BattenFighters4ever 💙

Two of our beautiful children, Robbie (7) and Annabelle (14) have CLN3 Batten Disease and are dying. Our quest is to fight this by raising funds for research

[BattenFighters4ever 💙 @battenfighters4]

World Braille Day is annually celebrated on January 4.
Today is the birthday of Braille inventor, Louis Braille. (1809-1852)
The day recognizes the contributions of Louis Braille in helping blind and visually impaired people to read and write.
#cln3 #Braille #BattenDisease

[BattenFighters4ever 💙 @battenfighters4]

We thank you for all your support during 2021, and we wish you all the best for 2022.
Are you considering setting yourself a personal challenge or a New Years resolution for 2022?
If you are then please think about being sponsored and supporting Batten Fighters Forever?

[BattenFighters4ever 💙 @battenfighters4]

We thank you for all your support during 2021, and we wish you all the best for 2022.
Are you considering setting yourself a personal challenge or a New Years resolution for 2022?
If you are then please think about being sponsored and supporting Batten Fighters Forever?

[BattenFighters4ever 💙 @battenfighters4]

DO YOU HAVE UNWANTED GIFTS?

We do hope you all had a wonderful Christmas.
If you have any unwanted gifts would you please consider donating them to Batten Fighters Forever?
We can use them for our raffles and tombolas.
Your support is very much appreciated.

[BattenFighters4ever 💙 @battenfighters4]

A massive thank you from Annabelle

[BattenFighters4ever 💙 @battenfighters4]

Amazing. Annabelles wish came true. Not only did she want to get birthday wishes, she also wanted to Raise awareness of this cruel disease

[BattenFighters4ever 💙 @battenfighters4]

Thank you for making her birthday wish come true ❤️

[BattenFighters4ever 💙 @battenfighters4]

Thank you for making her birthday wish come true ❤️

[BattenFighters4ever 💙 @battenfighters4]

🧡A birthday Wish from Annabelle🧡 Our Annabelle will be turning 16 on the 28th September and her wish is to receive as many birthday cards as possible.
If you can send her a card that would be appreciated. Annabelle Hover
C/O St Ives Post Office,
72 Ringwood Road, BH24 2NY
UK

[BattenFighters4ever 💙 @battenfighters4]

Please retweet. We can make Annabelles wish come true. #cln3 #Sweet16thBirthday https://t.co/eCN8swZAMv

[BattenFighters4ever 💙 @battenfighters4]

Well done & Thank you Sam https://t.co/PnLZ5oerPV

[BattenFighters4ever 💙 @battenfighters4]

Unfortunately the BFF Disco cannot go ahead this year due to continuing COVID restrictions. We plan to to make it happen in 2022. Watch out for future announcements.

[BattenFighters4ever 💙 @battenfighters4]

Last post from us on Batten Disease Awareness Day, but our work does not stop. We will keep going, but need your help. If you have seen something today that has inspired you and you want to help by either becoming a fundraiser or become a regular donor then send us a message.

[BattenFighters4ever 💙 @battenfighters4]

We were delighted to contact 8 families today, on Batten Disease Awareness Day, to provide grant awards to help them.
Thank you to all our supporters and donors for making this happen.

https://t.co/P8ELS8gb3j

[BattenFighters4ever 💙 @battenfighters4]

£2000 could pay for 3 seizure monitoring systems, or 1 ½ specialist mobility walkers, or a 5-year home lift servicing contract, or 2 small home adaptations, If you can sponsor them, it will greatly help to support families fighting this disease.
https://t.co/bEnElouF76

[BattenFighters4ever 💙 @battenfighters4]

Lisa and Andy are walking 100km to raise much needed funds to carry on the work of Batten Fighters Forever.
This is likely to be the last big fundraising challenge that Lisa and Andy can do as Batten Disease takes more of a hold on their own children.
https://t.co/bEnElouF76

[BattenFighters4ever 💙 @battenfighters4]

Lisa & Andy are walking 100km to raise much needed funds. This is likely to be their last big challenge that they can do as Batten Disease takes hold on their own children, Annabelle and Robbie who have the CLN3 variant, and caring needs consume more time. https://t.co/bEnEloMfYE

[BattenFighters4ever 💙 @battenfighters4]

DONATE WHILE YOU SHOP WITH AMAZON SMILE
Open your Amazon App, Select "Amazon Smile" on your menu within Programmes & Features. Choose Batten Fighters Forever as your charity, Then follow the on screen instructions .

[BattenFighters4ever 💙 @battenfighters4]

Being Batten disease Awareness day we had to reshare this video of Michal walking. Batten Fighters forever, with your support were able to contribute to the funding to buy this amazing walking frame.
#BattenDisease #battenday2021 #bff

[BattenFighters4ever 💙 @battenfighters4]

Batten Fighters Forever have funded a sleep monitoring system for Monay.
#BattenDisease #battenday2021 #BFF

https://t.co/eOrbGMq0cE