ALS4 Friends & Family

Our mission is to connect ALS4 patients & their loved ones to others facing similar challenges. Together we are stronger than apart. 100% volunteer managed.

[ALS4 Friends & Family @ALS4ward]

@GrouponHelpUS - I made a purchase as a guest today., but sadly had a typo in my email address. I used Apple Pay, so an account was created with my correct email and the payment was applied. However, bc I had a typo in my delivery address no coupon was received. Help

[ALS4 Friends & Family @ALS4ward]

ALS4, the same and different. SETX

[I AM ALS @iamalsorg]

How awesome would it be if cures for terminal illnesses like ALS fell from trees? Pretty awesome.

Since they don't, today, we've got a simple ask: watch this video. Share it with a friend.

Help #EndALS. It starts with you.

[ALS4 Friends & Family @ALS4ward]

Well done 🙌

[Rock Out ALS @RockOutALS]

We love this! Thank you @orangetheory for raising $10 million for @ALSTDI! Amazing. 👏👏https://t.co/amSUpKr03U #endals #amazing

[ALS4 Friends & Family @ALS4ward]

Thank you @BarackObama @bsw5020 @iamalsorg

[The Obama Foundation @ObamaFoundation]

Brian and Sandra met and fell in love on @BarackObama’s 2008 campaign trail. Now, after Brian was given a life-threatening diagnosis, they’re starting a movement to stop a disease with no known cure.

This ALS Awareness Month, meet the courageous founders of @iamalsorg.

[The ALS Association @alsassociation]

This weekend heralds the beginning of summer – a time for family barbecues, friendly get-togethers…and pies! Take the pie #InYourFaceALS challenge and get people talking about ALS. #ChallengeMe

[Muscular Dystrophy Association @MDAorg]

#ClinicalTrials help make new treatments possible. To find the one that’s right for #MuscularDystrophy, ALS and related neuromuscular diseases visit https://t.co/WEA6WCGInv #CTD2019

[The ALS Association @alsassociation]

Making meals, mowing the lawn, & walking the dog take a back seat when caring for a family member w/ #ALS. ALS Care Connection - now w/ a new mobile app - lets people see a family’s needs & sign up to help. Learn more: https://t.co/YkBLzOthuK #MND #ALSCare #OurALSCommunity

[ALS4 Friends & Family @ALS4ward]

Do You Know ALS? Read About the Latest Research. https://t.co/FpyaScAW5A Very interesting!

[I AM ALS @iamalsorg]

Question: Is ALS rare?

#TalkALSToMe

[ALS4 Friends & Family @ALS4ward]

Hopeful news to start the weekend🙌Breakthroughs that may beat ALS [Opinion] https://t.co/Q1Yd1R4COT via @houstonchron

[The ALS Association @alsassociation]

Every 90 minutes, someone is diagnosed with #ALS & someone passes away from ALS. And 5,000+ people are diagnosed each year. Greater #ALSAwareness & more #ALSResearch are needed. Won't you help by retweeting or making a donation? https://t.co/bRMvRJ5raR

[Muscular Dystrophy Association @MDAorg]

What’s new in treatments for #MuscularDystrophy, #ALS and spinal muscular atrophy? Experts and advocates share insights this week. Follow #MDAConference for more. https://t.co/XKOcKrewjJ

[Joshua Cohen @JoshuaBCohen1]

Excited to see new advances at #MDAConference this upcoming week. #EndALS #ALS

[The ALS Association @alsassociation]

WEBINAR - "Home Modification for People Living With ALS": On 4/29 at 2PM ET, Alisa Brownlee, an assistive technology professional, will discuss home modifications to help w/ mobility & daily living. Register here: https://t.co/XGZKsfsArU. #MND #ALSCare

[The ALS Association @alsassociation]

Last year, 500+ advocates, including 90 people w/ #ALS, completed 400+ congressional visits during the National #ALSAdvocacy Conference. (We've seen legislative victories because of those conversations.) Register here to join us this year - June 9-11: https://t.co/HJTTkaQR1C.

[ALS4 Friends & Family @ALS4ward]

@alsadvocacy @Mattison_MA Curious if ALS4, which is known to run in families, would be helpful. We have a well-documented genealogy.

[I AM ALS @iamalsorg]

The data of 1,000 patients, all in one place. If you know an #ALS clinician or researcher make sure they know about and use this site. @answerals - thank you for building this AND for making it public.

[ALS4 Friends & Family @ALS4ward]

Interesting story, Judge William J. Boyle, battling ALS, heartened by state's plans to test air quality at Springfield courthouse https://t.co/rXa5eqzUfS

[ALS4 Friends & Family @ALS4ward]

Bottom-line, never stop being your own advocate.

[ALS Advocacy @alsadvocacy]

What a well-oiled machine the fight against ALS is.
An ALS org is paid to tell us that its registry is different from the CDC registry. Here a registry, there a registry, everywhere a registry.

[Satya Nadella @satyanadella]

We have an enormous opportunity to apply advances in cloud & AI to provide more personal, affordable and accessible care.