Alys Courtney

stage IV breast cancer, mum of very little boy, hope I don’t live to see brexit 🙄

[Alys Courtney @alyswanderland]

@samcunningham Thanks sam! Still 17000 on the silver membership waiting list 🤣🤣🤣, Hoping it won’t take my nephew another ten years of waiting!

[Alys Courtney @alyswanderland]

@abcdiagnosis Mine was 251 days after primary diagnosis 🤔

[Alys Courtney @alyswanderland]

@samcunningham Thanks sam. Your piece was sensitively written , I’m very grateful.

[Alys Courtney @alyswanderland]

@FVanessafox 🙁

[Alys Courtney @alyswanderland]

Can anyone share experience of carboplatin as a single use agent to treat lung and liver mets please? #secondarybreastcancer #bccww #bcsm #idontknowwhatthesehashtagsmean

[Alys Courtney @alyswanderland]

@JJ_locked Thanks jj. After round 2 I’m beginning to realise it creeps up behind you then smacks you over the head with a massive fucking shovel on days 3-4 x

[Alys Courtney @alyswanderland]

Still nothing ...

[Alys Courtney @alyswanderland]

@arsenal no reply?

[Alys Courtney @alyswanderland]

@JJ_locked Thanks. It didn’t happen. Was a bit optimistic four days after chemo 🙄 x

[Alys Courtney @alyswanderland]

@arsenal no reply?

[Alys Courtney @alyswanderland]

@Arsenal disappointed in this response to my email advising I am terminally ill with a life expectancy of <12 months. There is no recovery process for me. As a red member for over 10 years and a lifelong fan you should let me transfer my membership. I can prove my diagnosis!

[Alys Courtney @alyswanderland]

@JJ_locked Yep that’s what I was thinking... but as I’m currently sat in a&e having IV antibiotics it might not happen at all now . Bother 🙁

[Alys Courtney @alyswanderland]

@sarasiobhan @SashaInquest Standard blah from so many consultants I met at CTRs. Families and patients are troublemakers rejecting the services being offered... but the providers never seem to reflect on the reasons why.

[Alys Courtney @alyswanderland]

@JJ_locked Secondaries are different receptor status to primary. Only very weak hormone positive so tamoxifen stopped. No dietary advice about what to avoid. And I’m going on my hen night this weekend glamping on a working farm a week after chemo and just realised might be a bad idea 😫

[Alys Courtney @alyswanderland]

@Arsenal disappointed in this response to my email advising I am terminally ill with a life expectancy of <12 months. There is no recovery process for me. As a red member for over 10 years and a lifelong fan you should let me transfer my membership. I can prove my diagnosis!

[Alys Courtney @alyswanderland]

@HaaanInglis Incredible. Just donated, thanks for sharing his story x

[Alys Courtney @alyswanderland]

@JJ_locked So inconsistent! I found out about the grapefruit thing by accident too although doesn’t matter now I’ve stopped hormone treatment 🙁

[Alys Courtney @alyswanderland]

@JJ_locked I was never given any info before starting any one of my 3 lots of chemo but I’ve heard many people say they’ve been advised to follow a pregnancy style diet

[Alys Courtney @alyswanderland]

@tangleywood @RevRichardColes Same in Bangkok

[Alys Courtney @alyswanderland]

@MummysStar @PNDandMe Shit... chemo brain... I tweeted earlier and planned to get involved in the discussion then started reading my book and completely forgot 😫 #pndhour

[Alys Courtney @alyswanderland]

@BroadysGirl Damn! My mum loves it and wants it for my wedding.... if it was last years I spose it won’t be in the shops any more 🙁 it’s lovely

[Alys Courtney @alyswanderland]

@athleteonchemo I’ve been so freaking tired... that’s been the worst of it so far. Far worse than EC and tax last year. Crossing my fingers for your PET xxx