Deb Bellina

Lean Six Sigma Black Belt. Matt’s mom, advocating for people living with ALS today and people who will be diagnosed tomorrow, and the next day, and the next

[Deb Bellina @BellinaDeb]

@PeterPitts Thank you Peter! My son received 7 doses of Nurown starting in Dec 2018. He responded well to the treatment. I know several people in the trial and in EAP who share similar experiences as my son. He is still fighting! Welcome to our world. We would love to meet you.

[Peter J. Pitts @PeterPitts]

In 2002, I spoke at an ALS event in DC. After my talk, a patient said to me, "I'll be dead in a year. Please help make a cure possible." I promised that I would. And I intend to keep that promise. https://t.co/R0o5UkbYdB

[Deb Bellina @BellinaDeb]

@DrToonces @RainConsulting Thank you! I am 100% with you on this.

[Deb Bellina @BellinaDeb]

@AreShilling @ProjectGokuu thank you- i will do that!

[Deb Bellina @BellinaDeb]

@Gingerine5 @TheMightySite Still the law. it allows people access to experimental therapies https://t.co/oEXx3jexpX

[Deb Bellina @BellinaDeb]

https://t.co/IP2CMCAGcL

[Ken M @kjmark]

@GillianHSapia The Govt entrusted Navy pilot with $50 million jet and lives of crew members but don’t believe him when he says #NurOwn works for #ALS. @SecKennedy @DrMakaryFDA @realDonaldTrump , #ALS patients have been #DyingWaiting 10+ yrs. Let’s get er done! https://t.co/CTd1GxcAWo

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

A Neurologist and a Mom Join Forces: the Real-World Evidence in the Fight for NurOwn's Approval for People with ALS https://t.co/oTtHC037aH

PLEASE SHARE this compelling testimonial from Kade's neurologist Dr. Danielle Geraldi-Samara who provided her expert opinion that the #NurOwn stem cell therapy helped Kade breathe better and live longer.

Kade was diagnosed with 100% terminal #ALS at just 21 years old. Kade received 3 doses of NurOwn in the P3 trial in 2019. But he couldn't get more than 3 doses because it wasn't yet approved by the @US_FDA.

Tragically Kade died waiting on August 4, 2024.

Despite her unfathomable grief, Kade's mother filed a legal document with @FDACBER called a Citizens' Petition. She and other families are asking the FDA to approve NurOwn so no other family has to watch a loved one die when they know NurOwn could help them live.

#LivingProof #NurownWorks #stemcells
#ALS #ALSawareness #EndALS #Neurology #MND

@realDonaldTrump @SecKennedy @DrMakaryFDA
@VPrasadMDMPH @WhiteHouse @HouseGOP @SenateGOP @SenBillCassidy @SenJohnBarrasso @LeaderJohnThune @SenMullin @SenatorLankford @TomColeOK04 @RepAndyHarrisMD @RepJohnJoyce @RepGusBilirakis @DorisMatsui @SenAmyKlobuchar @SenatorLBR @RepSchakowsky @rosadelauro

$BCLI @BrainstormCell @TeamGleason
@HopOnACure @RealEricDane @LiveLikeLou4
@ALSUnitedCT @ComCareALS @youralsnetwork
@ALSofGNY @ALSUnitedChi @ALSunitedOhio @ALSUnitedRI @HarkALSHope @LesTurnerALS @DrOzdinler @HeimanPatterson

[ACCESS Newswire @AccesswireNews]

A Neurologist and a Mom Join Forces: the Real-World Evidence in the Fight for NurOwn's Approval for People with ALS https://t.co/7ofNYUYiJI

[Deb Bellina @BellinaDeb]

@limpbroozkit wishing you a speedy recovery Brooke! Our son Matt is on his way for the same surgery this morning. I hope he has great nurses too. and thanks for sharing your story. it really helps!

[Deb Bellina @BellinaDeb]

@OhMelodylane @newstart_2024 same. i started living on Atkins program in 1998. he was far ahead and 100% accurate.

[Deb Bellina @BellinaDeb]

@MinoShah @SecKennedy @MartyMakary @FDACBER https://t.co/NXNfIf7oxn

[Deb Bellina @BellinaDeb]

@optionenjoyer @GuitarZen5 @newstart_2024 berries, in moderation.

[Deb Bellina @BellinaDeb]

@newstart_2024 Dr. Atkins was ahead of this in the 1960's and he was excoriated. He was brilliant - we were never designed to eat the way we do today.

[Deb Bellina @BellinaDeb]

@ChiCroDamir @factpostnews There was an outbreak around the same time last year according to the CDC Measles Cases and Outbreaks | Measles (Rubeola) | CDC

[Deb Bellina @BellinaDeb]

@interestsarefre @ChiCroDamir @factpostnews Measles Cases and Outbreaks | Measles (Rubeola) | CDC

[Deb Bellina @BellinaDeb]

@iamalsorg it is time to move the ALS Registry to a competent non-governmental entity that partners with AAN and ANA to register ALL people diagnosed or suspected diagnosis. Partner with a big data company to ingest all patient data and stratify the population.

[Deb Bellina @BellinaDeb]

@iamalsorg please support the move of the ALS Registry from NIH to a non-governmental entity such as Synapticure and build a partnership with ANA and AAN. We need to capture every ALS and suspected ALS diagnosis and ingest all medical, environmental, historical data to stratify. Big Data

[Deb Bellina @BellinaDeb]

@rencar130 @EndTribalism i had a neurological injury from a vaccine , but we don’t know why. ALS is a neurological disease and about 80-85% of diagnoses have no known cause. Just pointing out that Neurological illnesses are very complex