Rupert is currently under @AlderHey, @GOSHCharity and Wrexham.
His care involves neurology, cardiology, intensive care, respiratory teams, physiotherapists, dieticians, speech and language therapists, community nurses and hospice support @rupertsrainbow
There is currently no cure for AHC, but research in Boston giving families like ours real hope 💜
Scientists are working on a cure linked to ATP1A3 mutations, including Rupert’s E815K variant.
That’s why we keep fighting for his future 🌈 @rupertsrainbow
We created @rupertsrainbow because we never want finances to stop Rupert accessing treatment and a cure when it becomes available 🌈
https://t.co/BcPwd0sj5Q
The support for Rupert has been incredible 🌈
Communities, schools, businesses & strangers have all come together for our little boy.
From fundraisers to landmarks lighting up worldwide, Rupert’s Rainbow has become something truly special @rupertsrainbow
I wish !! It’s actually a Micheal Kors Watch my late mum bought me and it cost her £185 of her hard earned money . It means more to me than any Rolex . Sorry you felt uncomfortable 💓
#WomensDay2022@WomeninFootball one of the best ways to break bias is to be visible. More women need to apply for sports analytics roles, in my experience of hiring very few do. If you want any advice on how to get into the industry as a woman I'm happy to help!
31 years ago today my little brother died when he was hit by a drunk driver. I share pictures of him every year because he did live, he was mega cute, he’s my brother & not a day goes by when I don’t think of him 💙 #brother#dontdrinkanddrive#NeverForget
This is my works van, it’s been stolen from Bishopton Community Centre car park, whoever has taken this please know, Muirshiel is a CHARITY, you’ve cost this CHARITY around £25,000 to replace the van, tools & equipment!!
This van is used to do home maintenance for over 65s!!
The Turf Butty van will be opening Xmas Eve to serve our suffering Cabbies free Breakfast & Hot drinks (simply call at the van)
Boxing day we will be opening to serve Wrexham's homeless a hot breakfast, Drinks & snacks.
Its been a tough year but we stick together! WXM..❤️❤️
Happy 60th to alan at the black lion in bersham @Wrexham such a shame you are not open but when lockdown is over everybody should support their local pub, the heart of the community #supportyourlocal