Top Tweets for #USHTHIS
Today, we are excited to share our latest interview with award-winning author @Reb_Alexander and her journey with Usher syndrome type III. #USHsociety #USHcoalition #raredisease #hearingloss #deafblind #ShineALightOnUsherSyndrome #ushthis
https://t.co/pIdQ2V9TBJ
Usher Syndrome Awareness Day—I am SO INSANELY proud to be a part of our community. @USHsociety @UsherCoalition @AvasVoice
#USHday2019 #USHday #visionloss #hearingloss #USHthis #USHsociety
A little over a week ago, one of our #USHPartners @AvasVoice welcomed campers, ages 11-14, with #UsherSyndrome to @ForestLakeCamp for the first #USHThis camp. Thank you @AvasVoice @Reb_Alexander and everyone who made this possible. See the video highlights.
#USHThis is a week long sleep away camp for youth with #UsherSyndrome. #USHThis 2019 was a pilot year. Stay tuned for more information in January of 2020.
A little over a week ago, one of our #USHPartners @AvasVoice welcomed campers, ages 11-14, with #UsherSyndrome to @ForestLakeCamp for the first #USHThis camp. Thank you @AvasVoice @Reb_Alexander and everyone who made this possible. See the video highlights.
USHThis camp highlights!! We are all still on a high!
https://t.co/1VHo3DJfWp
USHThis wall climb - how do you like me now? #ushthiscamp #ushthis #ushthis2019 #avasvoice @AvasVoice
My cute kiddo...having a great time with his USH peers. #USHThis. Thanks @Reb_Alexander @AvasVoice for a great time for the kids.
🥁🥁We are humbled and excited to announce today, Ava’s 13th Birthday, that we are an official USH Partner of the @UsherCoalition ! Ava’s Voice is now a national organization to support individuals with Usher syndrome 🎂💫✨💙🤟🏻https://t.co/By4HDTsvwj
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