nursing zebra

Nursing associate trying to succeed whilst also battling hypermobile Ehlers-Danlos syndrome, dysautonomia and gastroparesis. Double tubie warrior!

[nursing zebra @bates_ks]

#IsItOk? Is it ok that Bupa are doing adverts about sponsoring the paralympics but won't cover anyone with a pre-existing condition, therefore a huge number of paralypians would not be covered including @HanCockroft ?!!

[nursing zebra @bates_ks]

@AldiUK rather disappointed to find the that I can’t trust looking up #GlutenFree products online and finding a tempting bacon and egg sandwich in your #EatAndGo section yet the only “free” mentioned on closer inspection was “free range” for the eggs!
Product # 4088600457987

[nursing zebra @bates_ks]

#EhlersDanlos month,EDS has stripped me of my career in nursing, and lifestyle pls give some life back,share and donate towards a #wheelchair to maintain #Independence @jameelajamil @Sia @OddlyYvie @Russel_Kane @halsey @freshnessuk @sarageurts @lenadunham
https://t.co/Dc00NURZTI

[nursing zebra @bates_ks]

Please, Help me raise £3200 to Celebrate my 40th birthday, I’m asking for donations towards an Active User Wheelchair to maintain my independence and #EhlersDanlos awareness. Please #donate on @justgiving and RT. Thanks! https://t.co/hFMsnEAL1a

[nursing zebra @bates_ks]

I wrote too much here but if I say,
“I suffered through 192 periods because I had been told so many times by so many people that nothing was wrong with me!!” Medical gaslighting at its best!
#BillieEilish #Hypermobility #EhlersDanlosSyndrome https://t.co/EVoIMhDQKm

[nursing zebra @bates_ks]

@mothercareuk 44 years service in the family and not a trace of colour loss! Known as the #RubberChicken or #EggYolkYellow babygrow this gorgeous terry towelling outfit is lovely@in this weather and suits baby #Titus beautifully 💕 #TheyDontMakeThemLikeTheyUsedTo 😜

[nursing zebra @bates_ks]

@LiviButt @kevincatadvent1 At least hers is warm with a little bit of padding from the knickers 😆

[nursing zebra @bates_ks]

@dieversteckt You look wonderful and confident (even if you don’t feel it!). So glad your colleagues did so well, no big deal, no making much of it as, although it’s a big day for you, for them they are just working another day alongside their colleague and acting as they should 💕 🤗

[nursing zebra @bates_ks]

@CarrieALightley I love turning up to medical appointments in my nursing uniform 😆 👩‍⚕️ puts them on the back foot a bit 🤨 I am a person, who happens to have a disability. My disability does not define me #InvisibleIllness #EhlersDanlos #Gastroparesis #LoveATubie #TPN #HickmanLine

[nursing zebra @bates_ks]

Why do I have to PROVE my diagnosed condition every time?! #InvisibleIllness #Disbelieved #Belittled https://t.co/defr2XWpeU

[nursing zebra @bates_ks]

When will we have respect for fellow human beings 💕 it doesn’t matter who, what, where from, why can we not just love, care and respect? Differences in health are often caused by prejudice and assumptions made during care and become self fulfilling prophecies 😢 💔 🤗

[nursing zebra @bates_ks]

@LiviButt @kevincatadvent1 The normal tie boy is a little on the scruffier raggamuffin side! Hence being known as “Buggerlugs“!! 😆

[nursing zebra @bates_ks]

@LiviButt @kevincatadvent1 So handsome, join the bow tie club 😻

[nursing zebra @bates_ks]

A clear and detailed explanation and a wonderful way of going through “Christmas bubbles” with people with additional needs, learning disabilities or communication difficulties 🎄🏡

[East Lancs NHS @EastLancsNHS]

If you know or care for a person with learning disabilities, this video may be really useful to share with them to help them understand the rules on Christmas bubbles over the Christmas period. https://t.co/W6BKvlYfvQ

[nursing zebra @bates_ks]

@so_bad_ass I let the ball slip or ask someone else to help juggle. Taken a lot of time, tears, angst and stress but I’m finally sharing the load, willingly (ish!! 😆). #EhlersDanlos #Gastroparesis #CFS

[nursing zebra @bates_ks]

I put on a front and work long shifts, I go shopping or for days out with the kids in a wheelchair, I spend days unable to go further than the sofa 🤷‍♀️ I am disabled just don’t like to admit it 💔

[Ehlers-Danlos Support UK @ehlersdanlosuk]

"Disabilities can be visible, or hidden." #IDPWD2020 #EhlersDanlosSyndrome #HypermobilitySpectrumDisorders

[nursing zebra @bates_ks]

@LiviButt @kevincatadvent1 Joining the long cat brigade! He wasn’t even one here! 😻

[nursing zebra @bates_ks]

@BootstrapCook @RyanRileyy Coconut and lime loaf cake (or turned into cupcakes) I use Bero book recipe and just use gf flour (coeliac kids)
Oh it smells so good!! 🧁

[nursing zebra @bates_ks]

Last push to get the total raised before next week. #Scoliosis #EhlersDanlosSyndrome #Gastroparesis #Fundraising #Fighter #LastPush https://t.co/VCZhNVqefS

[nursing zebra @bates_ks]

@isthatbrads I happily show my scars, tubes and lines as it raises awareness and normalises things that keep people alive. #Gastroparesis #EhlersDanlos #BroviacLine #HPN I worked on the wards with an NG/NJ tube in and visible😊