Saying goodbye is never easy - but saying goodbye to people who have looked after you for years upon years is even harder.
Today I said goodbye to the INCREDIBLE St Michael’s Ward staff in @CHIatCrumlin who have looked after me throughout my life with #CysticFibrosis. 💜🥺
As someone with cystic fibrosis who regularly attends hospital, these parking fees are insane. Over the last year alone, I must have paid hundreds just attending hospital appointments. Being sick is expensive enough. It needs to change.
#Ireland#HospitalParking#Healthcare
What is going on with cars driving the WRONG WAY on Irish motorways? Another horrific M9 crash in Kildare, after a vehicle was reportedly travelling southbound on the northbound carriageway. Number of people have died and 4 others are seriously injured. How is this happening?
Rest in peace @lynseybennett_ - an inspirational, amazing, funny and incredible person who I had the pleasure of meeting. Your life was sadly cut far too short. 💛💛💛
Ar dheis Dé go raibh a hanam. 💕
First CF transition clinic yesterday ahead of the move to Vincent’s - Sad and exciting times! 🥰
From 19 months old to 17 years in @CHIatCrumlin - It has flown so quickly by with the incredible care of the cystic fibrosis team and St Michael’s Ward! 💜
#CysticFibrosis
Today is the day, I have officially been fully vaccinated against Covid-19.
To think back to the start when I began cocooning - no vaccine, only hope.
Now 432 days later, I can begin to re-enter society safety as a 17 year old.
All down to science, which has been a saviour. 💜
First dose of my Covid-19 vaccination today. 🙌🥳
It’s been a difficult couple of weeks but I have been waiting for this day for some time.
As a 17 year old in cohort 4, this is the slow beginning of a return to society in a meaningful way & getting back to being a ‘teenager’.
Today’s a massive milestone in my life.
I’m 1 year out of @CHIatCrumlin not requiring hospitalisation due to my CF.
Cystic Fibrosis unfortunately is such an unpredictable disease. To go this long for me is such a massive achievement.
“Despite it all, there is always hope”. 💜
2017, Pre Covid, I was wearing my mask to protect myself.
I’ve been wearing a mask since I was 6 years old.
I’ve Cystic Fibrosis and I wear a mask - If you can, please wear your mask. 🙌
Retweet if you #WearAMask to protect your family or a friend 💜
[email protected]
As we see a increase in covid cases especially in Dublin, as someone who’s medically vulnerable I am strongly urging everyone to please limit your contacts this weekend.
Wear A Mask 😷
Social Distance 🙌
Hand Washing 🧼
#ProtectTheVulnerable - Your actions have consequences.
This really raised my spirts today while in self isolation when I received such a nice card from the Taoiseach, Leo Varadkar.
It’s so nice to see him recognising the CF community and how much we understand the importance during these difficult times.
Thank you Leo! 💜
Today, 18th of Janurary marks two years of me being on the cystic fibrosis drug Orkambi.
Orkambi has changed my life so much! It's improved my Weight, Height, Lung Function, Overall Health and Quality of life!!!
Also, tommorow (19th Jan) is my birthday, so thats my cake 😀😊