YHS '95. Princeton '99. Duke '08. Father of two, husband of 1. Former Econ prof at U. South Carolina. USMNT, Atlanta United, Gamecock fan. Living with ALS.
@FelipeCar Yes. Either needs to be more dangerous, or needs to be more high usage from a deeper position. Right now he's doing neither. Saturday almiron frequently dropped deeper to get the ball and then would end up more advanced as we moved forward.
@MaxBretosSports Also when an MLS player plays for the usmnt they know it is a tryout for the world to see. Can change their life. You don’t see that desperation from many of our players right now.
@MLSDiscord@delshaffer@AppleTV@MLS@MLS_PR@Apple I hate that they immediately put up play highlights next to the game replay. So even if you disable that box, when you go to start the match, you see all the goals listed. What is the point of disabling the score if it still shows you that a goal was scored in the 12th minute?
@kemenkhaus@Jeanc9orf72@alsadvocacy At a minimum, If a confirmatory trial is required, executives should agree to not sell any shares until the trial is completed. Otherwise patients are advocating for a blank check while we figure out if something works. Amylx executives sold millions this past year.
@md_wallach @Jeanc9orf72@alsadvocacy@DrMayl This was NEVER going to be approved for late stage patients. The data was crystal clear on that. Giving people the “choice” to spend $500,000 on something we know in all likelihood will only make them die faster at that stage can not be justified. FDA should not let that happen.
@Jeanc9orf72@alsadvocacy @md_wallach @DrMayl Approval also typically goes hand in hand with coverage by insurance companies. If you say “fda should approve because what’s the downside”. You also need to say that insurance doesn’t need to cover approved treatments. That’s a terrible outcome.
@MichaelWheelson@als_now@alsassociation When you don’t have to base your conspiracy theories on facts, it doesn’t matter who gets nominated. You can always say they are corrupt when they don’t agree with you.
@AndreaBackman05@alsadvocacy@limpbroozkit@sunnystrongals @layneo5 @Team_Thriving Thanks Andrea. How will we ask questions? Also, after our presentation last year, the stakeholders group was told we would be able to present an update on progress this year. Any explanation on why that isn’t happening?
@RobUsry Maybe I am overthinking this, but when we need a goal, why are we switching to a formation that moves two of our best attackers further back on the field?
My insurance w/ @BCBSIL only covers riluzole (generic ALS drug) if filled through Accredo Specialty. Out of pocket ”negotiated rate” for one month: $840.
Ordered three month supply without insurance from @costplusdrugs Cost: $33.60. @alsassociation@MDAorg@iamalsorg