BAT_Cure

EU Consortium of scientists, clinicians, pharma and a patient organisation - working together to cure Batten disease from January 2016

[BAT_Cure @BAT_Cure]

Repurposing of tamoxifen ameliorates CLN3 and CLN7 disease phenotype | EMBO Molecular Medicine https://t.co/mQR5lpFhJX #BattenDisease @BAT_Cure

[Jonathan Cooper @Batten_PSDL]

Happy to announce the new date for NCL2021, which will take place here at @WUSTLmed October 6-10 2021 as a hybrid meeting with in person and on-line options. Details soon at https://t.co/cvTkVkKG1c #ncl2021 #battendisease @BDSRA @BattenDiseaseuk

[Professor Susan Michie @SusanMichie]

209 deaths - Wednesday
176 deaths - Thursday
357 deaths - Friday
75 deaths - Saturday
77 deaths - Sunday
55 deaths - Monday
286 deaths - Tuesday
245 deaths - Wednesday- Is this the time to open non-essential shops with the public transport use goes with it?

[Miranda Keeling @MirandaKeeling]

Man 1 walking behind me in Tottenham: Feels end of days.
Man 2: Yes.
Man 1: So I might as well tell you.
Man 2: What?
Man 1: (inhales) That I love you.
Long pause.
Man 1: You don’t feel the same.
Man 2: Of course I do you silly sausage I’m just trying not to cry.

[Nicole Rich @njrchfoundation]

Pls RT! The day we have been waiting for us here!!!!! Can’t stop crying💗💗💗💗We don’t know where to start thanking everyone for their support💕 we will message again when we find the words...every second,minute,hour of campaigning was worth it!🎉🎉🎉

[BAT_Cure @BAT_Cure]

Another @BAT_Cure success! #battendisease

[Ahad Rahim @ProfAhadRahim]

New @SophiaKleine and @saherma84 et al study on #genetherapy for CLN6 #battendisease @hmg_journal @SaraEMole @Aristoshaper @DrGiuliaMassaro @DrMichaelHughes @School_Pharmacy @UCLeye @MRC_LMCB https://t.co/YixLN1d2C3

[BAT_Cure @BAT_Cure]

#prophetic #battendisease

[Prof Sara Mole @SaraEMole]

Had to correct my email address in a @BAT_Cure report that had sneaked in ending with .eu instead of .uk #wishfulthinking or #prophetic #battendisease

[BAT_Cure @BAT_Cure]

@SaraEMole working hard in the final month as lots of final admin to complete - today meeting with @BattenDiseaseUK who have contributed so much as a full partner in @BAT_Cure

[BAT_Cure @BAT_Cure]

Last day of final @BAT_Cure meeting. Much progress made and lots of fun along the way #battendisease #sciencedrivenresearch #workingtogether

[BAT_Cure @BAT_Cure]

@SaraEMole presenting @BAT_Cure project in #rarediseases Workshop on Rare Diseases hosted by @Leitat #battendisease

[BAT_Cure @BAT_Cure]

Landed and heading to final @BAT_Cure meeting I’m #Barcelona #battendisease. An early start!

[BAT_Cure @BAT_Cure]

https://t.co/0bmH0k5sSP
Next week in Barcelona!

[BAT_Cure @BAT_Cure]

Another @BAT_Cure baby, a boy. Congratulations Raffaella! That makes 6! #battendisease #simplygoodpractice

[Prof Sara Mole @SaraEMole]

Lancet Neurology review on #battendisease online @SaraEMole @BAT_Cure

[BAT_Cure @BAT_Cure]

And very proud of all the @BAT_Cure babies. 6 and counting! #simplygoodpractice @SaraEMole @Athena_SWAN @UCLEqualities

[BAT_Cure @BAT_Cure]

@BAT_Cure meeting following @NCL_2018 #ncl2018 #workingtogether towards therapies for #battendisease

[BAT_Cure @BAT_Cure]

@BAT_Cure meeting following @NCL_2018 #ncl2018 #workingtogether towards therapies for #battendisease

[BAT_Cure @BAT_Cure]

Lost count of # references to @BAT_Cure in talks & posters @NCL_2018 #NCL2018 #battendisease #makingadifference #sciencedrivenresearch

[Heather Band @bdfaRESEARCHuk]

On our way to @NCL_2018 ! See you there safe journey to everyone. @BattenDiseaseUK @BAT_Cure @SaraEMole #battendisease

[Prof Sara Mole @SaraEMole]

@UCL collaborators @BAT_Cure #battendisease win prize https://t.co/MxRrHV1aiH—%20issue%20355

[BAT_Cure @BAT_Cure]

>100 abstracts received. If any problems submitting let @SaraEMole know as we start assessing next week. #battendisease