A fighter & survivor who is fighting to thrive. Jesus is #1 in my life followed only by my family. MOTTO: Enjoy everyday for in every day there is Joy!
Contaminated Heart Pills Prompt Lawmakers https://t.co/YaEkTp2l9B via @technology Thx FDA 4 approving a new opioid 10X strg than Morphine w/the “opioid crisis” YET those with ALS, Cancer, & other debilitating diseases suffer. Now I get 2worry about cancer again b/c of BP med
So Scott Gottlieb refused to meet with ALS patients seeking answers to why we are denied access to potentially life saving therapies via @_RightToTry @SGottliebFDA He must be too busy with that plant based labeling thing. Makes sense, oh the cruelty of mislabeling
The Apostle Paul regarded depending on God as a learning process. We learn about it, study it, and practice it to become an expert. Wouldn’t you like to be an expert when it comes to relying on God? Me too, sister! Let’s do it—let’s learn to depend on God. No more lone rangers!
“I will praise You, O Lord my God, with all my heart,
and I will glorify Your name forevermore. For great is Your mercy toward me ...” (Psalm 86:12-13)
@alsadvocacy@US_FDA Ever thought about asking insurance or patients to pay for it? We are just dying and no one cares. Gottlieb denied a request to meet with him. That shows exactly how little he cares about ALS. It is time for him to go. He is heartless!
Sherman @US_FDA speaking candidly to the challenges of EAPs, e.g. who pays for ancillary services related to drug (heard this come up last week re ALS), will drug developer supply drug, dealing w IRB, etc.
@MrsAaronWatson I love this!! I don’t know who did this first... but there is an activity you can do with children. Hammer nails (the words we say to others) into a board. Then pull them out. You can patch the holes but they are still there. It’s a great visual.
@MrsAaronWatson Amen to this! As wives, mommas, and women it can be an easy trap to fall into. Especially with ALL the social media. Thank you for continuing to be a mirror of reflection for God’s light.
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Two years ago we got better guidance from a man w ALS @srfinger than we did last month frm the FDA. Please read, everyone. This includes you, @alsassociation and @MDA_Advocacy . https://t.co/prhv6GCcRD