ALS Action Canada

We're Canada's first and only ALS patient-led nonprofit organization fighting to #EndALS forever. Join us!
Charitable organization BN: 791367204 RR 0001

[ALS Action Canada @ALSAction]

Join our Facebook Support Group here: https://t.co/rDvSXRGVcn

[ALS Action Canada @ALSAction]

September’s ALS event united MP Peter Fragiskatos, NHL icons, and federal leaders to advance care, research, and advocacy. Momentum is building—follow for updates! #ALSAdvocacy

[ALS Action Canada @ALSAction]

This holiday season, we’re filled with gratitude for the incredible support from our community in the fight against ALS. Wishing you and your loved ones a Merry Christmas and a joyful holiday season filled with love, hope, and peace. 🎄❄️

#MerryChristmas #TogetherForALS #ALSActionCanada

[Mark Kirton @KirtSpeaksALS]

An incredible collaborative effort = an amazing result!
If you missed the live event yesterday, please view the recording for the next couple of weeks at https://t.co/zdEEobRvmi @DevinCuddy @JimCuddy @FriedgeHNIC @DougMaclean @tsnjamesduthie @PR_NHL @NHLAlumni
#NHL #EndALS

[ALS Action Canada @ALSAction]

🏒 In September on Parliament Hill, NHL Alumni Mark Kirton shared his powerful fight against ALS, joined by friends, family, and hockey legends like Wayne Gretzky and Darryl Sittler. In an emotional moment, Gretzky called Kirton a "hero," reflecting on their longtime friendship and Kirton’s relentless advocacy for ALS awareness and funding. Sittler echoed the sentiment, likening Kirton’s resilience to Terry Fox, acknowledging his drive to make a difference. 🏒

With support from hockey-world figures like Brendan Shanahan, Dave Poulin, and more, Kirton’s ALS Super Fund has raised over $1M in just nine months—proof that change is possible with community and collaboration.

Read the full story here: https://t.co/FyYVu4t9Mr

Join us on December 5, 2024, for Courage to Fight: Together We End ALS — a free virtual event dedicated to raising awareness and supporting ALS research. Stand with Mark and advocates around the world as we fight for a cure. Let’s end ALS together! #EndALS

[ALS Action Canada @ALSAction]

This Remembrance Day, we honour those who served and sacrificed in defense of freedom — and we extend our remembrance to all who’ve faced battles closer to home, especially those lost to ALS. At ALS Canada and The ALS Super Fund, we remember the courage and resilience of those impacted by ALS, who, like the heroes we honour today, have faced their own profound challenges with dignity and determination.

In their memory, we carry forward the commitment to fund ALS research, support affected families, and continue the journey toward a cure. Today, we remember all who have shown us the strength of the human spirit. Tomorrow, we renew our promise to fight ALS with the same courage they embodied.

#RemembranceDay #EndALS

[ALS Action Canada @ALSAction]

"Mark, your generosity and kindness brought my husband Paul great comfort. I'll never forget the love you showed him. Forever grateful." 💙

Thank you, Vivian, for your incredible strength and love for Paul. Your support and courage continue to inspire us all as we stand together in the fight against ALS.

Messages like these remind us that, in times of struggle, we will always care for each other.

Let’s all continue supporting the fight against ALS by donating to the ALS Action Canada Super Fund—every bit helps families facing this battle. #ALSAwareness #ALSSuperFund

[ALS Action Canada @ALSAction]

🎥 In case you missed it! Dr. Erik Pioro and @KevinMoorhead joined Global B.C. Weekend News this morning to talk about the amazing work behind the ALS Super Fund and PROJECT HOPE.

Watch the story here: https://t.co/PDJl3dPO9V

[ALS Action Canada @ALSAction]

Huge thanks to Health Canada, the Canadian Drug Agency, and MPs we met today: Daniel MacDonald, Suzanne McGurn, Yasir Naqvi, Francis Drouin, and Judy Sgro. Our pALS shared their therapy access challenges.

Let’s keep pushing for funding and awareness so all Canadians can access the treatments they need!

