NEALS Consortium

The NEALS Consortium is an international, independent, non-profit group of researchers who collaboratively conduct clinical research in ALS

[NEALS Consortium @NEALSConsortium]

At The NEALS workshop on Advancing ALS Clinical Trial Workshop in Boston today: a powerful panel led by Michael Robinson on Measuring Meaningful Change with ALSFRS-R and ROADS. Important conversation on defining real impact for people living with ALS. #ALS #ClinicalTrials #NEALS

[EverythingALS @everything_als]

Join us on February 18 for the first episode of HopeUntangled! Register➡️https://t.co/RmNwXiE7Tv

ALSUntangled: https://t.co/hYHoZNdNra
ALS Hope Foundation: https://t.co/wK2owbiEr9

#ALS #ALSResearch #ALSCommunity #LivingWithALS #ALSReversals #DrBedlack

[MGH Neurology @MGHNeurology]

Please join us on Thursday, 3/12, at 5:00 pm ET for an expanded access discussion on the CNM-Au8 EAP featuring Jinsy Andrews, MD, MSc of NYU Langone Health and representatives from Clene Nanomedicine.

Register:
https://t.co/uL7mj68R5G

#ALSResearch #HealeyHope

[MGH Neurology @MGHNeurology]

The Sean M. Healey & AMG Center for ALS has contracted with Keros Therapeutics, Inc. to design a new Healey ALS MyMatch trial evaluating rinvatercept (KER-065).

Read the press release: https://t.co/D1cnx7de2f

#ALSResearch #ALSMyMatch

[WashU Medicine Neurology @WashUNeurology]

In a groundbreaking new study, Tim Miller, MD, PhD, Robert Bucelli, MD, PhD, and colleagues noted that long-term use of tofersen, an FDA-approved drug for genetic ALS, can delay symptom progression and improve mobility in some patients. Learn more: https://t.co/QBe44BLqDj

[WashU Medicine @washumedicine]

🔗: https://t.co/AoLZJ4u0Xj Historically, ALS has been defined by a relentless decline. New findings from WashU Medicine offer a different story — a revolutionary drug that slows and may even reverse the progression of symptoms for a rare form of this deadly disease.

[NeurologyLive® @neurology_live]

🧠 What’s new in ALS research? We asked the @NEALSConsortium 2025 co-chairs!

In this podcast ep, Drs. Jinsy Andrews and James Berry dive into the most talked-about science and trials from this year’s meeting:
🔹 Platform trials driving faster drug evaluation
🔹 MY-MATCH and precision enrollment models
🔹 Gene therapy approaches targeting sporadic ALS
🔹 Expanded access and data harmonization through Act for ALS

💡 A must-listen for clinicians following the ALS treatment landscape.
https://t.co/B75fHwQSZF

[MGH Neurology @MGHNeurology]

Please join us on Thursday, November 20th, at 5:00 pm ET for a brief presentation and Q&A session on the HEALEY ALS Platform Trial featuring @PaganoniMDPhD of Mass General Hospital. #ALSResearch #HealeyHope

Register: https://t.co/uL7mj68R5G

[MGH Neurology @MGHNeurology]

At the @NEALSConsortium Annual Meeting last week, the @SpasticParapleg Foundation presented the UMN Achievement Awards, recognizing progress in research for hereditary spastic paraplegia and primary lateral sclerosis. Congratulations to the awardees!

#HSPandPLS #NEALSMtg

[ALS Network @youralsnetwork]

Collaboration fuels progress. Last week, @youralsnetwork joined partners, researchers, clinicians, industry leaders, and a host of ALS community superheroes at the @NEALSConsortium Annual Meeting - exploring the latest breakthroughs in ALS research and care. Let’s cure ALS together!

[NEALS Consortium @NEALSConsortium]

What a week!

Thank you to everyone — in person and online — who made the Annual NEALS Meeting unforgettable.
Here’s to another 30 years of collaboration and discovery!
#NEALS2025 #ALSResearch #CollaborationInAction

[NEALS Consortium @NEALSConsortium]

It’s incredible to see how much the NEALS Annual Meeting has grown! Each year the room gets bigger, the conversations richer, and collaboration stronger!

Dinner, generously sponsored by @alsassociation was a perfect reminder of how far we’ve come together.
Thank you! #NEALS2025

[NEALS Consortium @NEALSConsortium]

🧬 Harnessing Genetics to Understand and Treat ALS
Claire Clelland, MD, PhD (University of California, San Francisco) shares cutting-edge advances in gene therapy and CRISPR approaches shaping the future of ALS treatment.
#NEALS2025 #ALSResearch

[NEALS Consortium @NEALSConsortium]

Day 3 kicks off with Uniting for Impact: Updates from the NEALS ALS Organizations Forum.
Collaboration across advocacy and research in action.
#NEALS2025 #ALSCommunity @alsassociation @iamalsorg @alsunitedorg

[NEALS Consortium @NEALSConsortium]

NEALS ANNUAL MEETING DAY 2!

2:15 PM – 🔥🔥Hot Topic Session: Gene Therapies 🧬

Don’t miss today’s Hot Topic Session on Gene Therapies — Drs. Glass, Brown, Ahrens-Nicklas & Crooke discuss the future of ALS treatment.

#NEALS2025 #ALSResearch

[NEALS Consortium @NEALSConsortium]

The Scientific Symposium is underway at the NEALS Annual Meeting — Dr. Jeffrey Rothstein (Johns Hopkins) introduces Project Genesis.
#NEALS2025 #ALSResearch

[NEALS Consortium @NEALSConsortium]

🎉 Welcome Back to Day 2!

💡Exciting sessions ahead on clinical trials, innovative care, and the inspiring people shaping the future of ALS research.
🔬 Scientific Symposium: Innovative Approaches and Future Directions for Treating Sporadic ALS starts at 10:20 AM!#NEALS2025

[NEALS Consortium @NEALSConsortium]

Happening Now! Research Ambassador Panel-

[NEALS Consortium @NEALSConsortium]

🦸‍♂️🦸‍♀️Day 2 Highlight: Research Ambassador Panel!

Join us for this inspiring session (8:30am)-
Partners in Discovery — Research Ambassadors Driving Change.
Dr. Bedlack and the RA's share how lived experience is shaping the future of ALS research.
#NEALS2025 https://t.co/EIsTeHCtxd

[NEALS Consortium @NEALSConsortium]

🦸‍♂️🦸‍♀️Day 2 Highlight: Research Ambassador Panel!

Join us for this inspiring session (8:30am)-
Partners in Discovery — Research Ambassadors Driving Change.
Dr. Bedlack and the RA's share how lived experience is shaping the future of ALS research.
#NEALS2025 https://t.co/EIsTeHCtxd

[MGH Neurology @MGHNeurology]

It's the 2nd day of the @NEALSConsortium Meeting! At 7:15am, Drs. Babu and @PaganoniMDPhD will present, “Learnings from EAPs in ALS” and at 3:20pm, Drs. Chibnik, Macklin, and Quintana will present, “Stats Corner: Small Trials, Big Decisions in Early Phase ALS Research” #NEALSMtg