b brave foundation

Improving the lives of children affected by rare, incurable neurological disorders.

[b brave foundation @bbravefound]

July 18. Tickets are available now for the B Brave Foundation Annual Fundraiser.

One evening. One community. One mission: children with rare, incurable neurological disorders and the families who love them.

Get your tickets:

[b brave foundation @bbravefound]

Long hospital stays can wear families down.

B Brave Comfort Carts bring books, games, and gift cards to families caring for children with rare, incurable neurological disorders.

[b brave foundation @bbravefound]

Some expenses cannot wait.

The B Brave Urgent Needs Fund helps families facing rare, incurable neurological disorders when a crisis expense arrives without warning.

[b brave foundation @bbravefound]

Today is International GM1 Day. For B Brave, awareness begins with Joey Scaparotti - his bravery, his legacy, and the love that became a bridge for other families.

Know the signs. Seek support. No family should face GM1 alone.

[b brave foundation @bbravefound]

Thank you to our Team B Brave runners who showed up across recent race weekends, including full marathon runners, Tara Hopkins in the UH Cleveland half marathon, and Ryan in the Pittsburgh Marathon.

[b brave foundation @bbravefound]

The Cleveland Marathon is this weekend. B Brave is running for children with rare, incurable neurological disorders. Registration is still open if you want to join. https://t.co/q0ESzlVLN3

[b brave foundation @bbravefound]

Team B Brave is running the Cleveland Marathon for children with rare, incurable neurological disorders. Registration is open and there is still time to join us.

Use code BRAVE20 to sign up.

https://t.co/hbAMXS2D8R

[b brave foundation @bbravefound]

Discounted tickets are still available for the B Brave Annual Fundraiser.

For $100, you can join us July 19 at Collision Bend Brewing Company and help fund direct support for families caring for children with rare, incurable neurological disorders.

[b brave foundation @bbravefound]

Every donation fuels four core programs: Financial Assistance Grants, the Self-Care Fund, Comfort Carts, and Caregiver Appreciation drops inside partner hospitals. Give today: https://t.co/DRK4VKIZXx

[b brave foundation @bbravefound]

The Cleveland Marathon is weeks away. Team B Brave runs for children with rare, incurable neurological disorders, and we still have room for more runners.

Use code BRAVE20 to join the team.

https://t.co/HVLvgBnXFA

[b brave foundation @bbravefound]

Cleveland musicians are turning a 10-year tradition into direct support for B Brave families this summer. The Cleveland Musicians Fundraiser helps fund practical care: family grants, caregiver support, and resources that reduce pressure when life is already overwhelming. Event in

[b brave foundation @bbravefound]

Good care is not just clinical. It is the nurse who remembers a child's name. The therapist who celebrates a small gain. The social worker who returns a call the same day.

To everyone caring for children with rare, incurable neurological disorders: thank you.

[b brave foundation @bbravefound]

The Joey Bear Grant provides $500 in immediate support to families grieving the loss of a child to a rare neurological disorder—covering counseling, sibling care, or memorial costs. Details: https://t.co/GpCpTVvOG5

[b brave foundation @bbravefound]

We’re honored to be the 2026 charity partner for the 10th Annual Cleveland Musicians Fundraiser. Save the date: Monday, July 27 at the Yankies Complex in Geneva-on-the-Lake. All proceeds benefit B Brave families. Details + free tickets: https://www.clevelandmusiciansfundraiser.or

[b brave foundation @bbravefound]

Project Rare showcases families like Ava's in Alaska, who lean on the outdoors while navigating an incurable neurological disorder. Watch the films and see how storytelling builds community: https://t.co/mHZRoqqlbi

[b brave foundation @bbravefound]

Family Support Grants provide up to $2,500 per household for uncovered essentials—travel to specialty clinics, adaptive equipment, mortgage support during prolonged hospital stays, and more. Refer a family or give today: https://t.co/aOh7ZDGheS

[b brave foundation @bbravefound]

"Rare" doesn't mean small. It means 30M Americans, 95% without an FDA-approved treatment, and families facing $71k–$189k in annual out-of-pocket costs. Our new blog unpacks the hidden realities behind those numbers: https://t.co/ACwVRblZwe

[b brave foundation @bbravefound]

"When B Brave covered a gym membership, it bought me oxygen." Jill is a Juvenile Tay-Sachs mom who used her Family Support Grant to regain strength so she could keep caregiving. Custom grants like hers are available year-round: https://t.co/Ta1K9ofnbn

[b brave foundation @bbravefound]

Caregivers in our community routinely log more hours than a full-time job. The Self-Care Fund covers counseling, EMDR, and gym memberships so parents can stay healthy enough for round-the-clock care. Apply or refer a family: https://t.co/Ta1K9ofnbn

[b brave foundation @bbravefound]

Subscribe: https://t.co/xJnQy73Pn3

[b brave foundation @bbravefound]

Stay informed about the families we serve and the impact of your support. Our newsletter shares family stories, program updates, and concrete ways your involvement makes a difference. Join thousands of supporters building bridges to a brighter future for rare disease families.