Angela McBride - Alpha-1 Foundation

Building Friends For A cure

[Alpha-1 Foundation @AlphaFriend]

Dr. Kohli will present “Alpha-1 Pediatric Liver 101” at the 2026 A1F National Conference #A1FNC26, offering valuable insight into pediatric liver disease and its impact on children with Alpha-1. Virtual registration is still available, allowing attendees to learn from leading experts and stay connected with the Alpha-1 community from anywhere. Register today: https://t.co/T4K7PeNqpc

[Alpha-1 Foundation @AlphaFriend]

Today, we pause to remember those who gave their lives in service to our nation. We honor their courage and recognize the legacy they leave behind. 🇺🇲 #MemorialDay

[Alpha-1 Foundation @AlphaFriend]

Getting the right care starts with seeing a doctor who truly understands Alpha-1. Use our "Find an Alpha-1 Specialist" tool to connect with an experienced Alpha-1 healthcare provider near you: https://t.co/H9NkD20AMA

[Alpha-1 Foundation @AlphaFriend]

A1F kicked off the 2026 "Ice Cream for Alpha-1" Building Friends for a Cure (BFC) fundraising campaign at the 29th GLS Workshop! Attendees enjoyed a sweet treat and learned more about this fun, interactive nationwide event that raises awareness and funds toward a cure for Alpha-1. Learn more about hosting your very own Ice Cream for Alpha-1 event here: https://t.co/VxLAUMxM2E

[Darrell Kotton @Kottond]

Congrats to Dr. Andrew Wilson's Lab and MD/PhD student/first author, Carly Merritt on their new paper: "AT2-intrinsic Z-AAT expression drives conserved inflammatory and proteotoxic stress responses and predisposes to emphysema" https://t.co/JUsqoZ7ij5

[Darrell Kotton @Kottond]

Great to be at the Mass Thoracic Society 2026 ⁦@MassThoracic⁩ annual meeting where MTS President Finn Hawkins is now kicking off the day!

[Darrell Kotton @Kottond]

Base editing in vivo is here! so exciting! Beam Therapeutics Announces Update on BEAM-302 for alpha-1 antitrypsin deficiency .https://t.co/kkHZXfFM4A

[Alpha-1 Foundation @AlphaFriend]

Take a deeper look at liver care and transplant options at the NY/NJ A1F Education Day on April 11th. Dr. Hawksworth will present "Liver Transplant Surgery," helping the Alpha-1 community better understand what to expect and how to navigate this important aspect of care. Attend in person or virtually by registering here: https://t.co/kyItxekqD6

[Camille Nelson Kotton @KottonNelson]

Excellent Science, hopefully the way of the future (maybe as bridge to Liver Transplant)

[Alpha-1 Foundation @AlphaFriend]

From research to advocacy, the Alpha-1 Global Meeting in Argentina showcased the power of global collaboration in improving outcomes for people living with Alpha-1. Read more here: https://t.co/j01aevEsvY

[Alpha-1 Foundation @AlphaFriend]

Wishing our Alpha-1 community a happy and healthy New Year! Thank you for your continued support as we move forward together with hope, progress, and purpose. ✨

[Alpha-1 Foundation @AlphaFriend]

A new year means new opportunities. See what the A1F staff is most looking forward to in 2026! https://t.co/IPUA6mn4U0

[Alpha-1 Foundation @AlphaFriend]

What’s new in Alpha-1 research? Find out in Charleston, SC, on December 6th during the A1F Education Day with Dr. Strange as he presents the latest advancements in Alpha-1 research and care. Register today: https://t.co/DeoC8dmtdf

[Alpha-1 Foundation @AlphaFriend]

The Alphas of the Ozarks Support Group in Branson, MO, recently gathered to share experiences, build community, and learn together. Support groups like this are at the heart of the Alpha-1 Foundation’s mission, offering connection, education, and encouragement to those affected by Alpha-1. Looking to connect with others in your area? Find an A1F Support Group near you: https://t.co/LBua1HYK2W

[Camille Nelson Kotton @KottonNelson]

Highlighting this important work done by the National center for immunization and respiratory diseases at the CDC; for children born 1994–2023 routine childhood vaccinations would save $540 billion direct costs & $2.7 trillion in societal costs https://t.co/FZNGcz5qhB

[Darrell Kotton @Kottond]

An amazing clinical triumph for regenerative medicine! A great example of how federal funding results in patient cures. Let’s keep these stories going, America! “World's First Patient Treated with Personalized CRISPR Therapy” #helpisontheway! https://t.co/VRnXXEHEGE

[CReM @CReM_Boston]

🎉 Pulmonologist Darrell Kotton is BU’s Innovator of the Year:
https://t.co/nF0k3ppGkP

[Alpha-1 Foundation @AlphaFriend]

To our Alpha-1 Research Registry and Clinical Trial volunteers, your involvement drives critical breakthroughs and brings hope to the Alpha-1 community. We’re so thankful for your contributions toward a future with better outcomes. #ThankYouVolunteers

[Camille Nelson Kotton @KottonNelson]

Happy to share our patient-oriented quarterly MGH transplant webinar. We cover a lot of topics, including measles, organ allocation, and many audience questions. https://t.co/IFawDe7yzj

[Alpha-1 Foundation @AlphaFriend]

Alpha-1 doesn’t just affect the lungs, it can impact the liver, too. On #WorldLiverDay, we’re shining a light on Alpha-1 liver disease and the importance of early diagnosis and support. To learn more about Alpha-1 and the liver, visit: https://t.co/URpegVwAcH #Alpha1Awareness