Day 10 – What You See, What You Don’t
The Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) can affect many areas of the body, often at the same time.
You may see someone using mobility aids and recognize a visible disability.
You may also see someone and not see their disability. They may have a non-visible disability.
Having a non-visible disability can affect someone’s life as much as a visible disability.
A person may need mobility aids all of the time. A person may need a mobility aid some days but not others, depending on their symptoms.
A person’s symptoms may fluctuate in severity on some days, requiring more support, rest, or mobility aids than on other days.
Someone may see you socializing, at work, or school and not see symptoms of your EDS or HSD. They may not see the days with fatigue, pain, and other symptoms.
Describe or visualize what people may see on the surface but what they don’t often see you going through. #MyEDSChallenge #MyHSDChallenge
https://t.co/S9GsIWp3ci #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder
@JanGHansen@brownecfm look to what the most vulnerable have already been doing. the community care and support that is already ingrained in the chronically ill and disabled community.
this does not mean ask them to do any work for you, do your own work to learn from them.