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aPSGA (Australia)
@apsga_org
The aHUS Patient Support Group Australia represents Australians living with, or caring for those with the ultra-rare, life-threatening blood disease, aHUS.
Joined June 2013
644
Following
203
Followers
1K
Posts
aPSGA (Australia)
@apsga_org
almost 10 years ago
Adelaide father-of-two calling for a fair shot at life https://t.co/H6jf3ylsO3
#risingaboveaHUS
#saveaHUSlives
aPSGA (Australia)
@apsga_org
almost 10 years ago
aHUS voices
@aHUSCanada
@aHUSUKvoice
@aHUSAlliance
#risingaboveaHUS
aPSGA (Australia)
@apsga_org
almost 10 years ago
aHUS voices
@aHUSCanada
@aHUSUKvoice
@aHUSAlliance
#risingaboveaHUS
aPSGA (Australia)
@apsga_org
almost 10 years ago
aHUS voices
@aHUSCanada
@aHUSUKvoice
@aHUSAlliance
#risingaboveaHUS
Who to follow
aHUS Alliance Action
@aHUSAllianceAct
aHUS Global Action to Connect * Inform * Collaborate
Atypical HUS India
@ahusindia
Providing support and information to Atypical Hemolytic Uremic Syndrome patients and family from India
ASHUA
@ashua_spain
Asociación Síndrome Hemolítico Urémico Atípico en España ... porque un rapido diagnostico con el tratamiento eficaz puede dar la vida. Utiliza #shua24sept
aPSGA (Australia)
@apsga_org
almost 10 years ago
aHUS voices
@aHUSCanada
@aHUSAlliance
@aHUSUKvoice
#risingaboveaHUS
aPSGA (Australia)
@apsga_org
almost 10 years ago
aHUS voices
@aHUSCanada
@aHUSUKvoice
@aHUSAlliance
aPSGA (Australia)
@apsga_org
almost 10 years ago
2day is aHUS awareness day! Throughout the day we will be sharing messages from some of our
@apsga_org
members. @aHUSUKvoice
@aHUSCanada
aPSGA (Australia)
@apsga_org
almost 10 years ago
“Life tied to a machine is not really a life"- Sarah Grant. https://t.co/kdlL9MOlEs
@sussanley
@Change
aPSGA (Australia)
@apsga_org
almost 10 years ago
#saveaHUSlives
aPSGA (Australia)
@apsga_org
almost 10 years ago
Bubbly 9 year old Chelsea was a picture of health until falling ill during a family holiday in 2015. https://t.co/SKZut1Ipp1
#saveaHUSlives
aPSGA (Australia)
@apsga_org
almost 10 years ago
Sign the petition 2 support Sarah Grant and others 2 plead w/ gov 2 make Soliris avail 4 aHUS patients on dialysis. https://t.co/NWy0ZiaNgL
aPSGA (Australia)
@apsga_org
almost 10 years ago
Australia aHUS patient, Sarah Grant, 29, continues to plead for access to Soliris in order to save her life https://t.co/i4xNXioDtj
aPSGA (Australia)
@apsga_org
almost 10 years ago
3 vocal choirs will become ‘500 voices’ in a community fundraising event set for Aug 28 at the QPAC concert hall. https://t.co/sZSpbFKNfr
aPSGA (Australia)
@apsga_org
about 10 years ago
#saveaHUSlives
aPSGA (Australia)
@apsga_org
about 10 years ago
I’m still extremely passionate about securing Soliris for every Australian who requires access to it. https://t.co/SO8xcaCRjq
aPSGA (Australia)
@apsga_org
about 10 years ago
:People's lives should always come before money" - May Ali https://t.co/1ZpTqiMANF
#saveaHUSlives
aPSGA (Australia)
@apsga_org
about 10 years ago
A legal case in the UK is working to save aHUS patient Abi's access to Soliris https://t.co/TSmd6daLCs
#saveaHUSlives
@aHUSAlliance
aPSGA (Australia)
@apsga_org
about 10 years ago
Have you ever wondered how eculizumab actually works? https://t.co/SwnMEUHC7K
#saveaHUSlives
aPSGA (Australia)
@apsga_org
about 10 years ago
Watch as the Global aHUS Survey results are discussed https://t.co/Jkr1IpPn7G
#saveaHUSlives
aPSGA (Australia)
@apsga_org
about 10 years ago
Amgen is trialling a biosiimilar therapy, developed to compete with eculizumab in Australia. https://t.co/aNbEemyfj1
#saveaHUSlives
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