#EndALS #ALSAwareness #ParliamentForALS

[ALS Action Canada @ALSAction]

A huge thank you to everyone who joined us at the ALS Advocacy Reception in Ottawa! 🎉

We had 145 attendees, including the Honourable Minister of Health Mark Holland and hockey legends Wayne Gretzky and Darryl Sittler. Special thanks to ALS Caucus Chair Peter Fragiskatos.

Together, with SLA Quebec, ALS Canada, and the Canadian ALS Alliance, we will keep building on this momentum to transform the ALS landscape in Canada!💙

#ParliamentForALS #ALSAwareness #EndALS

[ALS Action Canada @ALSAction]

A huge thank you to everyone who joined us at the ALS Advocacy Reception in Ottawa! 🎉

We had 145 attendees, including the Honourable Minister of Health Mark Holland and hockey legends Wayne Gretzky and Darryl Sittler. Special thanks to ALS Caucus Chair Peter Fragiskatos.

Together, with SLA Quebec, ALS Canada, and the Canadian ALS Alliance, we will keep building on this momentum to transform the ALS landscape in Canada!💙

#ParliamentForALS #ALSAwareness #EndALS

[NHL Alumni @NHLAlumni]

Yesterday, #NHLAlumni Mark Kirton spoke to Canada’s Parliament about his fight against ALS, as well as the importance of raising both awareness and funding to find a cure.

Joining him were @WayneGretzky, Darryl Sittler, Brendan Shanahan, Glenn Healy, Laurie Boschman, Colin Campbell, and countless other hockey and parliamentary supporters.

Stay tuned for the full story and how you can participate in Mark’s fight against ALS.

[NHL.com @NHLdotcom]

Gretzky leads NHL icons in support of ALS fund, 'hero' Kirton ⤵️
https://t.co/o7jnDxnOyY

[ALS Action Canada @ALSAction]

@BorsatoDarryl We are honored to have you Darryl.

[ALS Action Canada @ALSAction]

Thank you @KirtSpeaksALS for everything you have done, and continue to do, for ALS. 🙌🏼

[ALS Action Canada @ALSAction]

⏰ The countdown is on! The ALS Advocacy Day is just a few days away. Don’t miss out—follow us to keep up with the latest news! #ALSCanada #ENDALS

[ALS Action Canada @ALSAction]

Wondering what topics will be covered at our ALS Advocacy Day at Parliament Hill?

Here’s a sneak peak! 👀

Follow us on our social media to stay updated, see behind the scenes, and get more information on how you can help us against the fight to #EndALS! 🙌🏼

[ALS Action Canada @ALSAction]

⏰ The countdown is on! The ALS Advocacy Day is just a few days away. Don’t miss out—follow us to keep up with the latest news! #ALSCanada #ENDALS

[ALS Action Canada @ALSAction]

🚨 Breaking New Ground in ALS Treatment! 🚨

Our latest article dives into Tofersen, a revolutionary therapy targeting the SOD1 gene, offering new hope for ALS patients.

This is more than just a treatment—it's a step toward a future where genetic testing and personalized medicine could change the course of ALS.

Learn how this innovation could impact the future of ALS in Canada and beyond.

Dive into the full article here: https://t.co/e3Fkt9XW1E

#ALSResearch #Tofersen #GeneticTesting #ALSActionCanada #EndALS

[ALS Action Canada @ALSAction]

On behalf of our community, we extend our sincerest sympathies to the Jones and Senators family.

[Ottawa Senators @Senators]

We are saddened to learn of the passing of former Assistant Coach Bob Jones after his battle with ALS.

Our condolences to his wife Paige, children Blake and Brianna as well as all those he influenced across his nearly 30 year coaching career.

Nous sommes tristes d’apprendre le décès de l’ancien entraîneur adjoint Bob Jones au terme d’un combat contre la SLA.

Nos condoléances à sa femme Paige, à leurs enfants Blake et Brianna et à tous ceux qu’il a influencé sur près de 30 ans de carrière comme entraîneur.