Emily Craven

#MEcfs. Research, education, understanding critically needed. #spoonie #chronicillness #SevereME

[Emily Craven @artifactsofme]

#MillionsMissing #MECFS #MyalgicE Possibly the best overview of ME history I’ve seen. 20 minute video.

[Michael VanElzakker @MBVanElzakker]

My from-quarantine teletalk to the #CMRC2020 conference, describing some myalgic encephalomyelitis/chronic fatigue syndrome (#MEcfs) history, then recent research into cerebrovascular reactivity & enlarged perivascular spaces
https://t.co/LjOBovVr9c
Please excuse the raspy voice

[Emily Craven @artifactsofme]

@MBVanElzakker Thank you! I’ve just found this and not able to finish it yet, but so far it’s one of the best overviews I’ve ever seen.

[Emily Craven @artifactsofme]

#MillionsMissing

[Christina Baltais 💙🩵 @CBaltais]

And the Grief Flows

I created this makeup art for #MillionsMissing 2020. May 12th is the global (virtual) protest for myalgic encepalomyelitis health equality. I was inspired by the river of grief that runs through the ME/CFS community. #meawarenesshour #pwme #myalgicE #mecfs

[Jennifer Brea🦒 @jenbrea]

Please stop telling young people they should avoid #COVIDー19 infection to protect the old. Tell them to protect themselves.

Long-term symptoms 6+ mo post-infection:

EBV: 11%
Q fever: 11%
Ross River Virus: 11%
West Nile Virus: 31%
SARS: 87%
Ebola: 90%
COVID-19: We have no idea

[Emily Craven @artifactsofme]

I wrote a whole thing yesterday about this that is much less coherent. This is really good. #MillionsMissing #May12 #MECFS #MyalgicEncephalomyelitis #PwME #COVID19

[Joe Bradley @JoetheOT]

We’ve had a positive response from many people with experience of post-viral fatigue about the information we put out, and with input from patient groups we have made some small changes. Please share and use as needed.
https://t.co/2dXtKe0s7E

[Emily Craven @artifactsofme]

@JoetheOT I actually burned a bunch of spoons writing a much less articulate version of this. Thank you!

[Emily Craven @artifactsofme]

Hey all! Sorry to be absent so long. *this account not abandoned...* Cognitive and light difficulties. Sending love to you all this #May12 ❤️. Best wishes amongst #COVID19 let’s rock #MillionsMissing ! #MECFS #MyalgicEncephalomyelitis #PwME

[#MEAction Network UK @MEActNetUK]

I GOT A VIRUS, I DIDN’T DIE, BUT I NEVER RECOVERED.

As a growing number of experts warn of a rise in ME following the #COVID19 pandemic, the need for treatments that help, not harm, is ever stronger.

We are the #MillionsMissing & we need change now. A thread. #pwme

[Emily Craven @artifactsofme]

Same story here.

[#MEAction Network @MEActNet]

“Coronavirus leading to more cases of ME will happen for sure, unfortunately,” said Dr. Alain Moreau of Université de Montréal, Montréal, Québec. “We need to be ready for the next wave."

#MillionsMissing #COVID19 #PressRelease #MyalgicE #pwME

https://t.co/p9o8csAQtT

[Emily Craven @artifactsofme]

@TilmanAndris @themupsmuppet It is a lovely bookcase. Wow, I‘ve been dormant so long I didn’t think anyone knew that blog. :) thanks

[Tilman Andris @TilmanAndris]

Thanks @EmergeAus⁩ for creating #MEcfsChallenge

Best wishes from the Netherlands!

#pwME #MEcfs #MyalgicE #MillionsMissing

[#MEAction Network @MEActNet]

We are the #MillionsMissing & we speak out about the neglect of people with #MyalgicEncephalomyelitis (#ME) even when the #TruthHurts. For more information about #MillionsMissing & #MyalgicE visit https://t.co/egsWlNa7sl.

Check out this #remix #parody for Share Your Art Day!

[Emily Craven @artifactsofme]

Thread

[Jennifer Brea🦒 @jenbrea]

Hey guys. This #millionsmissing, as thousands of ME patients share their stories, please take one extra moment before you retweet, respond, or decide to follow. Is the account new or old? Do they have an established history in our community that starts before Feb 2020?

[Emily Craven @artifactsofme]

@DafoeWhitney ❤️ Simon and Garfunkel!

[Emily Craven @artifactsofme]

@MBVanElzakker @jenbrea @familyalbum @jeff_says_that @kathydeschenes @AudsChronically @OpenMedF I have 7 spinal MRIs spanning Nov 2014- Jan 2020. I’ll send them if you want them. The catch is that I now have MS. After being ill for 11 years I had a sudden onset of new neurological sx. I don’t believe my ME has always been MS for a # of reasons. Anyway thx for your work!

[Emily Craven @artifactsofme]

@daisy_court75 Awesome!

[Emily Craven @artifactsofme]

Lol. Perfect

[Daisy @daisy_court75]

Does anyone know the cure for ME? If so could you let me know? I'd love to, ya know, not have it anymore. Thanks 🎉