Amour Fund

Amour means ‘Resilient’ in Armenian and ‘Love’ in French. Our goal is to find a cure for Congenital Disorders of Glycosylation (#PMM2CDG), #CureCDG #RareDisease

[Artsakh / Nagorno-Karabakh Human Rights Ombudsman @ArtsakhOmbuds]

It is an act of #vandalism to target religious and cultural values. But it is normal for Azerbaijani side. #Azerbaijan deliberately shelled the Holy Savior Cathedral (Ghazanchetsots) in Shoushi.
#StopAzerbaijaniAggression #KarabakhNow

[Artsakh / Nagorno-Karabakh Human Rights Ombudsman @ArtsakhOmbuds]

#BREAKING!
The #Artsakh/#Karabakh #HumanRights #Ombudsman @Artak_Beglaryan delivered a call upon intl community on #Azerbaijan #WarCrimes with cruel proofs.
Being blind himself as a result of Az landmine explosion, he calls:
Stop Talking! Start Acting! #DontBeBlind!!!

[Artak Beglaryan | #StopArtsakhGenocide @Artak_Beglaryan]

My call upon the intl community on the #Azerbaijan war crimes against #Artsakh/#Karabakh civilian population with clear proofs.
#DontBeBlind!!! #HumanRights

[Artsakh / Nagorno-Karabakh Human Rights Ombudsman @ArtsakhOmbuds]

Human Rights Defender @Artak_Beglaryan published the first-phase results of the fact-finding mission that includes a thorough research of the assaults of #Azerbaijan\i armed forces towards the peaceful population of #Artsakh on September 27-30, 2020.

[Artsakh / Nagorno-Karabakh Human Rights Ombudsman @ArtsakhOmbuds]

Artsakh Ombudsman @Artak_Beglaryan calls on the international community to assess the actions of Azerbaijan, especially in the context of the COVID-19 epidemic, to take measures to neutralize threats to the life and safety of thousands of people of the Republic of Artsakh.

[Amour Fund @AmourFund]

Hello, just a friendly reminder to join us for the next PMM2-CDG Collaboration Meeting Tomorrow on August 18, 2020 at 8 AM (PST). Special Topic: COVID19 and CDG by Andrew C. Edmondson, MD, PhD

Event: https://t.co/z9RDPyIkc2

[Amour Fund @AmourFund]

AmourFund has started the a campaign to create a CDG Children's Book.

GoFundMe Campaign Link: https://t.co/6mnBSLbr2p

[Amour Fund @AmourFund]

Amour Fund is raising money for the CDG Children's Book on @GoFundMeCharity: https://t.co/cbpa05olZR

[Amour Fund @AmourFund]

PMM2 - CDG Collaboration Meeting on 8/15/19 @ 8AM (PST)

Mouse Model for PMM2-CDG by Dr. Andrew Edmondson, MD, PhD

Collaboration with researchers, advocates, and scientists who are advancing progress towards a cure for PMM2-CDG. #CureCDG

Join Online: https://t.co/IDGgegtntU

[Amour Fund @AmourFund]

I am attending https://t.co/vP4vtt9aHW

[Amour Fund @AmourFund]

This #rarediseaseday, help us achieve our dream of Developing a viable vouse model for PMM2-CDG by raising funds & awareness through the 2018 #CureCDG Contribute: https://t.co/2I05eczrQL

[Amour Fund @AmourFund]

Amour Fund is now registered with GuideStar with a Gold Seal of Transparency. https://t.co/hONxEsIVE4

[Amour Fund @AmourFund]

What we did together in 2017 - https://t.co/pqBHvOnMXv

[Amour Fund @AmourFund]

Amour Fund - https://t.co/6BIrxObuq1

[Amour Fund @AmourFund]

Today is Giving Tuesday and for TODAY ONLY if you give to Amour Fund on our Facebook page, Facebook will MATCH your donation. give today and double your gift to #cureCDG. with the Facebook Giving Tuesday Match program.
https://t.co/rtSUGrr4XV
Thank you for your generosity!

[Amour Fund @AmourFund]

Join us on Feb 23-25, 2018, Rare Disease Day Symposium & CDG Family Conference w/ @NGLY1org @SBPdiscovery @CDGCare! https://t.co/JAxBKkycds

[Amour Fund @AmourFund]

PMM2-CDG Collaboration Meetings w/ researchers, patient advocates, & scientists. #CureCDG
Third Thur. of every month at 8AM PST

[Amour Fund @AmourFund]

PUBLISHED: Clinical, laboratory & molecular findings & long-term follow-up data in 96 French patients with PMM2-CDG
https://t.co/ecZEUnkhA3

[Amour Fund @AmourFund]

Designing a Treatment for PMM2-CDG https://t.co/SAmc5m5wjR via @YouTube

[Amour Fund @AmourFund]

2017 NOLA CDG Parent, Patient and Physician Meeting Program. (Updated). Go to https://t.co/sHPkHFSXPI for… https://t.co/NSJjNXT4o0