.
Register: https://t.co/O1tLYlosei
Register for a great event where two prestigious authors will discuss a landmark paper on ALS Biomarkers with a great group of panelists, including ETL's own Jean Swidler. https://t.co/ldaMpy9MNQ
What is a motor neurone?
How are they damaged in motor neurone disease?
Our new Back to Basics blog series covers these questions and more to help build a foundation of knowledge about #MND#ALS research. 🔬🧬
Learn more today: https://t.co/48LPxQj2Gb
I am so proud of our team and all of their hard work. I’m also incredibly grateful to the @ALSHF for giving our crazy crew a welcoming home and the support we need to move mountains!!
See y’all in Montreal!
Discover how to advocate for yourself and effectively communicate with your ALS care team. Presented by Dr. Ambereen Mehta and Dr. Suzana Makowski, two experts in ALS palliative care.
Don't miss out!
@ComCareALS
https://t.co/OuLu84sPfN
Join us on 8/27 at 4pm EST for the 1st of two webinars on #ALSBiomarkers in our 2nd series of our #ALS Pub Review Series, which aims to connect the authors of important ALS research publications w/the ALS community. Free Reg: https://t.co/NnMRpkJqnx #ENDALS
📢 Deadline approaching! 📢
If you are planning on applying to be a Symposium Communications Ambassador, you only have until Friday!
Elevate your #sciencecommunication skills and help share the latest #MND#ALS research. 🔬🧑🔬
Apply today: https://t.co/CK3uDRL2DA
#alsmndsymp
The NEALS Community Education Webinars are just a click away! Check out the schedule of upcoming webinars ➡️: https://t.co/fOR2R3vBoF Missed a webinar? Recordings of past webinars are available in the NEALS webinar library on our website! #ALS#ALSeducation#ALSawareness
@ScienceMat29751@als_now@Humbl4now@kemenkhaus@KRob8753 Seriously, folks - this conversation has absolutely no basis so I am going to step out. Unclear of the exact origin or reason, but it's just noise. Parties/spouses - all that. Not true. If you have specific ?s DM me and I will help uncover answers. Let's focus on the real issues.
@als_now@Humbl4now@kemenkhaus@ScienceMat29751@KRob8753 I am happy to help you set up any meetings with leaders from any organizations you would like to speak with. Just DM me. No clarification or denials to what? I have seen some random accusations w/o any evidence? It just isn't a thing, Mike.
@Humbl4now@als_now@kemenkhaus@ScienceMat29751@KRob8753 One clarification - there ARE some organizations who do help people living with ALS cover the cost of thier caregiver to travel with them to a conference, and that absolutely could be their spouse. And PLWALS and their caregivers do not pay conf fees inperson or online.