Anne Marie 💜

Early Childhood Lecturer. Long Covid Kids advocate. Clean Air campaigner. Long Covid '21. Opinions my own.
There ARE things we CAN and SHOULD be doing...

[Anne Marie 💜 @annesmithmcc]

🌟Excited to share a NEW Podcast & Clean Air Guide for schools & nurseries!🌟
This project is a collaboration between @LongCovidKids @TheVoiceOfEC
3 simple steps: Monitor, Filter, Ventilate
Start cleaning the air today! 👇
https://t.co/hBrCdPnxez
GUIDE:
https://t.co/HECU38g6ob

[Anne Marie 💜 @annesmithmcc]

@DuaneStorey Textbook post Covid issue. I had these for years after my 2021 infection. All day, every day and through the night 🥴

[Mr Ethical 🚩 @nw_nicholas]

This is excellent from Starmer, putting Farage in his place. #ChargeFarage

[Laura Miers @LauraMiers]

The problem with articles like the Wired one is LongCovid patients aren’t the intended audience. These articles aren’t meant for us. They are for our families, our doctors, our employers, & our elected officials, & they are used to harm us.

[Anne Marie 💜 @annesmithmcc]

I was such a huge Kylie Minogue fan when I was 7 years old.

After watching her Netflix documentary series, I am a bigger fan now than I was when I was 7.

What a absolutely fantastic person she is.

#KylieMinogue

[Anne Marie 💜 @annesmithmcc]

@ExNHSorthopod @benn_elisbenn @hannahspierMD Follow #teamclots and educate yourself on HELP apheresis; not a new treatment.
After only one session my feet were no longer bright red after a shower, my excruciating head pain had eased & I could tolerate standing for longer.
Lots of people have been helped.
What is your issue?

[Anne Marie 💜 @annesmithmcc]

@ExNHSorthopod @benn_elisbenn @hannahspierMD I was at a hospital, the Drs actually tested my blood (unlike in the UK) and they identified one of the things going wrong.
I’m eternally grateful to them.
I arrived in Germany in a wheelchair, I left able to stand and walk more.
You are a fool.

[Al Haddrell @ukhadds]

@CleanAir4KidsUK is changing the face of Bristol!

Well done Ruth! Looking forward to seeing the finished piece 😎

[Long Covid Advocacy 💙 @LongCovidAdvoc]

We have guest writer Dr Elke Hausmann examining the controversial Levinovitz WIRED article which has sparked significant concern for its portrayal of Long Covid, recovery narratives, and brain retraining approaches.

🎙️Audio available
https://t.co/p2Tpc5lq4j

[Anne Marie 💜 @annesmithmcc]

@hannahspierMD Or….you are wrong Hannah. 🤷🏻‍♀️

Is this not a possibility you are willing to consider?

[Anne Marie 💜 @annesmithmcc]

@AlanLevinovitz Misrepresenting someone's actions to suit your narrative?
Guessing you are just happy with any sort of attention.

[Anne Marie 💜 @annesmithmcc]

@Etanarachel These 'treatments' are all that IS on offer!

CBT, physio, OT, GET. They ARE all on offer. Have been since 2020!

If they worked, there wouldn't be hundreds of millions of sick ppl.

Why don't YOU do some research into what LC patients ARE being offered as 'treatments'?

[Anne Marie 💜 @annesmithmcc]

@AndrewG76201347 Happy for you 🫂

It’s such a mess isn’t it?

The way ppl with LC are treated is a disgrace.

[Anne Marie 💜 @annesmithmcc]

Does Adam not know that CBT & exercise therapy ARE ON OFFER to LC patients?

And, for the vast majority, don't work!

In 2021 I had CBT and physio. Useless.

Then I went to 🇩🇪 where it was found my D Dimer was 36x higher than normal-HELP apheresis got me out of the wheelchair.

[WIRED @WIRED]

Six years since the height of the pandemic, the scientific community remains baffled by long Covid. But there might finally be a way forward for long Covid treatment—if only you were allowed to talk about it.
https://t.co/RnANfTyNsT

[Megan Stevenson @MeganTStevenson]

@AlanLevinovitz If anything it seems like it could be a violation of journalistic standards to criticize someone’s actions in an identifiable way — “UVA Law professor with long COVID"— and not even reach out to them for comment.

[Anne Marie 💜 @annesmithmcc]

@AndrewG76201347 I cried when they showed me the results, I was SO happy that there was finally a test result showing there was something seriously wrong.
I’d had so many months of being told my tests were ‘fine’ whilst I’d lost the ability to move and think 🤯

[Justin McLachlan @justinmclachlan]

This is becoming a disaster for @WIRED

[Anne Marie 💜 @annesmithmcc]

@RBMD1982 Rachel. GET and CBT are on offer for LC patients. Have been since 2020.

Mind body approaches are the only thing on offer!!

If they worked, why are there so many ppl still sick?

[Anne Marie 💜 @annesmithmcc]

@WIRED This article is annoying for so many reasons.

But, to clarify, UK LC patients HAVE BEEN OFFERED GET, CBT, OT & PHYSIO SINCE AT LEAST 2021.

So, actually we are forced into talking about these 'treatments' a lot! We have to explain to medics that, for most, THEY DON'T WORK.
🤦‍♀️

[Long Covid Advocacy 💙 @LongCovidAdvoc]

1 of our deepest concerns about the Alan Levinovitz article in WIRED is the redirection of how the community's reaction is the problem

Medicine & those in authority for millennia have demanded a performative purity from patients (esp women).

And punished & blamed if lacking...