DrAnneMaitland

As medical director at the MUSC EDS Center, I want to elevate the care of patients with bendy bodies, education of those affected by the triad of EDS/POTS/MCAD

[DrAnneMaitland @askdoctoranne]

Sharing my 1st substack article: An Immune Crisis: from Mast Cell Activation Disease (MCAD) to Long CoVID
https://t.co/em2g1t28RJ

#LongCOVID
#MastCells
#MCAS
#MCAD
#EDS
#POTS
#GLC2026

[DrAnneMaitland @askdoctoranne]

By 2012, I started to meet more and more children and adults coping with a trifecta of illnesses - #POTS #MCAS #EDS.

There were no commercial tests to support my observations, besides physical signs, such as dermatographism, but I also had the patients' stories, knowing that the last thing most children and adults want to do is go from doctor to doctor. Then I came across the work of two NIAID clinician scientists, whose work was captured by #KateHorowitz, in this article - One Gene Mutation Links Three Mysterious, Debilitating Diseases https://t.co/U1ri5D33fW

[DrAnneMaitland @askdoctoranne]

when you see something-say something!

https://t.co/8F22FQHrQe

[围着北京上海广州深圳杭州武汉苏州西安南京长沙郑州天津���庆厦门外面旅行 @FeelYouHappy]

A woman drew a hopscotch grid in front of her shop and recorded the reactions of passersby. 🥺

[DrAnneMaitland @askdoctoranne]

Efforts by. Dr. Sharma at #MUSC have been very helpful for patients with #EDS and #GImotility

What I have learned about hEDS from patients, peers, and literature as a... https://t.co/lKIaKbWQ04 via @YouTube

[DrAnneMaitland @askdoctoranne]

Attended an inspiring gala that is elevating the care of complex disease triggered by lyme. The Tal Group is a shining a bright light on the diagnosis and therapeutic interventions of children and adults suffering in plain sight of our behomoth of healthcare industry.

#michaltal
#dysautonomia
#EDS
#mastcell
#Lymelight
#chroniclyme
#complexdisease
#talresearchgroup

[DrAnneMaitland @askdoctoranne]

Misdiagnoses Happen. Medical Gaslighting Should Not https://t.co/lKM8BMvFD6

[DrAnneMaitland @askdoctoranne]

September 2026 marks one year of opening of the MUSC EDS Center, and I am grateful for the hardwork by clinical staff, administrators, and most of all the patients and their families- working hard to create a medical home for complex diseases, requiring more than a 30 min new patient visit, another prescription or procedure. Coordinated, continuity care, informed by patients, patient scientists and clinicians https://t.co/Ow4RF3TTGe

[DrAnneMaitland @askdoctoranne]

#Lipedema really sits at the intersection of two areas that medicine has always been really slow to fund and slow to take seriously, and those are chronic disease and conditions that primarily impact women. = underdiagnosed, undertreated #POTS #MCAS #EDS https://t.co/dPA8lXBHhe

[DrAnneMaitland @askdoctoranne]

https://t.co/1p3tQdXcR2

[DrAnneMaitland @askdoctoranne]

University of Virginia recently had their 1st EDS Symposia, with Dr. Dacre Knight, the new chief medical officer of the EDS Society at the helm, along with Drs. Ina Stephens and Sarah Cohen Solomon
#TheBendyPedMD
@knidac

some thoughts on MCAS and MCAS care, https://t.co/n6l07NoJr7

[Dacre Knight, MD, MS, FACP @knidac]

We are hosting a PT/OT symposium in October in Charlottesville @UVaCME @UvaDOM, inviting all healthcare professionals and rehab specialists interested in learning more about EDS and HSD. In-person only. https://t.co/C7f6G4rovK

[DrAnneMaitland @askdoctoranne]

My recent conversation on Mast Cells to Microplastics with Dr. Linda Bluestein and cohost Dr. Dacre Knight (Ep 191) ♫ @iHeartRadio https://t.co/Uk4chGZU2a

[DrAnneMaitland @askdoctoranne]

https://t.co/Jiy3GfA2Fz

[DrAnneMaitland @askdoctoranne]

The 20-Year Shadow:
The great MCAS Diagnostic Kerfuffle
#factitiousdisorder
#functionaldisorder
#MCAS
#mastcell
#diagnosticdelay
#medicalgaslighting
#complexdisease
#MECFS
#neuroimmune

https://t.co/oUuy20RHdg

[The Washington Post @washingtonpost]

I told my lawyer dad that I was getting a science PhD, and he called me a “huge failure” who will never make real money. How do I make my parents proud?

Advice columnist Carolyn Hax weighs in.

Read more: https://t.co/VBNepmweq2

[Naomi Harvey “PhD Witch” #WearAMask @Naomi_D_Harvey]

I’m glad to see this work being done. It’s been known since the 90’s that oxygen uptake in muscles of pwME is impaired. Research on why this is has been woefully neglected and of course few people even knew about it 😞

[DrAnneMaitland @askdoctoranne]

Love the work from Dr. Stephen Galli:
"Mast cells and IgE are so inextricably linked to the pathology of allergic disorders, including fatal anaphylaxis, that it can be difficult to think of them in other context. Surely, we do not have mast cells (MCs) and IgE so that we can eat a peanut and die!
Am J Pathol 2016, 186: 212e224; https://t.co/l0bJRoIvwD)

#MastCells
#BeyondAllergy

[DrAnneMaitland @askdoctoranne]

@Naomi_D_Harvey Path to compromised blood flow to end organs - Perhaps, Mast Cell derived chemical mediators?!
#MastCells
#Plateletactivatingfactor
#Histamine
#Tryptase
Figure is from from MAST-CELL RESPONSES TO
PATHOGENS [email protected]. doi:10.1038/nri1460

[DrAnneMaitland @askdoctoranne]

Diminished blood flow in #LongCOVID, a hyperimmune state; yet little consideration of #mastcells contributing to the problem? MCs have factors that impact blood flow: #histamine, #Tryptase, #Chymase - cause vascular leakage; while PAF #plateletactivatingfactor can clog small blood vessels
#MCAS
#POTS
#EDS