A.S.A.P. Be Informed

A.S.A.P.'s purpose is to advocate and educate in South Florida for those affected by Sickle Cell Disease or Trait as well as bring awareness to the community.

[A.S.A.P. Be Informed @asapbeinformed]

We have a support group for you and your family! Come check us out.

[A.S.A.P. Be Informed @asapbeinformed]

Join us!

[A.S.A.P. Be Informed @asapbeinformed]

Deadline is April 20th!

[A.S.A.P. Be Informed @asapbeinformed]

Victory

[A.S.A.P. Be Informed @asapbeinformed]

Thank you!!!!

[A.S.A.P. Be Informed @asapbeinformed]

🚨 SB 844 ADVANCES IN FLORIDA SENATE! 🚨

Thursday, February 12th, SB 844 the Sickle Cell Disease Care Management & Treatment Continuing Education bill PASSED the Senate Health & Human Services Committee!!

[A.S.A.P. Be Informed @asapbeinformed]

Shouting out another one of our incredible warriors, Anais Fernandez , for bravely delivering testimony on February 11th in support of HB 353 Sickle Cell Disease Care Management and Treatment Continuing Education Bill.

We love you, Anais and we are profoundly proud of you.

[FSCDR Foundation for Sickle Cell Disease Research @FundSickleCell]

The 20th Annual Sickle Cell Disease Research and Educational Symposium & The 49th National Sickle Cell Disease Scientific Meeting

Friday to Sunday, June 5-7, 2026 | Hybrid Event – Broward County Convention Center, Fort Lauderdale, FL

The Symposium brings together researchers, physicians, clinicians, healthcare providers, nurses, Sickle Cell Warriors, and the wider community to advance sickle cell disease research, treatment, and awareness.

Over the past two decades, this gathering has evolved from a regional meeting into a global movement, catalyzing collaborations that have led to clinical trial breakthroughs and improved quality of life for thousands of Sickle Cell Warriors. The 2026 Symposium promises to honor this legacy while propelling us into the next era of innovation.

This year marks a historic milestone: the 20th anniversary of the Symposium, celebrated under the inspiring theme “The Golden Age.” This theme reflects the unprecedented progress in sickle cell research and treatment we’re witnessing today, from gene therapies and improved standards of care to growing public awareness.

The 2026 event is a hybrid program, offering both in-person engagement in Fort Lauderdale, FL and virtual access worldwide.

Register Now
https://t.co/nrbzahiukY

#SickleCell #FSCDR #GoldenAge #2026Symposium #ViolaDavis #SickleCellWarriors

[A.S.A.P. Be Informed @asapbeinformed]

On February 11th HB 353: Sickle Cell Disease Care Management and Treatment Continuing Education Bill UNANIMOUSLY passed the House Health Professions & Programs Committee! Thank you to Representative Felicia Robinson for standing ten toes down.

#HB353 #SickleCell #HealthEquity

[A.S.A.P. Be Informed @asapbeinformed]

Senator Shevrin Jones, the Senate sponsor for SB 844 Sickle Cell Disease Care Management and Treatment Continuing Education Bill, shared the exciting news SB 844 UNANIMOUSLY PASSED the Senate Health Policy Committee on Feb 2nd!

💪🏾💜🙏🏾

#SickleCell #SupportHB353 #SupportSB844

[A.S.A.P. Be Informed @asapbeinformed]

February 2nd, 12‑year‑old ASAP Junior Advocate Shamar stood before the Senate Health Policy Committee and spoke his truth in support of SB 844, with courage far beyond his years. His voice carried strength, honesty, and hope for a better future for all sickle cell warriors.

[A.S.A.P. Be Informed @asapbeinformed]

Grateful to stand in testimony for SB 844 before the Senate Health Policy Committee. Centering lived experience, equity, and access in health care policy matters—and it made a difference. SB 844 passed unanimously. Onward. ✨🙏🏾❤

[A.S.A.P. Be Informed @asapbeinformed]

Faith Brunch Highlights