Ava's Voice

Connecting USHearts Around the World 🌎 to empower youth with Usher syndrome to dream it. believe it. crUSH it.

[Ava's Voice @AvasVoice]

We know the diagnosis of Usher syndrome can be extremely overwhelming. In order to prepare for our Parent Potluck session on Wednesday, July 8th we have shared a 20 minute video clip about our journeys. Link in bio. #USH2020

[Courtney Lowery @schirratigers]

Thank you @AvasVoice for visiting our 5th grade and teaching our students about Usher Syndrome. @VoorheesPTA

[Rebecca Alexander @Reb_Alexander]

Such a successful conference this year! So proud of our Usher Syndrome community! #ushersyndromecoalition @AvasVoice

[Rebecca Alexander @Reb_Alexander]

#USHTHIS mini-camp! You guys crushed it! @AvasVoice

[Ava's Voice @AvasVoice]

@MTMSMustangs What a beautiful moment! Thank you for your service 💙

[Ava's Voice @AvasVoice]

Had an amazing day today speaking with the 8th grade students of the one and only Manchester Township Middle School MTMS 💙💛💙💛Special thanks to Shay, Francesca and Sophia for your help! Until next year....🤟🏻
@MTSDnews @MTMSMustangs
#standbymeday2019 #avasvoiceprograms

[Ava's Voice @AvasVoice]

So excited to have had the opportunity to present back in our hometown of Old Bridge yesterday at Voorhees Elementary School. Special thanks to Ava’s cousin Lucia and @voorheesprin ! #backinob #avasvoice @OBSupCittadino @MTSDnews

[Ava's Voice @AvasVoice]

Ava’s Voice in collaboration 3rd grade teacher, Mrs. Kera Freeman, employed by Long Beach Island Consolidated School District developed a curriculum for their Personal Enrichment Program📚🍎@DrLRepollet @MTEF4Kids @MTSDnews @MTSDCurriculum

[Ava's Voice @AvasVoice]

@MissLenning @MissFuentes_19 @coopthecrab @CaitColandrea @OBSupCittadino No surprise you and @MissFuentes_19 would be spearheading such a wonderful program! Have fun!

[Ava's Voice @AvasVoice]

Grateful for the opportunity to present to the Old Bridge Township School District on Instructional Considerations for children with hearing and/or vision loss. @DrLRepollet Ava��s Voice is on the move!

[James Tuohy, Ed.D. @OBPS_DOSS]

Thank you to Ava’s Voice for helping to inform our OB Preschool Staff on working with students with hearing and vision issues. Very informative! @OBLombardi @OB_Dougherty @OBSupCittadino @OBassistantsup

[Ava's Voice @AvasVoice]

@OBPS_DOSS @OBLombardi @OB_Dougherty @OBSupCittadino @OBassistantsup Our pleasure! Loved all the receptiveness and willingness to experience what it’s like to walk in the shoes of someone with hearing and/or vision loss. 💙

[Ava's Voice @AvasVoice]

What a week! @MTMSMustangs Student Government raised $680 during Spirit Week for Ava’s Voice! We couldn’t be more honored to be chosen by the students for this initiative! Way to go mustangs! 💙💛 #mustangpride #communityiseverything

[Ava's Voice @AvasVoice]

@Reb_Alexander So grateful to have your love and support! 💙🤟🏻😘

[Ava's Voice @AvasVoice]

🥁����We are humbled and excited to announce today, Ava’s 13th Birthday, that we are an official USH Partner of the @UsherCoalition ! Ava’s Voice is now a national organization to support individuals with Usher syndrome 🎂💫✨💙🤟🏻https://t.co/By4HDTsvwj

[Ava's Voice @AvasVoice]

Ava’s Voice would like to acknowledge the @Manchester_PDNJ and @ManchesterSRO for their exemplary commitment to Manchester youth and for including a child with Usher Syndrome without an ounce of hesitation. #thisisdeafblind #onecommunity #onemission #onevoice #girlscandoanything

[Ava's Voice @AvasVoice]

I hope you tagged Ava’s Voice! If you haven’t already done so register now to be a FREE member and shop to support our mission all year long! https://t.co/huQ5M1Qs6T

[B-Causes @B__Causes]

Do you have a cause that is near and dear to your heart looking to raise funds? Let them know about B-Causes. We would love to help! #workingtogetherforgood #liftinglives #whatsyournonprofit https://t.co/uIPI2UMr5O

[Ava's Voice @AvasVoice]

Our very own Ava, Ethan and Gavin will be helping out with our PR initiatives! Who better?! Be sure to follow us on Twitter@AvasVoice and Instagram @avavoiceorg #avasvoice #ethansvoice #gavinsvoice #onecommunity #onemission #onevoice

[Ava's Voice @AvasVoice]

‘‘Tis the season! Join us to help raise awareness for Usher Syndrome with @Reb_Alexander @Yankees @UsherCoalition

[Ava's Voice @AvasVoice]

Another exciting day raising awareness in our community side by side with some remarkable groups and individuals @MTMSMustangs “Stand By Me Day”! https://t.co/16l4VgrjqQ

[MTSD News @MTSDnews]

Stand by Me Day happening now @MTMSMustangs #MTSDPride

[Dave Trethaway @dave_trethaway]

Ava Bullis with Commissioner Repollet. Great day congratulations Ava