Hot showers wreck POTS by stacking 3 triggers: heat opens your vessels, standing adds gravity, sweat drops your volume. The riskiest moment is stepping out.
https://t.co/QcHp0aXqTo
#POTS#DysautonomiaAwarenessMonth
POTS worst in the morning? Flat all night lowers your blood volume by dawn. Raise the head of your bed a few inches (not pillows):
https://t.co/Z9WpyuFSQ9
#POTS
October is Dysautonomia Awareness Month ๐๏ธ
Take an HRV reading in Autonomic on any 10 days in October = 10 giveaway entries.
๐ Apple Watch Series 12
๐ค Polar H10
Just your phone camera needed.
https://t.co/ofzN1dscnp
#DysautonomiaAwarenessMonth#POTS#Dysautonomia#Giveaway
Does vitamin D improve HRV? Mostly by fixing a real deficiency, not as a general booster. The test that matters is 25(OH)D, aim for the sufficient range not the highest number, and it's fat-soluble so more isn't better.
https://t.co/9uvjWhi1mt
#POTS#HRV
Chest pain is the scariest POTS/long COVID symptom, and in a young person with a normal heart it's usually non-cardiac: chest-wall, reflux, upper-chest breathing, a strained racing heart.
https://t.co/16FLmQfSpZ
#POTS#Dysautonomia
Lightheaded every time you stand, and worried it is vertigo? In POTS it is usually presyncope: your brain briefly getting less blood, which behaves very differently. How to tell the two apart, plus what helps in the moment:
https://t.co/YvdE4PLB6n
#POTS#Dysautonomia
@MECFSSD@EricTopol Agree. The issue is sampling. Most wearables take ~1 min of passive HRV and call it readiness. A seated 5 min reading with real beat to beat RR intervals is a different measurement. It's the distinction we built Autonomic around.
@LilyLaina@tinygreenbug It's crazy! A resting HR of 110 sits in your chart for years and nobody flags it. Bringing my own numbers, same time each morning, is what finally got mine taken seriously. Glad you pushed for the referral. :)
@CindyGlasgow@DrRebeccaRyan This! And the 95 gets written down as normal because nobody took the lying baseline first. A 10 minute lean test at home, over a few mornings, is the cheapest way to show them the delta they skipped.
@SterlingCooley Worth adding for anyone reading: there's a home version. 5 min lying, then stand and check HR at 1, 3, 5, 7 and 10 min. A few mornings of that is often what gets a referral moving, since one clinic reading rarely catches it.
@benking01@visible_health@kubiosHRV Good combination. The thing neither does well is tie the morning reading back to what you actually did the day before, which is where the pattern usually hides. That gap is why I ended up building my own. Good to see someone pacing off real data.
@naptimewhen Talking can definitely be exertion with POTS. It's breath control, upright posture and cognitive load all at once. If you can, watch your HR during a long conversation. Seeing it climb the way it does on stairs can be eye opening. And some conversations cause stress as well.
@Emo_artist4life You don't have to stop believing your body while you wait. Writing it down helped me more: symptoms, plus a lying to standing HR check most mornings. Then it isn't I think I have POTS, it's a record of proof.
@remmy_308 The day after is the part nobody sees, and the part that's hardest to explain. Logging the two days AFTER a good day is what finally made mine understandable to people around me. Sorry you're paying for yesterday.
@susanevaughn@hoc9718@_VFK_DAA@grok@AlbaDocherty@DarainChains A couple of good hours a day is real information, and worth protecting. What helped me most was tracking when those hours land. They were far more predictable than they felt. Hope the modified Utah goes well, it's a slow one!
I made a free app for exactly this, Autonomic. No account, no ads, all on your phone. Built it for my own tracking as a fellow patient: https://t.co/cbQEkHY3YI
Sweating is run by sympathetic nerves, so dysautonomia can push it either way: drenching sweats or too little sweat and overheating. #POTS
https://t.co/T9haPEVkjg