Andrea Fernandez-Rodriguez, Msc

PhD Candidate in Epidemiology @ISPMBern
|Public Health researcher |Clinical Psychology specialist | Member @beatpcd

[Yin Ting Lam @YinTing_Lam]

For their extraordinary achievements in #PCD research @mgoutaki and Loretta Müller are this year's recipients of the prestigious Ewald Weibel prize for lung research in Switzerland 💪🎉 @ISPMBern @PCD_ispm @inselgruppe @beatpcd

[Nena Karavasiloglou, PhD, RD @Nena_epi]

Massive congratulations to @mgoutaki and Loretta Müller for receiving the Ewald Weibel #Award 2025 for Lung Research for their outstanding research on primary ciliary dyskinesia!

[BEAT-PCD (ERS CRC) @beatpcd]

The new PCD diagnostic guidelines emphasise the importance of genetic testing in confirming diagnosis.
In response, we compiled an up-to-date list of PCD-related genes, including ClinGen classifications — a key resource for clinicians and researchers. https://t.co/zgvCoREzua

[Nena Karavasiloglou, PhD, RD @Nena_epi]

In honor of PCD awareness month @mgoutaki and @LucyD28 chat about patient partnerships at @beatpcd webinar

#PCD2025

[Yin Ting Lam @YinTing_Lam]

We continue our #PCD expert talk series "epically". Look forward to an exciting update on EPIC-PCD!
Register here https://t.co/kDwcHnQZmV
@beatpcd @mgoutaki @VGkatzou @ISPMBern @PCD_ispm

[BEAT-PCD (ERS CRC) @beatpcd]

As we are wrapping up this year #ERSCongress, it is time to announce the start of the PCD Awareness month including a webinar with @LucyD28 & @mgoutaki on patients involvement in research https://t.co/RCX3AiNtEV

[Myrona Goutaki @mgoutaki]

Congratulations to @VGkatzou34998 for getting her first grant for a research visit to the ENT department at Le Kremlin-Bicetre at @APHP 🎉. Vasiliki's research focuses on upper airways disease in #primaryciliarydyskinesia and she will visit Prof Papon's clinic @beatpcd

[Myrona Goutaki @mgoutaki]

@LucyD28 On several research projects including Living with PCD, an international participatory study! Don't forget to register and spread the word https://t.co/kuxxSReZNo

[Myrona Goutaki @mgoutaki]

For PCD awareness month we organise a webinar about patient partnerships both for patients interested to be more involved in research and for researchers who want to learn how to develop such partnerships. @LucyD28 and I will discuss our experiences from working together 2/3

[Myrona Goutaki @mgoutaki]

Great to have a session on patient involvement in respiratory innovation today at the #ERSCongress @EuroRespSoc @EuropeanLung 👏
@beatpcd will continue our ongoing efforts to promote and undertake research meaningful and relevant for people with #primaryciliarydyskinesia 1/3

[Nena Karavasiloglou, PhD, RD @Nena_epi]

20 fantastic PCD related posters presented at the afternoon poster session of the #ERSCongress

Keep up the great work 💪🏻 everyone!
Pictured: @minee_yuksell , @bruna_rubbo

@beatpcd #PCD2025

[Yin Ting Lam @YinTing_Lam]

Patient involvements in PCD research. Register for the next events https://t.co/kDwcHnRxct

[PCD Foundation @PCDFoundation]

Announcing Our New Website for PCD Awareness Month! - https://t.co/tjD7hSJdtW

[Myrona Goutaki @mgoutaki]

Can we achieve asthma remission in children? Great talk by Refiloe Masekela at #ERSCongress #ERSCongress2025

[Myrona Goutaki @mgoutaki]

Our team really enjoyed the #ERSCongress! Cannot wait for Barcelona to present all the cool #primaryciliarydyskinesia things we are working on @beatpcd

[Myrona Goutaki @mgoutaki]

Such a good session today at #ERSCongress all dedicated to #primaryciliarydyskinesia research with many contributions from the @beatpcd network #ERSCongress2025 @mathieu_bottier @bruna_rubbo

[ISPM Bern @ISPMBern]

Ewald Weibel Award for Lung Research on rare disease primary ciliary dyskinesia – PD Dr Myrofora Goutaki (ISPM) and PD Dr Loretta Müller (University Children’s hospital) will receive the Ewald Weibel Award 2025 for their outstanding research...
https://t.co/dnx5PDz7JF

[Nena Karavasiloglou, PhD, RD @Nena_epi]

Congratulations @mgoutaki 🎉

[Mathieu Bottier, PhD @mathieu_bottier]

Happening now at #ERSCongress poster session PS-25! I’m presenting on boards 5, 6 & 15 — come by and check out our work 👋 @beatpcd

[European Lung Foundation @EuropeanLung]

💙Patient-centred sessions underway: exploring family caregiving, transition care, and holistic self-management for patients worldwide. #PatientCentred #LungHealth